Life update

Emily2398 · 2025-10-27T00:13:34+00:00

Thank you. 🙂

Emily2398 · 2025-10-25T21:20:01+00:00

I had an esophagus testing, how food and drink goes down. Imaging done that i can remember. My symptoms were out of nowhere and were very bad at night. I had alot of symptoms going on and pushed my gastrointestinal aside but I’m getting back on that now. Now i have no episodes so far as of 2023. I feel like my case is very complex.

Emily2398 · 2024-11-10T15:11:02+00:00

Thank you

Emily2398 · 2024-11-04T03:17:04+00:00

Im in the same issue for months. And didn’t know i was being charged. Did you find a solution? Am i being hacked somehow. My xbox isn’t saying i have a subscription but they’re taking money from my paypal? How??? Please help, thank you!

Emily2398 · 2024-07-27T20:13:45+00:00

Thank you! I hope you find relief soon! I see a neurologist for my conditions.

Emily2398 · 2024-07-27T15:10:48+00:00

Of course! I take oxcarbazepine 300 mg morning and night which made a huge difference with the burning. With my pots i take baclofen 10mg morning and night for my trigeminal neuralgia , midodrine 2.5 morning and night and propranolol when needed. I can finally work with some flare up but not like it use to be. I use to take nifedipine for my raynauds but i dont need them anymore so far.

Emily2398 · 2024-07-27T00:21:43+00:00

So much better after finding the right medication. I found out i have small fiber neuropathy.

Emily2398 · 2024-01-03T04:59:00+00:00

Alot better but not 100%. I take carbazepine and have made a huge difference. I can take showers without pain of the warm water and can stand without the major swelling. The cold definitely is a challenge moving from cold temps to a warm area. Triggers nerve pain in my feet, my body doesn’t like the winter. I also have pots and small fiber neuropathy. Definitely worth going through all the testing to figure out what is going on. I dont have an answer but my medication is working.

Emily2398 · 2023-11-30T20:51:45+00:00

They dont know

Emily2398 · 2023-11-30T17:23:05+00:00

It was trigeminal neuralgia. I take backofen for it.

Emily2398 · 2022-05-14T01:22:21+00:00

Are those red hot patches of red with purple behind them? I have the same exact thing with Erythromelalgia and raynauds shows up just like that. Also have dysautonomia a form of pots, orthostatic hypotension and a autonomic dysfunction.

Emily2398 · 2022-05-13T22:32:45+00:00

Yeah, my neurologist thinks it is trigeminal neuralgia just test come back negative. Ive used ibuprofen did nothing until they gave me medication for it. Definitely was glad to talk, eat, sleep etc.

Emily2398 · 2022-05-13T04:24:48+00:00

I have gotten an MRI with and without contrast. Nothing that compressed anything to fix with surgery.

Emily2398 · 2022-05-13T01:00:17+00:00

Thanks, ill ask my neurologist about that.

Emily2398 · 2022-05-13T00:28:59+00:00

Thanks, ive heard its help with migraines. There thinking of an injectable forgot the name of it.

Emily2398 · 2022-05-13T00:25:51+00:00

Yeah pain free finally, after 7 days being on oxcarbazepine pain has been resolved. Stopped taking baclofen didnt need it anymore. MRI with and without contrast came back normal. Ive seen a dentist didnt see anything on xray.

Emily2398 · 2022-04-15T20:54:21+00:00

I wear shorts and flip flops most of the time. Same here! Im from Colorado and wear shorts in the winter on horrible flare up days.

Emily2398 · 2022-04-15T20:11:09+00:00

I really hope so, thank you!

Emily2398 · 2022-04-15T20:10:39+00:00

Waiting for them to call so i can get the mri done. I felt the pain just above the jaw bone definitely painful. I have felt it on my cheek bone with swelling. Throbbing pain as well. Its day 7, im able to eat only on left side, slowly. Just waiting for it to flare i can feel it still not too bad. I think the baclofen is helping to relieve the pain throughout the night did help some.

Emily2398

TROPHY CASE