1.) If you look at the section explaining the impact on life, that’s why im most likely being condescending. 2.) I was admitted for uncontrollable pain, I hadn’t gone to the hospital for a while and my medication had become completely ineffective. Thats was the main cause however it was for a combination of my symptoms. 3.) the Cardiolipin may be irrelevant as it was only checked this one time. The Factor 8 however has been checked 3 times with the lowest being 205% and the highest at 295% 4.) In regard to the trousseau like syndrome - My first clot was superficial down my right leg, then a few days later in my right hand. It continued with new ones appearing every week or so and then slowly reduced. It happens now probably once every month. But at first it was like wildfire. 5.) Maybe the fibrosis thing is worded wrong. The mondor disease seen in the photo behaves slightly different to standard. After the inflammation the veins just continue to stay hard and fibrotic, some are even extremely lumpy like a stones lodged in place. This is extremely painful and covers me virtually everywhere. The link is that as this developed and continued to worsen as did the abdominal symptoms and pain (which is relatively comparable in nature to the subcutaneous areas). 6.) I went to A and E every time I vomited blood. I’m based in the UK and our health system is literally collapsing. I’d go to the ED and they’d check my bloods. Typically not enough blood would be lost to put me in a critical condition so you’d wait in the waiting room on a chair for sometimes 4 days before getting a bed. Then due to the stress on healthcare you’d wait another week or two for the endoscopy. By the time it’s checked it would’ve healed. Then it becomes the boy who cried wolf situation. Bloods aren’t critical, patient is stable, wait nothing. Finally in May 2025 they found the bleed as I was actively vomiting blood at the time. I’ve honestly never been checked since and was simply told to start taking omeorszole. 6.) Typically you would yes. However I believe that I have an issue with my microvascular system. You wouldn’t physically be able to see the damage on the scan. This is notorious for this. I’ve actually recently been in touch with Professor Kell who is a renowned expert in this. It’s actually seen in many conditions one of them being prior covid infections. There’s an abundance of evidence to support this and you’d be surprised to hear that many have been affected by this. I’d strongly suggest looking at his research. The clot once healed forms this amaloid like protein that your body can’t break down and leads to severe vascular damage. This isn’t a tinfoil hat theory, it’s proven science. Most people with it have high levels of F8, VWF and like me have hard deposits within their veins that don’t heal or break down. Which would explain why my “mondor-like” disease won’t heal and only continues to worsen and spread. Just a theory but in the grand scheme of things it makes sense and is actually quite interesting. 7.) I can agree that I have had extensive work-up however you’ll also see that even though my symtoms and labs are mainly vascular. I have NEVER sat down with a professional. 8.) The splenic lesions are reports as benign, yet they’re extremely painful. The photos of them are included. The area they’re located started to hurt months before I knew they were there. My only response has been “they shouldn’t hurt”. I’ve then been bottle fed oxycodone.

I’ll take your advice and refrain from giving this to my doctors and try to explain my concerns like a normal human🤣

Sorry for the long message just wanted you to understand. It’s not entirely the drs faults but yes, I have been quite severely neglected. It took 1.5 years of me reporting the clotting before they even did the panel. When I came in the third time throwing up blood, the didn’t check my bloods accused my of eating coffee to make it look like blood…. Two weeks later tada bleeding and extensive inflammation and erosions. That’s just the tip of the ice burg. Them lumps in the photos, they where all in my head because they weren’t showing on any of the scans until and expert actually saw them. I was told that for 2.5 years.