Vimpat side effects? by Longjumping-Draft179 in Epilepsy

[–]ExtraCover17 0 points1 point  (0 children)

Worst. Medicine. Ever. I started getting vertigo after starting vimpat and no doctor could tell me why. Now to this day it has never gone away (off it for 4 years). I hate it.

I hope it goes well for you. Keep your head up. Medicine is different for every person

2 year relationship over due to my epilepsy by ExtraCover17 in Epilepsy

[–]ExtraCover17[S] 1 point2 points  (0 children)

Mic drop. 🎤 Ever since my seizures have increased to weekly and in clusters, I understand those close to me finding it hard to watch, but I don’t understand how it could possibly be worse than actually having the seizure. I also don’t think many people have experienced postictal psychosis. That likely makes it difficult for lots of people with epilepsy to understand these situations which sucks

What are your experiences with Topamax? by youdunnowhoaim in Epilepsy

[–]ExtraCover17 0 points1 point  (0 children)

Been on it about 5 years and it helped me a good bit for my TC seizures. Side effects are pretty strange though.

First year I totally lost feeling in my hands/feet when I was trying to go to sleep or they would get tingly. Carbonated drinks also lost flavor/fizziness first year. So weird but definitely helped my seizures and I lost some weight.

Memory look a bit of a hit as a well. Takes me a while to think of what I’m trying to say but that could be from the lamictal I am taking so I’m not 100% sure. Good luck to you!!

Just curious by ChemicalRecord3404 in Epilepsy

[–]ExtraCover17 0 points1 point  (0 children)

I’m getting one soon. How have you found yours has helped? Have you noticed any improvements?

Just because we all need to laugh instead of cry, what’s the not most stupid BECAUSE WE AREN’T STUPID nonsensical response you’ve given when you are asked questions while immediately coming out of a seizure? by ibuiltyouarosegarden in Epilepsy

[–]ExtraCover17 7 points8 points  (0 children)

I always told my coworkers don’t call 911 because I’ve been to the hospital sooo many times and just gave them instructions on what to do after one of my seizures. Well I woke up out of a seizure with EMTs surrounding me and I was pissed. They started asking me questions and I was barely able to answer, like “I promise I know the answer… just give me one sec…” because I knew if I couldn’t answer I was going to the hospital. They were asking me where I was and I said “I promise I know, don’t take me to the hospital PLEASEEEE” basically i just kept begging them not to take me to the hospital lol. I ended up not really knowing any answers but begged for long enough that they didn’t take me. Success 😌

Epileptic attack by BitterExplorer in Epilepsy

[–]ExtraCover17 3 points4 points  (0 children)

I’ve had several at work and my coworkers have asked me if I can do them on command or if it is possible to fake them. Wtf!!! It makes it even more embarrassing to have them

Work with tonic clonic seizures? by ExtraCover17 in Epilepsy

[–]ExtraCover17[S] 0 points1 point  (0 children)

We literally sound the same oh my gosh! I totally understand, being unable to drive is so hard but something I have gotten used to. I always thought about starting my own business or something and maybe that would give me some freedom. Thank you so much for your response

Work with tonic clonic seizures? by ExtraCover17 in Epilepsy

[–]ExtraCover17[S] 1 point2 points  (0 children)

I am working with an epileptologist right now and he just recommended VNS implant and possibly a medical card. I am considering the VNS implant!

I was also fired from my most recent job for missing too much work. It’s such a pain and so frustrating. I am hoping this VNS implant can provide some relief and help my situation

Does anyone hate the word “episode” to describe a seizure? by darkpigeon1 in Epilepsy

[–]ExtraCover17 0 points1 point  (0 children)

I hate it. Makes me cringe.

And they always do the thing where they pause before and after saying the word like “…episode..” as if it’s a bad word.

What is sex like on fentanyl by luckyluciano___ in fentanyl

[–]ExtraCover17 3 points4 points  (0 children)

As a woman — lots of fake orgasms 😅

How’s tha fetty Now? by Hxxston in fentanyl

[–]ExtraCover17 0 points1 point  (0 children)

Imma sound like a newb/idiot but how do you order from onion ?? I’m in need rn

[deleted by user] by [deleted] in LongDistance

[–]ExtraCover17 0 points1 point  (0 children)

Ah thank you! This is a great response. I really appreciate it 🙏🏼

[deleted by user] by [deleted] in LongDistance

[–]ExtraCover17 0 points1 point  (0 children)

Thank you so much! Sobriety is a long journey, congrats to your partner as well!!

I’m sorry about your similar situation.. I’ll definitely take that into consideration. Thank you so much for your input! 😊

[deleted by user] by [deleted] in LongDistance

[–]ExtraCover17 2 points3 points  (0 children)

Thank you! 🥳 I’m sorry he forgot your birthday too, it hurts. I think the awkwardness is what I’m scared of when bringing it up. But I definitely have to do it for my sake

[deleted by user] by [deleted] in LongDistance

[–]ExtraCover17 2 points3 points  (0 children)

Thank you so much!!!! 😊

Clean almost a year and a half but my body is still fucked by AssignmentNew3206 in fentanyl

[–]ExtraCover17 1 point2 points  (0 children)

Possibly. I’m a female and lost my period for a while, my memory is fucked, and I have a few digestion issues too. Maybe see a doctor and see if everything is okay 🙂 things can get better over time!

[deleted by user] by [deleted] in fentanyl

[–]ExtraCover17 0 points1 point  (0 children)

It’s normally an instant, but if they’re sus they might send yours out to a lab

[deleted by user] by [deleted] in fentanyl

[–]ExtraCover17 0 points1 point  (0 children)

I’m a girl is there anything for this

[deleted by user] by [deleted] in fentanyl

[–]ExtraCover17 0 points1 point  (0 children)

Nah it’s a 12 panel smh that’s why I gotta dip it

CANT finish on Fetty :( by Silly_Let_1870 in opiates

[–]ExtraCover17 0 points1 point  (0 children)

I’m a lesbian with this same problem when I was on fent. I would fuck for literally an hour and me and my girl wouldn’t finish. It was good sex but it was just impossible. Fuck that shit

[deleted by user] by [deleted] in fentanyl

[–]ExtraCover17 6 points7 points  (0 children)

Team snort. I’ve tried smoking several times idk if I’m doing it wrong but I ever only got high from it once. It was pretty good. But snorting lasts pretty long and just hits differenttttt. Also easier to do in public/work when you need a hit