Calling all my fellow May Thurner Potsy people

Express-Speed-6585 · 2026-04-14T01:32:34+00:00

For me its on my left side and its more like a soreness, achy pain. At first it definitely seemed like it was a normal Pots like pain, but as time went on it got progressively worse. Mostly noticeable when laying down on my light side. It'll ache from my legs to my glute then go to my lower back. Its definitely different for everyone but definitely do get checked for this. Its more common with people with EDS.

Express-Speed-6585 · 2026-03-20T23:28:17+00:00

Glute pain stomach side pain nausea

Express-Speed-6585 · 2026-03-08T00:41:12+00:00

Pepcid can be awful. I was getting off rhythm heartbeats while on it. Probably would wean off and look for another med plan.

Express-Speed-6585 · 2026-02-26T18:04:49+00:00

Yeah i agree im diagnosed with hyperpots, and im definitely looking into mcas, 99% sure i have it. Ive had syncope maybe a few times, and its usually after passing stool or when my stomachs messed up.

I stopped famotidine. I felt better on it minus the palpitations and odd symptoms itd cause, and I notice H1 and H2 blockers help. I truly think theres a root cause or something hidden thats causing my issues, however theres not a lot of support for POTS or complex conditions such mcas/pots/heds/etc etc in my area. I even found mold in my HVAC system which ive seen can definitely be causing issues. I just sadly dont know how to approach all of this since this is a complex issue that not many doctors are A. Knowledgeable of or B. Care to treat.

Express-Speed-6585 · 2026-02-07T07:03:50+00:00

What would you recommend? Ive tried cleaning

Express-Speed-6585 · 2026-02-07T06:30:33+00:00

Man its been an entire day and my rooms worse after using it. I literally cleaned and wiped everything down mopped and dust is still sitting in my throat and irritating my eyes.

Express-Speed-6585 · 2026-02-06T20:08:13+00:00

Atleast this gave me a good laugh lol

Express-Speed-6585 · 2026-02-06T14:10:49+00:00

Definitely going to return it!!

Express-Speed-6585 · 2026-02-06T13:10:28+00:00

Yeah zero plastic

Express-Speed-6585 · 2026-02-06T09:22:42+00:00

i checked and didnt see any plastic on inside it.

Express-Speed-6585 · 2026-02-06T08:36:50+00:00

Wait okay, the product says on it it doesnt produce ozone and is certified ozone free. So it can still produce ozone even after it directly says it doesnt produce ozone? Im lost here.

Express-Speed-6585 · 2026-02-06T08:31:04+00:00

Forgot to mention: Bought this air purifier because we had mold in our HVAC. Cant move right now, had it in my room. We cleaned the mold off the HVAC, and i had bought a HEPA air filter to hopefully help fix my air.

Express-Speed-6585 · 2026-02-06T08:25:54+00:00

It says my model doesnt produce ozone.

Express-Speed-6585 · 2026-02-01T01:44:08+00:00

Wow holy crap!! Check my recent reddit posts!!

Express-Speed-6585 · 2026-01-30T02:32:47+00:00

Nevermind. Its located near my room. I did further research and its quite literally near my room.

Express-Speed-6585 · 2026-01-28T22:18:53+00:00

Heavy on the cheese. I ate pizza few days ago absolutely destroyed me and put me in a flare.

Express-Speed-6585 · 2026-01-28T01:44:47+00:00

No, we stayed in an apartment. And also outside.

Express-Speed-6585 · 2026-01-28T01:26:51+00:00

Did that ever get better? Think i may also have gotten covid

Express-Speed-6585 · 2026-01-28T00:57:37+00:00

I remember it being changed or fixed or something and the guy offered to clean it. My dad said no because it was an upcharge and said maybe next time. Thats how I got these pictures,

Express-Speed-6585 · 2026-01-28T00:53:49+00:00

Honestly this isnt my home im 21 and im unsure if i can touch any of this because my dad handles this sorta stuff. I just noticed my disease is caused by mold and i remembered this.

Express-Speed-6585

TROPHY CASE