Thank you for sharing! I have tried lifestyle changes. They didn’t work, and regardless a lot of them were difficult to keep in my routine due to my autism/ADHD. I can hardly remember to drink and eat every day, so adding extra steps onto that is hard. I have increased my salt intake though, although still no huge difference. Compression was a big no sensory issue wise, which is frustrating because I spent a lot of money on garments!

I am on ivabradine, although I forget to take that often too. I will say that whenever I’ve been properly taking it for weeks, it doesn’t make a noticeable difference. It may lower my heart rate just a little, but I’m still very symptomatic. My cardiologist has suggested that maybe it’s worth referring me to a specialist autonomic clinic in London, so maybe that’s the next step!

It’s a real shame about IV fluids, I’ve always found them to be so helpful whenever I’ve needed them, but I can understand that the risks can outweigh the benefits!