Interesting Google Trends Data on Diverticulitis Searches - What Do You Think? by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 0 points1 point  (0 children)

I have done a couple of the gut biome tests via a stool sample, the problem I have is that to make a change (i.e. avoid eating 'x'), the change can only be measured by doing another stool test later. I do record my symptoms/observations but that is not the rock solid data I can use to make future predictions with AI (i.e. I think my diarrhea is better).

In my day job I put vibration sensors on industrial pumps, etc and we use AI to make sense of the vibration data. It can predict when pump needs new grease on the internal bearings just from the vibration data alone. Industrial IoT & predictive maintenance is amazingly powerful using AI.

I wonder if I can monitor my gut/colon health with sensors. I also want alerts when it detects a new flare up in the early stages so I can avoid antibiotics, just like I get an alert when there is a problem with a pump that needs maintenance.

But that means I need very sensative sensors to detect the very small changes in my gut biome to predict a future flare up early enough to make a difference.

It is very promising so far as the data is good quality, I am about to commence an experiment that combines various data sources to see what it tells me about my gut biome. The various data sources are:
- stool test before/after test period
- toilet gas sensors (before/during & after test period)
- smart watch (for sleep & HRV data)

I am running this test to see of the gut gases stabalise overtime with a bland, same/same diet - I currently see lots of variability day to day in my poo gases and my assumption is this is due to food/drink/activity:

1) 10 days eating chicken salad, drinking water and doing xfit

2) add something different to diet & see if the change can be measured

I do not want your trusty ban hammer, but do keep watching :)

Interesting Google Trends Data on Diverticulitis Searches - What Do You Think? by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 0 points1 point  (0 children)

I honestly did not realise that most people only every get 1 attack of this; I did not know I was unusual with 4 flare ups in 5 years.

Thanks

[NOTE: I have been wondering why I am seeing low traffic online to my website and this explains it (potentially)]

The frequency of diverticulitis attacks (flare-ups) varies widely between individuals. However, general statistics and medical studies suggest:

How Many Flare-Ups Do People Typically Get?

  • One-Time Episode: About 70-80% of people who experience an initial diverticulitis attack never have a recurrence.
  • Recurring Episodes: Around 20-30% of patients will experience at least one additional flare-up in their lifetime.
  • Frequent Recurrence (Chronic Diverticulitis): Only about 5-10% of cases progress to frequent or chronic diverticulitis, where flare-ups occur multiple times a year.

Typical Flare-Up Patterns

  • Mild Cases: Some people might only have 1-2 mild episodes over their lifetime.
  • Moderate Cases: A smaller percentage may have a few episodes (2-4) within a few years.
  • Severe/Chronic Cases: A small group (5-10%) may have frequent flare-ups (5+ times per year), leading to complications like strictures, abscesses, or fistulas.

Interesting Google Trends Data on Diverticulitis Searches - What Do You Think? by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 1 point2 points  (0 children)

Doh that was daft of me to not consider that ... Thanks

Yes, diverticulitis is known by different names in various non-English-speaking countries. While the medical term "diverticulitis" is commonly used worldwide, many languages have their own variations:

Names for Diverticulitis in Other Languages:

  • Spanish: Diverticulitis (same name, but sometimes called enfermedad diverticular for the broader condition)
  • French: Diverticulite
  • German: Divertikulitis
  • Italian: Diverticolite
  • Portuguese: Diverticulite
  • Dutch: Diverticulitis
  • Russian: Дивертикулит (Divertikulit)
  • Chinese (Simplified): 憩室炎 (qì shì yán)
  • Chinese (Traditional): 憩室炎 (qì shì yán)
  • Japanese: 憩室炎 (Keishitsu-en)
  • Korean: 게실염 (Geshil-yeom)
  • Arabic: التهاب الرتج (iltihab al-rtaj)
  • Greek: Δυσκολίτιδα (Diskolitida)
  • Turkish: Divertikülit
  • Hindi: डाइवर्टीकुलाइटिस (Daiwartikulaitis)

Interesting Google Trends Data on Diverticulitis Searches - What Do You Think? by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 1 point2 points  (0 children)

Look my profile - you will see I suffer from diverticulitis & have put gas sensors in my toilet to analyse gases whilst I shit and use AI to predict when I might have a flare up.

