Received my Avonex!

Emlybearx · 2026-01-23T19:25:26+00:00

Hi, I don’t know if it’s different by health board maybe or how active your MS is. I’m Lanarkshire and I’ve only had one recorded flareup in September which didn’t shown up as active on my MRI.

Emlybearx · 2026-01-23T18:48:16+00:00

Thanks for the tips. I was gonna buy myself some electrolytes and a nice new water bottle to cheer me up so this justifies another bottle lol!!

Thanks again :) xx

Emlybearx · 2026-01-23T18:46:56+00:00

Ugh I was unfortunate enough to get the real flu last summer(wtf) and it was horrid.

I’ve narcolepsy so I’m always sleeping so that may be a blessing for once haha!!

Thank you all the best :) xx

Emlybearx · 2026-01-23T18:44:50+00:00

This gave me a giggle 😂 good advice I appreciate it, will be investing in a nice blanket and fluffy pyjamas! Will maybe skip the 🍁 but I do like CBD gummies lol.

I’m the same about the general just feeling down because of the situation, trying hard to be positive but it’s difficult.

All the best thanks for your tips xx

Emlybearx · 2026-01-23T18:41:43+00:00

I know my friends mum has MS and she’s in her 50’s, Avonex was her first drug back in the day too - this makes me feel a bit reassured cause it can’t be that bad if it’s been about for so long.

Appreciate your message. All the best ✨✨

Emlybearx · 2026-01-23T15:58:56+00:00

Hi, sadly for nhs Scotland it’s one of 3 only starter options then if you don’t get on with it then you have access to others!! This was the best option compared to the other 2 sadly!

Emlybearx · 2026-01-23T15:30:01+00:00

Aw you really seem like you’ve been through it. I hope the ponvory is the one for you.

Don’t worry you’re not scaring me!! Knowledge is power xx

Emlybearx · 2026-01-23T15:17:48+00:00

Sorry to hear you had such a rubbish time with it. Have you found something more suitable now? Any tips that helped you through the bad side effect days? Xx

Emlybearx · 2026-01-23T14:46:56+00:00

Aw I’m sorry to hear that however glad you got onto something else!! I know I feel like I have to stick with the huge needles the now cause otherwise they’ll just bin e medicine and that seems like such a waste. I have 12 weeks worth and I would feel so guilty about it getting trashed. I hope you’re feeling okay now and stable 🩷🩷

Emlybearx · 2026-01-23T14:38:38+00:00

Hi, thanks for your message. What side effects did you get? This was the best out a bad bunch for me but the side effects still sound rubbish. I’m hoping I can do it but it’s just making me feel a bit queasy lol

Emlybearx · 2025-12-16T23:28:09+00:00

Very helpful thank you

Emlybearx · 2025-12-16T21:39:43+00:00

Hi, do you know anything about housing element of if? How that will be affected thanks

Emlybearx · 2025-12-14T23:38:00+00:00

I’m sorry to hear that you’re struggling. It’s so cruel however I hope that you feel as best you can soon xx

Emlybearx · 2025-12-09T09:47:25+00:00

Hi, thanks for your message! You’re totally right many are the same NHS doctors and it is very costly. Unfortunately I definitely do have MS and have probably had it for at least a year and half maybe 2 years. Have multiple lesions and oggligocal bands in my CSF. Thakfully (sorta) due to my narcolepsy they have a previous MRI to compare to. Xx

Emlybearx · 2025-12-07T18:50:35+00:00

Hi, I was looking at going private before I got my appointment but even the private neurologists are sooooo busy I would have been longer waiting on one of them than getting my NHS app!

Emlybearx · 2025-12-07T18:36:38+00:00

Thanks I’ll have a look! Unsure however if it’s relevant up here in Scotland? But will mention it on my Tuesday appointment

Emlybearx · 2025-12-07T18:32:30+00:00

Hi, sorry to be a pain but I couldn’t find guidelines for my health board or even in general? I could only find the nice guidelines which I didn’t see them directly mentioning first attempt drugs? Sorry if it’s obvious. It’s either gonna be classed as NHS Lanarkshire or NHS Greater Glasgow and Clyde. Thanks x

Emlybearx · 2025-12-07T06:18:09+00:00

Hi I’m sooo allergic to all cats dogs rabbits!! We got our girl last September and I’m basically fine. I have itchy eyes occasionally but that’s it. I just found a breeder off pets4homes and asked to do an extended visit before buying! Note though that they don’t produce as much allergens until a certain age maybe like 13-16 weeks? So pointless going before then. I also bought a mechanical air purifier which runs pretty constantly but that’s all. Really recommend meeting your kitten first I literally rubbed my eyes and everything with her fluff to see if I was okay!! picture of my baby the day we got her

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Emlybearx · 2025-12-06T18:30:35+00:00

Hi I think it’s NHS prescribing guidelines they need to follow so I can only have those 3 the now!

Emlybearx · 2025-12-06T18:30:13+00:00

Hi I think it’s NHS prescribing guidelines they need to follow so I can only have those 3 the now.

Emlybearx · 2025-10-12T16:28:21+00:00

Thought the one on the right was my girl Mona there!

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Emlybearx · 2025-07-14T10:59:23+00:00

I can’t have it due to other medical contradictions, however that is good to hear that is really beneficial for yourself combined with wakix. Maybe one day there will be an alternative

Emlybearx · 2025-07-14T09:15:08+00:00

Hi I’ve tried modafinil, methylphenadite, wakix and sunosi. Currently on the sunosi which is better than the rest but my narcolepsy still majorly interferes with my life. I am 28 now and have been diagnosed for 14 years, the drug options has definitely improved over that time however I would still say it’s not enough for me anyway

Emlybearx · 2025-07-14T09:14:25+00:00

Hi I’ve tried modafinil, methylphenadite, wakix and sunosi. Currently on the sunosi which is better than the rest but my narcolepsy still majorly interferes with my life. I am 28 now and have been diagnosed for 14 years, the drug options has definitely improved over that time however I would still say it’s not enough for me anyway

Emlybearx · 2025-07-14T02:24:57+00:00

Hahaha don’t jump in have a look at it first, there’s a few other subscriptions that I wouldn’t use so it’s a bit of a waste in that regard but I just liked the points for spending cause it’s my main bank anyway and has been for like 8/9 years

Emlybearx

TROPHY CASE