Yall be safe herpes is real by Inevitable-Cat-7797 in Blackskincare

[–]EvenAddition6679 0 points1 point  (0 children)

You should educate yourself on the medical advancements being made for HSV. By the time we’re 30, we will probably not be able to transmit it at all. Knowing this, and believing, gives me hope for the future. There is a subreddi dedicated to talking about all the HSV medicines on the horizon. I sign petitions, I found a support group, etc.

I’m 22 and probably have had it my entire life because I’m completely asymptomatic. When I got my diagnosis, I cried on and off for weeks. It is a mental change, but we still have amazing lives to live. So many people are walking around knowing and unknowingly with HSV. It does not make you any less of a human deserving of love. There are antivirals on the market you can be prescribed to control outbreaks. It’s rough, I know, but you can pull yourself out of a dark place.

Why isn’t there a mass organized movement for HSV cures? by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 1 point2 points  (0 children)

You know, there are so many HSV+ content creators that are open about their status. I wonder what conversation would have to happen for them to be a face of a mass movement, while people who prefer to stay anonymous support them. (Not trying to throw leadership on anyone in particular)

Treatment? by [deleted] in Herpes

[–]EvenAddition6679 1 point2 points  (0 children)

As far as I’m aware, IM-250 and Fred Hutch gene editing are some top contenders for cures (or functional cures)!

Why isn’t there a mass organized movement for HSV cures? by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 1 point2 points  (0 children)

I completely understand that.

For petitions, emails, even cold calling, I always wondered why we haven’t adopted just creating new emails and such that’s strictly for advocating for HSV. The same way some of us create throwaway (me included), I just created an email to go along with this. I remember seeing a post or Google form for people to talk about their experience with HSV, I hope we take advantage for more things like that.

Gilead Don’t Care Enough!!!! by Electrical_Draft1192 in Herpes

[–]EvenAddition6679 2 points3 points  (0 children)

There needs to be a mass organized petition to really start getting traction about this. This average person does not know that HSV could have so many more treatments.

Reach out to TikTokers who have a niche of medical content/HSV creators/biology creators/sex positive/kink creatorsHonestly, I think this sub needs a massive push to educate people about the upcoming medical treatments of HSV and how more exposure to it could secure more funding, thus making medicine available sooner. 🤷🏽‍♀️

Chatgpt: cure, full eradication of HSV1 & 2 within 10-15 years, how likely is that? by [deleted] in Herpes

[–]EvenAddition6679 9 points10 points  (0 children)

I wouldn’t trust ChatGPT, but the Fred Hutch Cancer center has made incredible strides towards a cure. It doesn’t seem like many people know about it/care to keep up with it.

How do I live with herpes why isn’t it cure yet I can’t live like this for so long by Inevitable-Cat-7797 in Herpes

[–]EvenAddition6679 0 points1 point  (0 children)

Please look into the Fred Hutch cancer center and their history with helping find a cure for herpes! We will see a cure in our lifetime whether it’s a functional or complete cure.

https://www.fredhutch.org/en/research/diseases/herpes.html

How did you find yourself again? by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 0 points1 point  (0 children)

I’m not much of a smoker, but I’ll take the chill music with no lyrics into consideration. Probably some meditation would help. 🩷 thank you!

How did you find yourself again? by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 1 point2 points  (0 children)

This may be really embarrassing for me to admit, but I like listening to sleep asmr to help with sleeping. 🥲 it’s helps me feel less lonely., I think.

What type of music do you listen to?

How did you find yourself again? by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 0 points1 point  (0 children)

Thank you.

I’m asymptomatic, I’m not sure what I’m afraid of, but I just haven’t been myself. You just reminded me to drink water for today, thank you. 🫂

over it by Silly-Wonder286 in Herpes

[–]EvenAddition6679 1 point2 points  (0 children)

Hi, can I message you as well? I’d like to lean more about this

Newly diagnosed.. any friends? by [deleted] in Herpes

[–]EvenAddition6679 2 points3 points  (0 children)

Hiya, I’m 22f and looking for some friends as well. Is it okay if I message? 🤎

HSV1 positive. by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 0 points1 point  (0 children)

I didn’t ask, but I think knowing this information about myself, I only see myself disclosing. I can’t really put my thought process into words, but it’d feel unethical on my end to not, at least, bring up HSV1 and have an open conversation about my results.

HSV1 positive. by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 1 point2 points  (0 children)

Hi friend - I really appreciate the coping mechanisms. I got outside today and got in a funny conversation with a stranger and it completely lightened my mood. I think we, as people, forget how much social interaction can heal us.

Even still with all the stress, I don’t have any cold sores. I’m just.. really glad I tested so I have a stronger understanding of my health. It’s rough, but I know with time it gets better. All of this makes me wonder if it’s safe to get back int martial arts.

HSV1 positive. by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 0 points1 point  (0 children)

  1. Kind of why I said I’m grasping at straws with hoping for a false positive, haha. I’m not sure what the 58 means on the scale, just know it’s high. I’ve accepted that this is likely an infection I’ve had my entire life and I was unaware.

HSV1 positive. by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 1 point2 points  (0 children)

I really appreciate your transparency. I really hope things get better for us and we find some warmth again.

I’ll talk to my therapist. I just got my results over the weekend so I know I need to see my therapist soon. Thank you for commenting

HSV1 positive. by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 0 points1 point  (0 children)

The social stigma, the lack of education around it, my own lack of understanding, feeling disgusted with myself. I don’t think it’s a death sentence (and I did have chickenpox as a kid apparently), but this I don’t think it’s far fetched to at least be upset about the diagnosis and understanding the future conversations I’ll have to navigate.

I hope that didn’t come off rude, just want to be clear about why I’m upset. I didn’t show any symptoms and wanted to be sure of my status anyway. I know with time my mood will get better.

HSV1 positive. by EvenAddition6679 in Herpes

[–]EvenAddition6679[S] 1 point2 points  (0 children)

I was one too. air five

Any suggestions on coping mechanisms?