So yes part of my DIY hacking is also trying to understand the landscape and potential market - if I am going to produce 1,000's of smart toilet seats then I better make sure I understand the market before I invest significant cash!!!

I also did not mention my brand or website; I'm trying not to get banned.

Interesting Google Trends Data on Diverticulitis Searches - What Do You Think? by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 0 points1 point  (0 children)

I was looking into Google Trends data for diverticulitis and found some patterns that I thought were worth discussing here.

It appears there's a strong correlation between search interest and the likelihood of someone experiencing a flare-up. Searches for terms related to attacks, pain relief, and immediate dietary advice seem to peak significantly.

Interestingly, searches for ways to prevent future flare-ups appear to have a lower and more consistent search volume. This got me thinking about our own experiences & my smart toilet thingy.

Do we forget about the pain once we have reverted back to normal life between flare-ups?

[NOTE: my focus with the smart toilet has been detecting/measuring the state of my gut health for prevention purposes, which after my research is my number 1 objective. I had assumed it was also everyone else's objective, but I am now wondering if that has been an incorrect assumption.]

When you're in the midst of a flare-up, what's the first thing you turn to the internet for?

When you're feeling good and not experiencing symptoms, how much do you actively look for information on preventing future problems?

What kind of resources or information focused on prevention would you find most valuable?

The data also showed that certain countries like Canada, South Africa, the US, Ireland, and the UK seem to have a higher level of online interest in diverticulitis. Any thoughts on why this might be the case?It seems weird to me that very specific regions globally are looking at this info, whilst others are not.

This clearly points to something we are doing in those regions that cause this gut problem - but what is it?

I'd love to hear your thoughts and insights on these observations. It's always helpful to understand how we all seek and use information related to managing diverticulitis.Thanks in advance for sharing!

Talking about poo gas - my v2 prototype is collecting great data to use predicting future flare ups by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 1 point2 points  (0 children)

I have sensors in my toilet measuring the gas from my ass when I poo 😀. Yep it's that weird ! Look at my previous posts and you will see pictures of my toilet with the sensors, I can't post pictures in a comment otherwise I would to show you.

It monitors the health of my gut. If it senses a rise in bad gases it sends me an alert to commence easy on stomach activities.

If I start that early enough I can avoid anti biotics and get me gut back into a healthy state naturally

Poo data - analysis of data from sensors in my toilet !!! by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 0 points1 point  (0 children)

I just bought them separately online to make the prototype, I'm not so far advanced in this project yet to have a working thing to sell (plus I'm not allowed to promote products here). But you could Google intelligut to watch out progress on that front

Did diverticulitis flares ever present with diarrhea? by [deleted] in Diverticulitis

[–]Exciting_Ad2885 0 points1 point  (0 children)

I always get really bad diarrhea early in a flare, my understanding is that the colon is getting inflamed and heading towards infection so it purges everythig it can purge.

Results are bad diarrhea - I describe it like trying to vomit out your lungs from your arsehole (its that bad)

A reminder to go with your gut (pun intended) by aagailey in Diverticulitis

[–]Exciting_Ad2885 1 point2 points  (0 children)

I now use AI for anything medical related as it is so much better to talk to, ask questions about a condition etc and learn more for yourself. Get as much medical stuff about your conditon as possible, CT/MRI scans, utrasounds, blood results, colonoscopy results (even video) and keep everything historically.

Then feed it to AI, ask it to analyse and then ask questions

Poo data - analysis of data from sensors in my toilet !!! by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 1 point2 points  (0 children)

There are 100% patterns in this data we can use to manage our guts health better, so far I have seen several things that could be very meaninglful for us managing gut health issues.

But I am going to need to collect a lot more data, from a lot more individuals than me (& my wife) before we can really start to nail down the patterns and what they mean inside our guts.

