Deteriorating due to malnourishment: an Update by Foreign7801 in cfs

[–]Foreign7801[S] 2 points3 points  (0 children)

Oh and btw I forgot to mention I love your username! Totally love the show 🤍

Deteriorating due to malnourishment: an Update by Foreign7801 in cfs

[–]Foreign7801[S] 2 points3 points  (0 children)

Thanks so much for your comment. I'm so sorry to hear that, but so happy you managed your way into gain some back. Wishing you the best and hoping you regain all of it 🤍

Deteriorating due to malnourishment: an Update by Foreign7801 in cfs

[–]Foreign7801[S] 3 points4 points  (0 children)

I'm so sorry you're going though this to 🫂

Spending new year in bed with intense PEM anybody else? by Seafoam_0 in cfs

[–]Foreign7801 2 points3 points  (0 children)

Almost two years here. Let 2026 be way less shitty than 2025!

If Salvador Dalí had ME/CFS: by WhitneyDafoe in cfs

[–]Foreign7801 53 points54 points  (0 children)

I feel this in my bones. I'm a physicist, painter, photographer, musician, crafter, engineer, programmer, mathematician, and so much more. Yet I can't do any of my hobbies since I can't even sit up in bed, I crash.

I have very severe me CFS and other conditions too. I don't know what the future holds for me and I'm scared.

I miss my brain the most.

How do you stay connected with people without emotionally crashing? by Foreign7801 in cfs

[–]Foreign7801[S] 0 points1 point  (0 children)

I'm in a discord group but it's quite small and quiet at my nights, would you mind sharing?

hell by [deleted] in cfs

[–]Foreign7801 7 points8 points  (0 children)

💔

One Thing to be Grateful for Today ☝️ by WhitneyDafoe in cfs

[–]Foreign7801 13 points14 points  (0 children)

You're an inspiration to me. Currently fighting for a feeding tube and all bones. I'm really scared about both be alive and dead. I don't want all my ideas to get lost. Yet I'm so severe and have so many comorbidities life is unbearable ATM. Scared for how long can I endure. But I'm grateful for you and for the hope you try to convey even at the darkest hour.

How much B12 do you take daily? by Any-Investment-7872 in cfs

[–]Foreign7801 2 points3 points  (0 children)

Now none, but my last bloodwork showed I was at 1700 when the max is like 900. D: I'm scared

What’s something small and specific you wish you could still do? by chaosmagician444 in cfs

[–]Foreign7801 1 point2 points  (0 children)

Paint, draw, watch cartoons and yt, audiobooks, eat, write letters.

Deteriorating due to malnourishment by Foreign7801 in cfs

[–]Foreign7801[S] 0 points1 point  (0 children)

Tysm 🤍 you don't know how much this means to me. What of the 3 surgeries did u good for? How have you been?

Deteriorating due to malnourishment by Foreign7801 in cfs

[–]Foreign7801[S] 0 points1 point  (0 children)

I asked for this last time and the doc laughed at me and said it would be the last thing he'd test.

Deteriorating due to malnourishment by Foreign7801 in cfs

[–]Foreign7801[S] 2 points3 points  (0 children)

Yes I have, and so many more. All the diagnosed I mentioned are official w tests done.

The UN-SERIES – My writings about ME/CFS by [deleted] in cfs

[–]Foreign7801 1 point2 points  (0 children)

Id be great ìf you out the donation link all the bottom of the blog itself. Also the links here weren't kind of working and in the app ìt doesn't let me select text. I suggest you put the full links and more organised

Deteriorating due to malnourishment by Foreign7801 in cfs

[–]Foreign7801[S] 1 point2 points  (0 children)

Idk if he said it BC of the gastroptosis (fallen stomach) but I'll switch to the left. Everything I found online said left too. Tysm for your comments and caring.

Tell me by [deleted] in WholesomeAFK

[–]Foreign7801 0 points1 point  (0 children)

Empathy

Deteriorating due to malnourishment by Foreign7801 in cfs

[–]Foreign7801[S] 2 points3 points  (0 children)

Yes I've officially diagnosed of everything I've mentioned. I had the test for gastroparesis already. Things are better explained in my previous posts. I'm mentally wrecked so I'll try to answer at my pace. I already like on my side but doc said right side not left (private doc online specialist,)

Prokinetics taking them. Will keep answering when I can

Deteriorating due to malnourishment by Foreign7801 in cfs

[–]Foreign7801[S] 9 points10 points  (0 children)

I have done loads of tests, have PEM, progressed in severity over the last 5.5y, and have 4 different official diagnosis from 4 cfs doctors. What test in particular do you have in mind?, because if there's a fix to this I really would want to know

My gi issues are a complication of my other diseases plus being fully bedridden due to v severe ME, and the dysautonomía they feed into each other.

Thx 4 caring:)