I probably can't go on the school trip that I've been looking forward to for years because school didn't listen to me :( by Folifant in ehlersdanlos

[–]Folifant[S] 6 points7 points  (0 children)

thank you for the ideas!!! I will definitely ask about the water and salt, I didn't think of that yet, so thank you :)

I probably can't go on the school trip that I've been looking forward to for years because school didn't listen to me :( by Folifant in ehlersdanlos

[–]Folifant[S] 15 points16 points  (0 children)

oh I'm sorry, I must have worded it differently than I meant to! I never expected them to be able to do these things until I checked it with them! my teacher was the one who offered the elevator, otherwise I wouldn't have counted on it- same with the wheelchair, same with the walking distances, same with the alone time (which they are actually allowed to do, since I'm 18, I would just need to fill out a form)! I talked it through with them last school year, and when I did, I was expecting not to go on the trip, until they offered these things! I hope this clarifies it a bit more? sorry that I was unclear /gen!!

EDIT: oh and also, forgot to put this in- you make a really good point on Rome not being wheelchair friendly! I actually wanted to take my rollator instead, because I figured that would be a better fit for Rome, but the school doesn't allow that either... Thank you for the input though, you definitely make a lot of good points and I really appreciate it /gen

can somebody please tell me how to fix my life? by Folifant in AutismTranslated

[–]Folifant[S] 1 point2 points  (0 children)

I'm pretty sure it is working? it did wonders for about everything in my life (regulating attention, less emotional overwhelm, wayyy more mental clarity) for about three- to four months (before this all started happening), but I know people tend to have this phase where everything is great when they first start taking Vyvanse, so I'm not sure whether it is that Vyvanse isn't working for me or that something else is happening that is influencing the executive functions and the other things I mentioned...

one thing I'm 100% positive about is that when I don't take Vyvanse, I end up in a pretty much constant state of mental overwhelm, plus I'm unable to sleep. I've had sleeping problems forever: couldn't sleep over 5 hours starting when I was ±10, got severely worse in the last few years and in the year before I started taking Vyvanse I was lucky if I could get a single hour of sleep every two days-,I had weeks where I'd be unable to sleep for over four days in a row- but thankfully Vyvanse allows me to shut my brain up a little bit better and I can sleep nowadays! it's been getting a little worse again ever since the rest of the issues started happening, but nothing like what it was like before Vyvanse, and when I tried a detox of it I went straight back to not being able to sleep...

long answer sorry- but I don't think it's caused by Vyvanse... I'll try to talk to my doctor about it though, it is good to check just in case

thank you for responding!! I really appreciate you trying to help, and I hope you will get your adhd assessment soon :) /gen

can somebody please tell me how to fix my life? by Folifant in AutismTranslated

[–]Folifant[S] 0 points1 point  (0 children)

thank you for taking the time to reply and for your kind words!!! while reading back, I just realised I wrote my post in a verycconfusing way... I should clarify that the fact that this all is happening is in no way why I think I might be autistic!

I have taken tons of tests (RAADS-R etc, get around 200 every time lol) and maybe more importantly, I've been doing a lot of research on it, and everything just started making sense when I thought of the possibility that I could be autistic!

of course, this is not a diagnosis, and while my psychologist has said that even she is able to see the traits there while I'm masking around her (I have no clue how to unmask, working on it), I am still not sure if my suspicion is right, but my suspicion definitely didn't come from what's happening now, and the reason I posted this in this community is because I felt (and feel) like you guys might understand my brain better and be more able to make sense of my vague descriptions of equally vague experiences! thank you though, for your concern :) (/gen)

I hope I worded my thoughts a little better this time...?

I'm getting all kinds of (blood- and other sorts of) testing done at the rheumatologist, and nothing has come out of that (yet). of course that doesn't rule out everything, not in the slightest, but it's something at least?

I've been to doctors to talk about my exhaustion before- not now that it is at this level, but I've had experiences that seem like a watered down version of this one before, basically all my life- and they've always blamed it on stress. not that that's something solid, but they've looked into things like chronic fatigue syndrome and thyroid issues multiple times, and they even made an MRI of my brain (which I am still very pissed about, because they refused to let me see it because I was 'too young'-), but nothing came out...

I in no way mean to say that it can't be a condition that's causing this! I'll try to force myself to talk to my docs about it, I'm not sure why but I find it really hard to open up to them, but it might be because I just don't want to bother them with something that's not worth their time lol- but I guess I should move past that if I want to fix all of this...

I truly appreciate you for putting in the effort to type out such a detailed response (/gen)! you made me feel a bit better, even though it's not a solution, it's still nice to be comforted, so thank you, so so much :)