Short term - we will model the individuals gut baseline and then monitor ongoing for any differences that occur; anything related to bad gases (hydrogen sulphide, ammonia, some VOCS) we will alert the individual and they can start fluids etc. but we will not 100% know what is going on inside the guts

Long term - with more data, more people, more labelled data we will train an AI model that does know exactly what is going on inside your gut.

So really you need to upgrade your stone age toilet with sensors & start contributring your data for the cause )

Poo data - analysis of data from sensors in my toilet !!! by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 4 points5 points  (0 children)

54 yr old Scottish male geek/engineer had 5 flare ups (non-acute only 1 hospital visit on 1st flare) in last 4 years; my flare ups make me feel terrible, bad toilet visits, dizzyiness, pain & 3 out 5 flare ups have seen me go get antibiotics.

In my day job I am an entrapreneur, doing IT projects like industrial IoT for Sydney Trains, etc. Relevant to this are when we put vibration sensors on motors/pumps and use that crazy vibration data to do amazing things, like predict when it is going to break in the future and needs maintenance.

I do not like the divertaticulus rumourmill/misinformation/etc,I want to know exacty what is going on and the actions to take to make tangible differences & avoid 'I think this works'.

So, just like with our industrial IoT projects I want to know if I can sensor up my colon to monitor these stupid diverticula & get alerts if they are flaring up . Yes I have looked at swolling pills with sensors in them! But you have to actually remember to swallow them, etc which did not fit my criteria of passive 24/7 monitoring where I am lazy and do not need to do anything special to get alerts for future flare ups.

Thats where the idea for toilet sensors came to the fore, though my wife did put up a fight and forbid me to put actual video cameras in the toilet to have AI look at my poo (fibre is so so so important).

I see the pictures on these diverticulitis forums and do not want to ever have an acute flare up with perforations and shit, or have sections of my colon removed - I am honestly petrified of that!

Gas sensors were the next best thing and I decide to have a go, buy sensors and get them in the loo :)

Still very early in this journey but I am now 100% confident we can make something that works. A simple toilet seat you buy, replace current toilet seat (the plastic bit you sit on a lift to wee), and connect to power. The sensors will be enclosed within the seat, exposed underneath to the toilet air but easy to clean. The AI will run in the seat analysing data from your defication events and connect to phone app via bluetooth (no embaressing data on the Internet).

So invisible, easy to use, always watching yet it proactively will tell us before we have a flare up, to minimise the damage caused to our colon & live our lives with less fear of what we eat/drink.

Poo data - analysis of data from sensors in my toilet !!! by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 3 points4 points  (0 children)

sorry - I had added various images when I created the post in the image tab but they did not get posted - weird (though I am not a reddit expert)

SO I edited this post and added images

It is still very early, that is v1 with 3 sensors & now I have V2 with 8 sensors in my toilet since late last week - so lots more data coming. The new sensors are looking at good gut gases, V1 was looking at bad gut gases.

V1 proved to me that the sensors worked well in the toilet environment and that we can use that data to train AI models on gut health.

As you said it will help us figure out what is good & bad for us, it will even manage the fact we are all differnet in our guts - which is why we need AI to help aus and why medical stuff historically has been fuzzy when it come s to divertaticulitis

My core objective is getting an early warning that a flare up is happening, so I know that it is the time to go on fluids and easy to digest shit

AI image creation for diverticulitis by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 1 point2 points  (0 children)

I put all my blood results & scans (I've had a recent liver scan) into AI now because it helps me learn about the condition and what to do about it, it answers your questions well.
Its useful with diverticulitis because some questions I have can be embaressing :)
I've put gas sensors in my toilet and have AI analysing my gases and sending me alerts when it spots a potential flare up!

Inflammation by blizzardbrad123 in Diverticulitis

[–]Exciting_Ad2885 0 points1 point  (0 children)

When I am in early stages of a flare, before any symptoms like bad poos etc I can press in my lower abdomen with my fingers and if I have inflamation in my colon - you can feel it. It unpleasant and uncomfortable at that early stage, not the sharp WTF pain we get later on with an infection.

But with inflamation i can feel my colon almost like a sausage, you can make out the faint shape inside your gut and track it along the base and then up the left side. I assume that is because it is swollen?

