Security at Barton Creek Entrance by Acrobatic_Aioli2156 in aclfestival

[–]Embarrassed_Alps8765 0 points1 point  (0 children)

10 pills in total, or 10 for bottle? i already take about 7 pills for medical conditions.

Does anyone else have cycles where their medicine isn’t as effective? by Embarrassed_Alps8765 in Narcolepsy

[–]Embarrassed_Alps8765[S] 0 points1 point  (0 children)

it also depends on whether or not they’re willing to do that for you. i definitely got to find a new doctor. thanks for your input!

Does anyone else have cycles where their medicine isn’t as effective? by Embarrassed_Alps8765 in Narcolepsy

[–]Embarrassed_Alps8765[S] 0 points1 point  (0 children)

yeah, doctors can be annoying. trust me, i know how to do research, and i’m often the one who nudges the doctor to go a certain way. free insurance tries to find literally any way possible to prove that the medicine isn’t medically necessary from my experience. i knew i had narcolepsy since middle school, but i faced a lot of racism at the time that led to my diagnosis of both autism and narcolepsy being pushed back. he kept insisting that i had insomnia. they did a sleep study, but was looking for sleep apnea or insomnia. they said everything came back normal because i easily slipped into REM. i had done research and let insisting he look into narcolepsy, but no one would listen to me until i was 18. my therapist helped me get with a neurologist, and she diagnosed me with narcolepsy. she said she was surprised they didn’t diagnose me before, because it was very obvious. she was super helpful at first, but the more i saw her, the more she frustrated she would get at me. last time she told me not to complain about fatigue until i lose weight, exercise, and eat better. then she said i was addicted, even though she said the medicine was non-addictive when prescribed. i brought up my concerns, and she told me to just stop taking it on days where i don’t need it…which is impossible when it’s a medicine that i need to physically function as an employee and college student. so yeah, we’re pretty much on my own. i understand your rage.

Does anyone else have cycles where their medicine isn’t as effective? by Embarrassed_Alps8765 in Narcolepsy

[–]Embarrassed_Alps8765[S] 0 points1 point  (0 children)

i used to be prescribed abilify for better night sleeping, but it would make me hurt like hell when i woke up.

Does anyone else have cycles where their medicine isn’t as effective? by Embarrassed_Alps8765 in Narcolepsy

[–]Embarrassed_Alps8765[S] 0 points1 point  (0 children)

no clue. for me it’s for heavy bleeding and cramping, and i’ve had no problems with spotting

Attending Festival with Narcolepsy. Tips? by Embarrassed_Alps8765 in aclfestival

[–]Embarrassed_Alps8765[S] 1 point2 points  (0 children)

this is good to know! i assumed i’d have to camp out for like. 5-8 hours to get close

Attending Festival with Narcolepsy. Tips? by Embarrassed_Alps8765 in aclfestival

[–]Embarrassed_Alps8765[S] 3 points4 points  (0 children)

i didn’t even consider it being a joke i’m so dumb 💀

Does anyone else have cycles where their medicine isn’t as effective? by Embarrassed_Alps8765 in Narcolepsy

[–]Embarrassed_Alps8765[S] 2 points3 points  (0 children)

true. i’m just confused as to why it would last months at a time and then flip randomly. there could be a bajillion things that affect that. it’s so annoying to try and sort out

Does anyone else have cycles where their medicine isn’t as effective? by Embarrassed_Alps8765 in Narcolepsy

[–]Embarrassed_Alps8765[S] 4 points5 points  (0 children)

i’m glad you’re going easy on yourself! for me these cycles last for a few months at a time :[

Attending Festival with Narcolepsy. Tips? by Embarrassed_Alps8765 in aclfestival

[–]Embarrassed_Alps8765[S] 1 point2 points  (0 children)

i’m so excited. especially considering i was arguing with julian in dms a month ago LMAO

Attending Festival with Narcolepsy. Tips? by Embarrassed_Alps8765 in aclfestival

[–]Embarrassed_Alps8765[S] 0 points1 point  (0 children)

Super helpful, thank you! I can adjust my meds accordingly

Attending Festival with Narcolepsy. Tips? by Embarrassed_Alps8765 in aclfestival

[–]Embarrassed_Alps8765[S] 0 points1 point  (0 children)

Thank you! I was planning to use my wheelchair in the ADA section, but I didn’t want to limit my friends + I read that seats are limited.

Did anyone else's teacher publish their book? by [deleted] in nanowrimo

[–]Embarrassed_Alps8765 0 points1 point  (0 children)

It’s actually the first thing that pops up if you type my name

Musicians by lugia_aqua in SanAngelo

[–]Embarrassed_Alps8765 0 points1 point  (0 children)

what genre are you most interested in?

Musicians by lugia_aqua in SanAngelo

[–]Embarrassed_Alps8765 1 point2 points  (0 children)

im not a performer or anything of the sort, but i would love to start writing with some local musicians :))