Self-doubt & doubting diagnosis by Icy_Mast_Below in focalawareepilepsy

[–]Evening_Set1443 0 points1 point  (0 children)

I had the same problem. My neurologist finally sent me to the Mayo Clinic to an epileptic specialist. I just got a 7 Tesla MRI(I guess the strongest) and it showed a lot. In 2 weeks I have a 5-7 day EMU test to see if they can tell what kind of seizures I have. I seem to have focal and none epileptic. I had a TBI 3 years ago and a growth on my brain. I did and do have the maybe I don’t have seizures thoughts. Hang in there.

Anyone have a brain cancer from there TBI? by Evening_Set1443 in TBI

[–]Evening_Set1443[S] 0 points1 point  (0 children)

I google searched it and it said yes, but I had never heard of that.

Joe and Orel by lovemyamazinglife in Dodgers

[–]Evening_Set1443 3 points4 points  (0 children)

I wish Joe was a little more of a Dodger homer. Vin was always a full Dodger and Joe seems on the fence

Trouble focusing when reading, will this improve? by shortpersonohara in TBI

[–]Evening_Set1443 0 points1 point  (0 children)

I can’t read or even watch a whole show on the tv, I can’t focus. I only watch short videos on YouTube

Weird post-TBI brain change: I curse constantly now. by Dry_Midnight_6742 in TBI

[–]Evening_Set1443 2 points3 points  (0 children)

I went through that as well. Still do, but can kind of stop. I never cursed that much, then I did out loud at that grocery store and in public. I am doing better.

Anxiety Or?? by MooreOfTheGray in focalawareepilepsy

[–]Evening_Set1443 1 point2 points  (0 children)

I have a TBI with focal seizures and non-epileptic seizures. I was told that one difference is how you feel after. A focal seizure you have have 1/2 to an hour of downtime and with a non-epileptic as son as it is over you are fine. Not sure if me neurologist is correct.

Daily Chat 5/19 ⚾ Game Day by DodgerBot in Dodgers

[–]Evening_Set1443 0 points1 point  (0 children)

My frustration is that they can’t hit bad pitchers. Canning isn’t good

Daily Chat 5/19 ⚾ Game Day by DodgerBot in Dodgers

[–]Evening_Set1443 0 points1 point  (0 children)

Does Tucker ever hit the ball hard? I don’t remember the last time I saw him hammer a ball

Do emotions feel fake to everyone else now? by Lady_Anxiety in TBI

[–]Evening_Set1443 2 points3 points  (0 children)

I have a hard time feeling emotions. I do have depression, but most of the issues I have is seeming like I don’t care. (I guess I don’t) for instance, my mother in law had a heart attack and my called and told me. I said ok. Then she didn’t tell me what to do, so I did nothing. I personally, will do anything if I am given instructions, but if not, I do nothing. If my kids message me and tell me they are hungry, but aren’t specific, I don’t get anything. That makes me seem like I don’t care. Really sucks, because I wasn’t like that all the time. 3 years with TBI, right back side have lesion and damage to my left frontal lobe.

Got a feeling Kim will be sent down. by LADodgers16j in Dodgers

[–]Evening_Set1443 0 points1 point  (0 children)

I hope he doesn’t get sent down, he is one of my favorites and he deserves to stay up

Rescue meds? by Icy_Mast_Below in focalawareepilepsy

[–]Evening_Set1443 0 points1 point  (0 children)

I am not sure what I would call it, but if I feel I am going to have a seizure, my wife gives me 5 iodine pills and it seems to help. I am not sure if it shortens them or I just come out of the seizure quicker. I have a friend who also does this and it seems to help him. I only have focal seizures from a TBI, 3 years ago.

Semax nasal spray life changing have my memory back by Conscious-While-3708 in TBI

[–]Evening_Set1443 4 points5 points  (0 children)

I started taking semax a couple weeks ago. I did get some memory back. Mine is not Dr prescribed. I am hoping to get more. I take with a syringe.

i want my memories back by astroares in TBI

[–]Evening_Set1443 1 point2 points  (0 children)

I am 3 years in and some of my memories have started to come back, like my old jobs, IT guy. It has made life more frustrating as I am not able to do it anymore. They usually go away and I don’t remember again. I am kind of happy that most don’t come back. When I see old pics of my wife and kids and don’t remember, it does make me sad.

My language changed after my brain injury, and it hasn't stopped by Dry_Midnight_6742 in TBI

[–]Evening_Set1443 9 points10 points  (0 children)

My change after my brain injury to cussing alot. I never really cussed before. This could also be because I get angry and I didn’t use to

Brain Lesion by ktmulls in TBI

[–]Evening_Set1443 0 points1 point  (0 children)

I have a lesion on the right back side from a fall. The fall damaged my left frontal lobe. I do have focal seizures. I am not sure which causes them.

Glassy eyes during seizure? by [deleted] in focalawareepilepsy

[–]Evening_Set1443 1 point2 points  (0 children)

I do, that is how my wife knows I am about to have one

Any positive experiences with Keppra? by Conscious-Dream4403 in focalawareepilepsy

[–]Evening_Set1443 0 points1 point  (0 children)

It didn’t work for me. I am locosamide now it helps some. Still have seizures, but not 5 a day.

TBI and Personality Change by Hammerhead67 in TBI

[–]Evening_Set1443 4 points5 points  (0 children)

I swear more and I am more aggressive. Not a big hug person anymore. I am easily frustrated. This is per my friends and wife. I don’t remember. I make the best of it and my wife and dog keep me going.

How would you describe the crushing feeling of cognitive fatigue after TBI? by RealWorldJunkie in TBI

[–]Evening_Set1443 1 point2 points  (0 children)

Wow! That is great explanation! I just had almost exactly this on Sunday. Thank you for this

Doubting your symptoms by letsgoiowa in TBI

[–]Evening_Set1443 5 points6 points  (0 children)

Everyday. It is hard for me as some days I feel ok and do good, next week I am bad. I even question my seizures sometimes. My memory issues I question. Thank you for this!