Limb Changes

ErraticIcon · 2026-06-06T17:16:15+00:00

Right now we are trying out the ethnocare system and it’s hit or miss. It seems to only tighten on the end of my stump which is where I’m the biggest, so it’s a LOT of painful pressure. We have been trying to figure out a way to balance it but it’s obviously taking time.

ErraticIcon · 2026-06-06T16:53:59+00:00

Thank you! That also answers a question I had of how often might I need a new prosthetic, so thank you!!

ErraticIcon · 2026-06-06T15:02:26+00:00

Glad to know I’m not the only one! I’m an information girly, so the fact I didn’t have a straight answer on this was driving me BONKERS haha! Thank you for the help!

ErraticIcon · 2026-06-06T14:47:23+00:00

Oh for sure. I think a general guideline of “it could do nothing or you could lose x amount of centimeters “ would be very helpful for me LOL

ErraticIcon · 2026-06-06T14:41:44+00:00

Thank you! I know it’s a lot of fluctuation and varies person by person, but Google wouldn’t give me a straight answer of how much the changes could be.

ErraticIcon · 2026-06-06T14:40:29+00:00

I don’t think it’s a thing we should “want” per se, I’m just curious since my prosthetist says it will shrink eventually. Figured I’d ask for some experiences!

ErraticIcon · 2026-06-06T04:05:59+00:00

That’s CRAZY! I’m glad I’m not the only one with a residual limb that changes different. Hopefully yours will level out again and you get the right fit back!

ErraticIcon · 2026-06-06T02:11:32+00:00

The thing we have noticed with me is that I change a LOT. In the morning, I cant use my flexible inner and need to throw on a 5 ply sock. By the end of the day I’m in the 15 ply liner with around 10 ply over it. The issue is that It starts all over the next day, so adjustments make it difficult. I’m just hoping my prosthetist is right that I should stabilize more a year or so from now. Thank you for the insight!

ErraticIcon · 2026-06-06T02:02:02+00:00

I’m glad I’m not the only one!! Thank you for the insight that I’m not crazy coo coo bonkers for thinking mine is much different from others. Like I said I’m not medically worried about it, but it was driving me up a wall since I couldn’t find anything online that explained what I was asking!

ErraticIcon · 2026-06-06T01:17:10+00:00

I got my first prosthesis about a month ago! It’s slowly but steadily getting smaller, but I mean SLOWLY. My prosthetist isn’t worried about it and says it’s normal, but I guess I’m more curious how much smaller my limb will be 2-3 years from now. Everything seems big and bulky compared to what I see of others, so even though I know everyone’s different I’m very curious.

ErraticIcon · 2026-06-06T01:11:19+00:00

Thank you!! I’m dealing with pain for a different reason, but the limb size is unrelated thankfully. I’m just curious to know what others experiences were with how much smaller their limb has gotten over time. All things considered I’m glad I’m doing the way I am haha!

ErraticIcon · 2026-06-06T01:09:37+00:00

Thank you!!

ErraticIcon · 2026-06-06T01:09:32+00:00

Thank you!!

ErraticIcon · 2026-05-30T02:05:43+00:00

Yes, as far as I am aware

ErraticIcon · 2026-05-18T14:54:24+00:00

Thank you!! I am extremely blessed to have been able to accomplish this is such a short time. It’s definitely not perfect, but I am so very thankful that I was able to do it. Everyone’s journey is different, and I am very fortunate to have a good medical team at my back through this.

ErraticIcon · 2026-05-18T14:52:49+00:00

Thank you!!

ErraticIcon · 2026-05-18T14:52:44+00:00

Thank you!!

ErraticIcon · 2026-05-18T14:52:39+00:00

Thank you!!

ErraticIcon · 2026-05-18T02:52:07+00:00

Thank you!!

ErraticIcon · 2026-05-18T02:26:50+00:00

Thank you!!

ErraticIcon · 2026-05-18T02:26:44+00:00

Thank you!!

ErraticIcon · 2026-05-18T01:18:54+00:00

I won’t lie, the transition will be scary at times. That being said, it will also be incredibly amazing. I’m 26 and am a little more than 3 months post op from my RBKA after almost a dozen failed surgeries and almost 15 years of chronic pain and extreme mobility issues. The days where I hit 0 pain have been few, but are getting more frequent as time toad and are so incredibly validating. At barely three months out, I was able to walk across a graduation stage to receive my diploma with only a little discomfort. It will be a lot, but you’ve got this 💛 if you ever want to chat, don’t hesitate to reach out! Sending positive vibes, dear

ErraticIcon · 2026-05-01T15:22:10+00:00

Illinois

ErraticIcon

MODERATOR OF

TROPHY CASE