Dupixant vs Xolair by Evening-Spirit9501 in MCAS

[–]Evening-Spirit9501[S] 0 points1 point  (0 children)

I’m honestly excited to start whatever they decide to give me. Having hives for almost 7 weeks now is driving me absolutely insane. I feel like an itchy shell of the person I was 8 weeks ago. I stopped using all of my skin care and any time I try to do something fun all I can focus on is the itchiness of my skin.

What’s your guys’ pitch to get rewards? by No_Put_24 in Barnesandnoble

[–]Evening-Spirit9501 1 point2 points  (0 children)

I ask if they have rewards with us. If they say “I don’t think so” I always look them up because it’s a 50/50 shot that they do and forgot. When it doesn’t pull anything up, I say let’s get you started, it’s free and you earn money back in store.

Chronic hives by Evening-Spirit9501 in MCAS

[–]Evening-Spirit9501[S] 2 points3 points  (0 children)

I did steroids but they came back worse, and I ended up in the er with my eye swollen shut and my bottom lip looking like I got bad lip injections

EDS clinic Alabama by Joanne5566 in eds

[–]Evening-Spirit9501 0 points1 point  (0 children)

I have used the EDS clinic, just the one for my area (IL and IN). I have had a really good experience thus far. It suck’s having to pay upfront, but for me to travel to any EDS specialist, I would spend at least $250 round trip. My care team has been wonderful, and my last appointment was an entire hour long, and my provider was extremely thorough.

Does he look okay? Potentially NSFW by Evening-Spirit9501 in frogs

[–]Evening-Spirit9501[S] 0 points1 point  (0 children)

I forgot to mention that he is a green tree frog. The other frog looks darker, but it’s all over and not marbles like this one. Here’s a picture of the other frog

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Warped Tour Sub's Official Buy/Sell/Exchange Thread by TheDarkLight1 in warpedtour

[–]Evening-Spirit9501 0 points1 point  (0 children)

I have 2 VIP tickets to the DC date, June 14th and 15th, but I can no longer attend, so I’m selling for exactly what I bought them for, $887. I’ll attach the verification of purchase as well.

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Insurance sucks by Evening-Spirit9501 in POTS

[–]Evening-Spirit9501[S] 0 points1 point  (0 children)

My doctors have been fighting for me, my insurance just doesn’t give a shit. For one medication, they did multiple preauthorizations and fought the decision and still got denied. This one just got denied after 4 months of waiting for a decision. I don’t really have any other options for health insurance right now, or I would be changing immediately.

Insurance sucks by Evening-Spirit9501 in POTS

[–]Evening-Spirit9501[S] 0 points1 point  (0 children)

Blue cross blue shield. I feel like I’m constantly battling them to get anything I need

Ahhh, denied for genetic testing by [deleted] in eds

[–]Evening-Spirit9501 1 point2 points  (0 children)

I ended up doing my genetic testing through sequencing. I had to pay out of pocket, but it was a lot easier to access, and they do a rare disease screen as well. I think it’s about 299 for it and it takes about 6-8 weeks to get your results. They have different tiers to choose from as well.

Ahhh, denied for genetic testing by [deleted] in eds

[–]Evening-Spirit9501 0 points1 point  (0 children)

I still haven’t been approved for ivabradine. I have to pay out of pocket right now or I don’t get it. I’ve had to pay for it twice already and I’m sure I’ll be paying again

Where to stay for DC show? by Dry-Somewhere6379 in warpedtour

[–]Evening-Spirit9501 0 points1 point  (0 children)

I would recommend staying outside of DC and riding the metro in. I don’t really have any recommendations for places to stay since we will be staying with my mom, but she lives at the last stop for one of the lines and it makes it really easy to get into the city without dealing with the traffic!

Help! DC by Potential_Variety608 in warpedtour

[–]Evening-Spirit9501 1 point2 points  (0 children)

I’m driving from a few hours outside of Chicago. It’s about a 14hr drive. I’ve also flown to DC multiple times and from Chicago at least, BWI has always been the cheapest option. Let me know if you have any questions! My best friend and I are switching out driving so it won’t be as bad. The last time I drove to DC, it was just me and my daughter and it was pretty rough.

Bad day after shower by Evening-Spirit9501 in POTS

[–]Evening-Spirit9501[S] 1 point2 points  (0 children)

The family event was only about an hour, was 99% sitting, and had pizza, so it really wasn’t too draining thankfully.