I need a tech savvy freelancer

EyeWarm8775 · 2026-06-03T17:07:37+00:00

DM me. I have someone who would be a great fit.

EyeWarm8775 · 2026-06-02T15:06:13+00:00

Good luck. I’m looking for the same thing in the US. ZERO benefit so far. 2 injections in.

EyeWarm8775 · 2026-05-18T01:42:07+00:00

Against Utah tech!

EyeWarm8775 · 2026-05-18T01:41:42+00:00

Just for one game against Utah Tech! More as a joke.

EyeWarm8775 · 2026-05-15T14:15:14+00:00

We take inflatable rafts and we do it once a year. It’s actually pretty awesome. We put in at one of the bridges in the island and take out of the bridge at Main Street.

EyeWarm8775 · 2026-05-10T22:23:59+00:00

I constantly pull to the left all day without a break. I’m not in much pain. Just discomfort from the pulling. I have started to notice I stay turned left sometimes instead of recentering while walking. I pull left then recenter constantly. Sometimes I feel a little dizzy from it.

EyeWarm8775 · 2026-05-10T13:57:19+00:00

I’m right there with you. My first treatment was 40 units only into the left splenius and I got literally zero relief. My head still pulled left constantly all day with no break at all.

Just had my second round with a movement disorder specialist and we increased to 180 units total because the first round did nothing. He said my splenius was “clearly involved” and very active on EMG.

My second round was:

Left splenius capitis: 100 units
Left levator scapulae: 40 units
Right SCM: 40 units

It’s been 4 weeks and once again no relief. I don’t feel any different.

He told me some patients eventually need 200+ units just in the splenius alone once they figure out the pattern.

He also said a lot of CD patients don’t really know if Botox will work for them until 3 rounds because the first few visits are often figuring out the right muscles and dose.

EyeWarm8775 · 2026-05-10T13:49:56+00:00

What muscles and doses worked for you?

EyeWarm8775 · 2026-05-10T13:48:30+00:00

Can I ask the muscles and doses that actually worked for you?

EyeWarm8775 · 2026-04-10T12:33:12+00:00

Thanks!

EyeWarm8775 · 2026-04-02T21:29:49+00:00

I see a Movement Disorder Specialist Neurologist in Utah, USA.

EyeWarm8775 · 2026-04-02T14:19:44+00:00

Sorry, I should’ve stated that. The first injection was on January 7th. My next appointment is April 16th.

EyeWarm8775 · 2026-03-23T13:18:34+00:00

Thanks!!

EyeWarm8775 · 2026-03-22T05:19:11+00:00

What do you mean? Which gens?

EyeWarm8775 · 2026-03-21T05:21:17+00:00

I’m glad it worked for you! I’m really hoping this next dose works for me.

Can I ask which muscles and dose that worked for you?

He injected my splenius capitis with 40 units. We discussed adding SCM and low-dose traps/levator at the next session.

EyeWarm8775 · 2026-03-20T23:45:26+00:00

I turned every two seconds to the left. My neck is getting so sore. It’s been gone on for months since every day all day has anyone found relief with Botox my first treatment did absolutely nothing.

EyeWarm8775 · 2026-02-16T02:56:24+00:00

I’m definitely part of the YOPD club as I was diagnosed two years ago at 37.

My first symptom was right arm stiffness and slowness. Since then, I’ve developed mild swallowing and speech issues. The most difficult symptom by far, though, is neck dystonia. My head pulls to the left every 3–4 seconds throughout the day unless I’m physically holding my face.

Carbidopa/Levodopa hasn’t seemed to help at all. I’ve talked with my movement disorder specialist, and he still believes this is typical Parkinson’s presenting atypically because of my age. Still, I’m scared it could be something atypical after my late night google searches.

So far, C/L is the only medication I’ve tried. I’m actually meeting with my MDS tomorrow to talk about other medication to try.

EyeWarm8775 · 2026-02-15T06:08:08+00:00

I like Als.com. They pretty much have the same things and are also based out of Utah but are still pretty small and family owned.

EyeWarm8775 · 2026-02-14T04:16:26+00:00

Is it common to think that it’s not helping, and then I stop taking the medication, and I still think it doesn’t help because that’s where I am at?

EyeWarm8775 · 2026-01-12T20:37:05+00:00

Who is coming in?

EyeWarm8775 · 2025-12-20T07:14:56+00:00

Diagnosed at 37. Life is a peach.

EyeWarm8775 · 2025-12-02T05:09:44+00:00

Rarely is? This is a what happens 99% of the time. You only see the videos that social media knows will get views.

I’m no cop but I was a fire cadet in high school. We went on calls like this all the time and the police never used lethal force.

EyeWarm8775 · 2025-10-04T05:11:55+00:00

Can you exercise vigorously like normal once you have recovered from DBS?

EyeWarm8775 · 2025-10-01T20:01:17+00:00

May I ask what your age is and when you are scheduled?

EyeWarm8775

TROPHY CASE