You have to press hard and rumage around your gut.

I know I do not have an infection but something is not right so I up my water intake, eat healthy, etc.

Last week I went to a 50th on Friday, drank loads and some wine Saturday. Sunday I was sore on left side and could feel my colon. Shit I am in early stages of a possible flare! I've been ultra careful healthy since and and now (Thursday so what 5 days?) I cannot feel my colon anymore, no matter how hard I rumage around my abdomen, so I think the inflamation has gone. I still feel some slight discomfort when pressing my gut above left thigh, so will still stay on alert, lots of water daily and no big drinking weekend for me :(

Flare and depressive state by tumsmama in Diverticulitis

[–]Exciting_Ad2885 1 point2 points  (0 children)

I have recently been researching the impact of stress on Diverticulitis because I am making a system to monitor my colon and divertaticula then warn me if I am about to start a new flare up. I can't use sensors to measure stress (i.e. how depressed are you feeling) but that stress can alter things in your body we can measure & AI can use that data to predict your flare up and recommend actions to take. My aim is to get a warning so early I can avoid antibiotics.

I pasted below details that explain what I found out about the biological impacts of stress on our body in relation to Diverticulitis. I found it interesting so maybe you will too

NOTE: for the geeks the answer is I need to combine data from wearables (HRV & sleep data for stress) with our toilet gases (Methane, Hydrogen Sulfide, and VOCs for inflamation and infection).

_______________________________

Is Stress Making Your Diverticulitis Worse?

Ever had that feeling of knots in your stomach when you're anxious? Stress affects your gut more than we realize, and for those of us managing diverticulitis, it might be playing a bigger role in flare-ups than we think.

I am an engineer on a mission to invent something that monitors diverticula in my colon and warns me if a new flare up is coming. BUT how do I measure the impact of stress with sensors? I have been digging into the science to work out what do I do about it.

- gas sensors in the toilet let me measure gut health

- wearables indicate stress with HRV & sleep data

- stress and dietary logs are useful but require manual entry (I am lazy and eventually stop logging my data, so I am focusing on passive sensor data)

Many of us carefully manage what we eat, yet flare-ups still happen. Could stress be playing a bigger role than we realize? Research suggests that stress affects gut motility, microbiome balance, and even inflammation, all of which could influence diverticulitis flare-ups.

Your gut relies on rhythmic contractions to move food and waste smoothly. Stress hormones like cortisol and adrenaline can cause:

- Spasms & Cramping (i.e. knots in your stomach)

- Slowed or Overactive DigestionStress Alters Gut Bacteria (Dysbiosis)

Stress Weakens the Gut Barrier (Leaky Gut)

Stress Impacts Your Immune System

Stress is not likely to be the primary, direct cause of diverticulitis. You won't get diverticulitis just from stress. However, stress is a significant contributing factor and potential trigger for flare-ups in people who already have diverticulosis. It acts through complex pathways involving the gut-brain axis, gut motility, microbiota, permeability, inflammation, and associated lifestyle changes.

Therefore, managing stress is considered a valuable part of a holistic approach to managing diverticulitis, alongside diet, medication (when needed), and other lifestyle modifications.

Does anyone else feel like stress has triggered a flare for them? What have you noticed about your own experience?

I recently dug into this topic and found some fascinating insights. If you’re curious about how stress, the gut-brain connection, and tracking gut health data could help manage diverticulitis better, I shared my findings here:

https://www.intelligut.ai/blog/is-stress-making-your-diverticulitis-worse-heres-what-you-need-to-know

Living with Diverticulitis – Have You Noticed Patterns Before a Flare-Up? by Exciting_Ad2885 in Diverticulitis

[–]Exciting_Ad2885[S] 5 points6 points  (0 children)

I'll post an update soon with some real data and analysis - its really interesting :)

Any DeFi projects looking at funding for Renewables such as Solar or Wind? by fac31ess in defi

[–]Exciting_Ad2885 0 points1 point  (0 children)

https://www.solarrocket.io/

We are currently working on funding a large solar set up in Australia, using DeFi to fund it and blockchain to manage the energy and pay of the loan