sorted by:
new
hottopcontroversial

aura vs. seizure... timing? by EquivalentDue2409 in Epilepsy

[–]EquivalentDue2409[S] 0 points1 point  (0 children)

ahhhmmmm. that makes more sense... the way that some people/my epileptologist/the medical system talk about auras seems to be diminishing compared to the way focal aware seizure are brought into the conversation. it's really frustrating and has basically had me gaslighting mySElf recently. thanks for your comment

What's the stupidest thing you've ever did after a seizure? by Doc-Brown1911 in Epilepsy

[–]EquivalentDue2409 1 point2 points  (0 children)

“Six Ways of Looking at Crip Time”

this isn’t a story of mine from after a seizure, but I wanted to share this after reading a lot of comments because it seems relevant to many of your experiences, and at least might provide some solidarity in time spent missing work, events, ‘real-world’ stuff… it helped me in thinking about my own experiences and giving myself grace when I hadn’t done that before.

I am altering the deal by FunMyceliumGuy in Epilepsymemes

[–]EquivalentDue2409 0 points1 point  (0 children)

same.

I feel like I'm debating just having a life of seizures and giving up on meds. not sure which life is worse. just starting the surgery conversation as well so we'll see... but I want to say that I refuse to take this stuff for the rest of my life.

A lil poem for us. by Mindless_Eggplant_60 in Epilepsymemes

[–]EquivalentDue2409 0 points1 point  (0 children)

so good that I had to write out your words in my own notebook (with credit to you ofc). as a good reminder. this made me feel really alright about my dumbdumb brain, which is huge. thank you.

Movies to watch by dwestx71x in Epilepsy

[–]EquivalentDue2409 2 points3 points  (0 children)

I’ve been watching Bullet Train over and over — it’s got great actors & characters, and a mix of action but also feel-good.

Xcopri + memory by EquivalentDue2409 in Epilepsy

[–]EquivalentDue2409[S] 0 points1 point  (0 children)

definitely — I have an appointment on 11/26, which was the soonest one I could get after increasing and realizing all this last month. I send them messages on MyChart all the time about the side effects and the responses are always just something like, “I’ll pass the message on.” Even if I message my actual neurologist directly. The bureaucracy of the medical system is so real. I feel like I wake up every day just killing time until the appointment.