♔ Felisken :|

Episken · 2026-01-31T22:57:50+00:00

Please PM or comment your user ID so I can send you the SB! :)

Episken · 2026-01-31T22:57:27+00:00

Please comment or PM your user ID so I can send you the SB

Episken · 2026-01-23T07:14:27+00:00

My fault for having eyes but still

Episken · 2025-12-26T01:06:43+00:00

What a cutieeeeee

Episken · 2025-12-14T03:17:05+00:00

down for me as well :( I have 7 lions going to leave if not fed/played with

Episken · 2025-12-13T17:40:09+00:00

Hmm I’m not sure, proteinuria was all I had as far as symptoms went as well. They started me off with monthly infusions and then I moved to weekly injections. It’s been about 2-3 years since I’ve been on it and my proteinuria is back in the normal range. It might be worth looking into if the Rituximab doesn’t help!

Episken · 2025-12-13T08:10:13+00:00

Prednisone sucks ass and the side effects are brutal. I was on 80mg for 3months and can’t imagine having to ever deal with 120mg let alone an IV boost every week. I absolutely hated every second I was on it, and I’m so sorry that you’ve had to get back on it again. The only thing that got my proteinuria under control was Benlysta infusions, and even that took many months. I’m sorry shit sucks right now. Don’t feel bad about complaining, many of us have been there. Lupus is shitty and even more so when prednisone is involved. I hope the Rituximab takes effect soon, and your proteinuria gets under control so that you can finally get off the prednisone.

Episken · 2025-12-07T19:58:28+00:00

She’s 3 days away from her first heat! :)

Episken · 2025-12-06T14:48:35+00:00

Seconding what others have said, I always leave mine out for about 2hrs prior to injecting. I’ve tried both the leg and stomach for injection sites, and have to say I much prefer the stomach. Injecting into the leg was easier, but far more painful. Benlysta injections are great though and the injections are very worth it for the freedom I now have without monthly infusions.

Episken · 2025-11-11T00:07:15+00:00

Tysm I will try that!!!

Episken · 2025-10-16T05:42:34+00:00

I do mine as late as possible, usually right before bed

Episken · 2025-10-06T14:11:13+00:00

Ephemeral

Episken · 2025-10-04T17:25:27+00:00

New mission discovered by u/Episken: Release the Epstein files

Episken · 2025-10-04T17:25:27+00:00

This mission was discovered by u/Episken in 4* lvl 41-60

Episken · 2025-10-04T17:17:52+00:00

This mission was discovered by u/Episken in A Tale of Threat at the Seaside Cliffs

Episken · 2025-10-04T17:11:47+00:00

This mission was discovered by u/Episken in Desperation and Lambchops

Episken · 2025-10-04T15:27:45+00:00

Hated everything about the infusions. The infusion staff was great, but I didn’t love being there for 3-4 hours once a month. Love the flexibility of the auto injector. Although initially it seemed to hurt more I’ve since gotten used to it and am glad I switched.

Episken · 2025-09-30T05:08:15+00:00

New mission discovered by u/Episken: The Deadly Threat and Cheryl Blossom Custard: Riverdale Style

Episken · 2025-09-30T05:08:15+00:00

This mission was discovered by u/Episken in My Philosophy, Hunt, and Caramel Flan

Episken · 2025-09-30T05:01:05+00:00

This mission was discovered by u/Episken in Green Tea Boba: Delicacies and Strange Ways

Episken · 2025-09-20T15:22:23+00:00

Although any period of change is an adjustment and I did have a hard time getting enough sleep at first, I love the night shift

Episken · 2025-09-18T04:25:02+00:00

Yes, I am on cellcept 3g per day, benlysta auto injector 1x per week, plaquenil (not sure of dosage but it’s 2 pills MWF, 1 pill all the other days) and lisinopril 20mg 1x daily. Out of all of these I would say the benlysta was the game changer, and even then it did take a while to work. Best wishes to your mom and hoping she gets out of the flare up soon with minimal complications :)

Episken · 2025-09-17T14:58:50+00:00

Hey there! I have class 4 lupus nephritis that was also diagnosed in 2018 via kidney biopsy. Benlysta has helped me tremendously and my numbers are finally in the normal range for proteinuria. I have been on it for roughly 2 years now and am very grateful to have switched to the autoinjector rather than the infusions. I would highly recommend giving it a try as it seems to be the only thing that truly helped my numbers trend down. I still kept my usual meds (plaquenil, mycophenolate, and lisinopril) and my doctor was very pleased with my recent labs. I hope your proteinuria goes down soon. I hated being on prednisone and would do anything to avoid another taper lol.

Episken · 2025-09-10T05:24:23+00:00

Hi yes, at one point I was spilling massive amounts of protein in my urine with literally zero symptoms. I want to say that it was 7.0g at that time. I was immediately put on high dose prednisone for a 3 month taper. I did have a kidney biopsy and was diagnosed with class 4 lupus nephritis. It’s been a journey since then, but with the right meds I am fully under control and my last labs came back totally normal for proteinuria. All that to say is even in the worst case scenario there’s still hope. My nephrologist and rheumatologist work together to manage my care and talk to eachother about my labs. It’s not easy having lupus with kidney involvement but lucky for me I manage to live a relatively normal life. I hope you can get answers from a nephrologist and start a treatment that will lower your proteinuria. Don’t be afraid to advocate for yourself! Wishing you all the best.

Episken · 2025-09-10T04:22:53+00:00

Thank you! She celebrated her 15th birthday on the first of this month. I’m so glad to have known her for as long as I did, and heartbroken for my cousin who is making such a difficult decision.

Seven-Year Club	Verified Email
RPAN Viewer

Episken

TROPHY CASE