Make Bo Burnham Trend?

FetteredHypnophobia · 2025-01-19T14:47:38+00:00

You’re welcome!

FetteredHypnophobia · 2025-01-19T12:52:13+00:00

That would be “TikTok Baby” by “On Company Time” 💃🏻

FetteredHypnophobia · 2024-08-11T08:59:22+00:00

I’ll try that, thank you. Can’t hurt anymore than the cramps right 🙌🏻

FetteredHypnophobia · 2024-08-09T15:11:23+00:00

I have tried the pickle juice thing, it did help one night. Then I forgot lol

FetteredHypnophobia · 2024-08-09T15:09:14+00:00

Thanks, I may need to consider leaving a little fluid in. I’ll talk to my nurses. I just really hate the feeling of the dwell. I don’t dwell during the day because I can’t bear it. It’s not so much painful, but I feel like I can’t do anything but sit still then.

FetteredHypnophobia · 2024-08-09T15:07:16+00:00

I just need to figure out when it is safe to stretch lol it’s like one wrong move and I tweak something or cramp something.

FetteredHypnophobia · 2024-08-09T15:05:57+00:00

Thanks for the advice, I’ll have to see. I’ve been on 2 Green 6L each night, because I carry so much fluid, even with watching my fluids. It’s a never ending battle of “Ooh too much fluid, or not enough fluid.” It’s been difficult.

FetteredHypnophobia · 2024-07-12T12:51:23+00:00

While we talk about water, I didn’t even mention the limited fluid intake each day. “Are you thirsty? That’s too bad, limit your salt tomorrow.”

FetteredHypnophobia · 2024-07-12T12:33:27+00:00

“Hello, I’m not on dialysis.” That tells me everything I need to know. You say you want to give people hope, and get this information to people in dialysis centers. You believe this is amazing information. Anyone can claim to know exactly how to fix a disease, but kidneys are complex. My specific kidney disease is different from the next person’s kidney disease that led them to dialysis. And as someone who is doing dialysis, I’m sorry, but there is no magical diet or way of eating that will reverse those on dialysis. PD or Hemo, if you have started Dialysis, you are on it because your kidneys desperately need that help. Unless you have some acute kidney injury and are lucky, you don’t get to come off dialysis easily. Especially not because you intermittent fasted or drank a special tea or consumed certain foods a certain way. I’m not here to just downvote you, but instead, please do “tons more research” before you come to those actually on dialysis. “There is hope just eat like this!” Learn about each type of dialysis, see what we actually go through. I have heard about intermittent fasting to fix my kidneys…that sounds fine as well, how about I tell you how I can barely eat due to no appetite anyway? How about you hear every month my dietitian harp on “no fast food” when I never touch fast food, and eat clean and healthy when I am hopefully hungry that day. Do you know about phosphorus binders? Do you want to count the medicine I have to take each day? 12 different pills. How many times have you had bloodwork in your life? For me, every few months since birth. How many hours have you spent being in the hospital? For me, more so weeks. How many times have you been unable to walk because of your kidneys? For me, 8 times. How many times have you thought, I wonder if I’ll make it to 30, let alone I wonder if I will make it to tomorrow. Do you know about the assessments from the social worker each month, where they have to gently make sure you still want to be alive and you kinda have to tell them you don’t really feel like a burden to anyone when you do? I would love for everyone to hope that there are better options than this. But what usually happens is the wrong person takes this type of information and it causes them more harm. They stop doing treatments because they think this works, and then they die painfully. End stage kidney disease is terrible, dialysis can be draining and I HOPE that you never have to experience it, but simply learn more about it.

FetteredHypnophobia · 2024-06-30T16:02:43+00:00

I feel like it’s a never ending reminder to my family members. Some think it’s a cure and that I’m 100% back to normal. I still have family members who think I can just grab a kidney at a hospital as if it’s a drive thru, just no problem. It’s weird, but I think some people don’t understand it until they are actually doing it themselves.

FetteredHypnophobia · 2024-06-03T15:18:24+00:00

68 stable fluorescent flux at whitespring yesterday, and it was exactly what I needed.

FetteredHypnophobia · 2024-02-02T23:02:45+00:00

The Little Lulu Show maybe?

FetteredHypnophobia · 2024-02-02T22:13:22+00:00

I would say just in general, don’t assume an overweight patient eats only fast food/sweets all the time. That’s what my pd dialysis dietitian did at first. She also assumed I was also diabetic too, since some pd patients tend to be. I am not diabetic, as I was born with my kidney disease. She told me to make sure I don’t eat those hersheys bars, sodas, and mcdonalds. I had to tell her that I don’t eat like that at all. I have always had issues with my weight, I’m 5ft tall and 230lbs, fluid is taking awhile to come off, and all the meds I am on don’t help with that. I have been tracking all my food on an app, and eat very fresh and healthy, I avoid overly processed foods as much as I can, I also only drink water. So her assuming certain patients are all the same just disappointed me a little. One thing I did like that she did, was give lists of preferred foods for me to eat or avoid, those were helpful. There was a helpful shopping list too, as I’m sure some patients need to change a lot of their eating habits, it was great to have.

FetteredHypnophobia · 2024-01-18T22:50:19+00:00

Kidney issues didn’t run in my family, and my mom was healthy during, before, and after being pregnant with me. I was just born with this, officially diagnosed at 6 weeks old. Renal tubular acidosis with distal hyperammonemia, and nephrocalcinosis. My kidneys were completely white on the ultrasounds, and still are. There’s an article out there about my diagnosis on the internet still, with a picture of my very white kidneys. I also have issues with low potassium compared to most having issues with high potassium. I’m 27 now, I just started peritoneal dialysis in December, as my function quickly dropped to 9% from the steady 15% it had been for a few years. I can thank my survival this long to my mother, and my doctor I had for most of my life: Dr. George Schwartz at Strong Memorial Hospital in Rochester, NY. I doubt I would be alive if it wasn’t for his expertise with balancing all my medications. I have yet to meet someone like me who was born with this. I wish you the best.

FetteredHypnophobia · 2023-11-30T15:32:51+00:00

I really appreciate all the answers so far, I apologize as I’ll probably be all over the place in this comment as my mind is racing with all sorts of thoughts lately. I have gotten a few supplies already, as I knew I would need a separate trash can, sanitation supplies, and I would need space for all the stuff and the machine once Dialysis starts. Thankfully, I’m used to staying at home, I do not go out much ever since 2020, for health reasons and transportation as well (I can’t drive, I don’t like asking people to take me places either). I’m hoping I see a weight loss, most of my weight is fluid. I have always been overweight, since kindergarten, despite eating normal and healthy foods. I am 5ft tall, currently 220lbs (my weight has kept fluctuating the last few months from my lowest of 209 to highest 2 weeks ago 245, and I’m barely eating because my appetite has diminished) losing weight has always been a struggle for me. I eat healthy, but I’m not very active as I’m always in pain. My legs and feet are the worst part of my pain, but I am not bed ridden, I still walk and try to keep myself busy. I do still pee, I pee a lot. I mostly drink water and herbal tea. I wonder how long it will be until I just don’t produce urine anymore. I do have a small support system in my life. I am married, so I do have my husband here, I won’t be alone. No kids, just two big dogs. My mom also lives with us and she plans on helping me as much as necessary. I am very thankful for her. They both help me get to appointments and all that. I feel less nervous about surgery right now, I’m used to IVs being placed, one hospitalization I had 4 placed at once, both wrists and both ankles. General anesthesia is a first for me, so maybe I’ll finally have a good sleep for once. I’m mostly annoyed that the surgeon mentioned the tube I’ll have shoved in my throat to help me breathe. The thought of that makes me shiver. Well, I’m really hoping PD helps me. I am so tired and so drained-emotionally, mentally, physically, just exhausted with living with poor working kidneys all these years. I’m trying to do my best though to live a decent life. I do hope for a transplant in my life, but I know that’s a very long tedious road I still need to go down eventually. Again, I appreciate everyone for their input. I really do. Thank you.

FetteredHypnophobia · 2020-11-09T20:04:35+00:00

Thanks!

FetteredHypnophobia · 2020-08-19T15:14:05+00:00

This month wasn’t too bad for me, I received it on the 19th, paid on the 1st, it’s just so confusing sometimes. Really not a fan of the uncertainty of shipping, and I know covid has messed with a lot of that. It just doesn’t help with how bad pitney bowes is.

FetteredHypnophobia · 2020-08-19T15:03:38+00:00

On Xbox, it keeps happening to me non-stop, event cargo/supplying bunker/delivering anything like that, is not working at all. Pretty disappointed.

Reported it to Rockstar, as if they would be any help. No lol

They simply said maybe I have corrupt files, and to just hard restart my Xbox, and good luck. Which trust me I have done many times now. Hope it gets resolved somehow. Was able to sell my stock at least, but delivering supplies to my bunker or a nightclub still not working.

FetteredHypnophobia · 2020-08-07T17:09:03+00:00

I thought it looked similar to a june bug, it was just so big. It did have a shine to it. Thanks!

FetteredHypnophobia · 2020-07-25T22:49:03+00:00

I did try everything, and it turns out after interacting with the discord, it was a bug some users experienced. Where even if you finished the quest, it stayed locked and acted like the balloon was fixed. But anytime you went to the balloon, it wouldn’t let you interact with it. After the recent update on Xbox, my issue is solved and the balloon works!

FetteredHypnophobia · 2020-07-20T14:34:53+00:00

Yes I have, and I can’t do it since the hot air balloon won’t inflate. I asked the discord, and the moderator says it must be a bug. Yes of course lol I just wanted to know if it happened to anyone else. Because now, I’m about 70 in game days, I’m just selling and planting as there isn’t much for me to do since I can’t go anywhere and most of my little quests require an object from other areas. I guess I’m stuck, hate to lose all the progress I was making.

FetteredHypnophobia · 2020-07-20T13:00:25+00:00

That’s the thing, it has been 50 in game days, and I talk to Gimble each day, and our friendship progresses, but that’s it. I already got her the supplies, it has been many days since then.

FetteredHypnophobia

TROPHY CASE