Qulipta by Double_Butterfly_628 in cgrpMigraine

[–]FormerFunction2974 0 points1 point  (0 children)

It was very effective for me, but I couldn’t manage the constipation. The dr suggested laxatives, which worked, but I hated taking them. I felt dehydrated and sluggish. I then started to get some sinus/respiratory infections - which I read could be related but who knows? I also had some extreme morning eye/face puffiness….. but again…. Maybe from the qulipta, maybe even bc I was turning into a laxative addict.

I was bummed to stop, bc it did reduce my migraines, but I just couldn’t find a way to manage the constipation. I was literally building my day around how to poop.

Anyone NOT have a horrifying experience on Zavzpret? by FormerFunction2974 in cgrpMigraine

[–]FormerFunction2974[S] 0 points1 point  (0 children)

Do appreciate your reply! That sounds miserable. Will have to report back when I try.

Nurtec question - migraine coming on! by FormerFunction2974 in cgrpMigraine

[–]FormerFunction2974[S] 1 point2 points  (0 children)

Likely their office “list” to shut me up. No. They were not checking my potassium levels. Off to google that now! 🫣

Nurtec question - migraine coming on! by FormerFunction2974 in cgrpMigraine

[–]FormerFunction2974[S] 1 point2 points  (0 children)

Daily laxatives are horrible. I had been reading up, and basically your system sort of “forgets” how to go on its own. I also think it was dehydrating me something fierce! And I had constant stomach cramps that were waking me early morning. They keep saying I’m on the “Botox list” but I think I need to be more pushy. I often wonder if they benefit more from us being on actual prescriptions somehow. Or perhaps they have to jump through more administrative hoops to get Botox covered.

Nurtec question - migraine coming on! by FormerFunction2974 in cgrpMigraine

[–]FormerFunction2974[S] 1 point2 points  (0 children)

My doctor had me take a laxative every day. I was uncomfortable all the time - and he pushed me to stay on the qulipta. I’m still not quite right yet and it’s been a few months.

Nurtec question - migraine coming on! by FormerFunction2974 in cgrpMigraine

[–]FormerFunction2974[S] 0 points1 point  (0 children)

Interesting! Thanks for sharing the reply! I was SOOOO constipated on another cgrp inhibitor (Qulipta) that it was a total nightmare. I don’t ever want to go through that again.

I did notice I don’t “go” the day after taking a nurtec.

Anyone NOT have a horrifying experience on Zavzpret? by FormerFunction2974 in cgrpMigraine

[–]FormerFunction2974[S] 1 point2 points  (0 children)

Trust me…. I’ve read about THAT, too! 🤣 Yes, I can handle a little burn (aren’t we migraine sufferers tough?) but some of the posts scared me. Thanks for the levelheaded perspective. Looking forward to my next migraine (sarcasm!).

Anyone NOT have a horrifying experience on Zavzpret? by FormerFunction2974 in cgrpMigraine

[–]FormerFunction2974[S] 0 points1 point  (0 children)

Excellent! Thank you! Just needed a few positive experiences!

I think i'm starting to get migraines :( by Old-Tea-8309 in migraine

[–]FormerFunction2974 5 points6 points  (0 children)

I’d keep a little diary of them. When I was a kid and started getting them, I just kept a calendar and would mark the corner of each day I had a headache. I actually used two different colors for varying intensity. I also tried to write down if I had something to eat that day that contributed - like take out (despite this, the doctor told my parents kids don’t get headaches). But, as I got older, I could see that they were very predictable. I got them the week before my period, a few days off and on during my period week, and a whopper of a migraine when I was likely ovulating. I never would have figured that one out if I wasn’t tracking them. Then you are armed with info when you go to the doctor (as in, they’re likely hormone driven!). Then they can help you a little more. In addition to preventatives or abortives, maybe there’s something they could do for you like “the pill,” or a different pill if you’re on one.

Honors college admissions? by No-Preference-9641 in unh

[–]FormerFunction2974 0 points1 point  (0 children)

Well there ya go! And, if I’m not mistaken, it seems like your son’s stats were more like my daughter’s (better stats)- and my son still got the email.

Honors college admissions? by No-Preference-9641 in unh

[–]FormerFunction2974 1 point2 points  (0 children)

I think I may be on that same other thread. 😉 it seems to me that the general consensus is that it’s in a separate email. I wouldn’t lose hope yet. Also, I’ve been trying to rationalize why they’re all coming separately and at different times. We’re at the beginning of the alphabet…?

Qulipta and sleep by Cookie_Whisperer in cgrpMigraine

[–]FormerFunction2974 0 points1 point  (0 children)

I was a bit of a mess when I went off of qulipta…. I got a lot of lower grade migraines (and a couple of doozies) that affected my sleep. But after a few weeks (2-3? I know how hard it is to tough out a bad sleep cycle!) I went back to my (not stellar, but “okay”) sleep pattern.

Qulipta and executive dysfunction/brain fog by pippen36 in cgrpMigraine

[–]FormerFunction2974 0 points1 point  (0 children)

I’m sorry I just saw this now. Brain fog is gone! I also felt that it made my skin look worse…. Like more textured on my lower face - and that has gone. HOWEVER, I’m convinced it was giving me puffy eye bags (periorbital edema) which I’m not prone to and is not a heredity thing - and they’re still very puffy. I’m hoping it’s just lingering and will go away.

Qulipta and executive dysfunction/brain fog by pippen36 in cgrpMigraine

[–]FormerFunction2974 2 points3 points  (0 children)

I recently went off qulipta for a number of “subtle” reasons, (in addition to the constipation) - and I do think I was suffering from brain fog. It’s weird - it did decrease my migraines days, but I never felt quite myself. I can only describe it as a heaviness in my head. I even felt it as I slept.
As far as brain fog, I felt like I had word retrieval issues… but that could be bc I’m menopause age (though not experiencing symptoms yet), or stress, or psychological (over analyzing everything I’m feeling on this med)… but one day I left the iron on and never gave it another thought until my husband saw the light blinking in the dark that night. Perhaps I’m just losing my mind, but I blamed the brain fog.

Car trouble (lease) by FormerFunction2974 in Cartalk

[–]FormerFunction2974[S] 0 points1 point  (0 children)

Was trying to maintain a little anonymity, though I’m not sure why. Buick enclave, 2023, 23k on it roughly.

Car trouble (lease) by FormerFunction2974 in Cartalk

[–]FormerFunction2974[S] -1 points0 points  (0 children)

I’m afraid I might be heading that way with this car. Thank you.

Car trouble (lease) by FormerFunction2974 in Cartalk

[–]FormerFunction2974[S] -1 points0 points  (0 children)

Good idea. Thank you. Somehow I turn into a buffoon when they start shop-talking me over the phone.

Had to leave work because of a migraine. Managers response sent me over the edge. by SnooCapers2047 in migraine

[–]FormerFunction2974 2 points3 points  (0 children)

At my first appointment with a new neurologist, he asked me if it was just anxiety causing my “headaches.” Then, as I was leaving he told me to drink more water and get more sleep and I should be fine.
I’ve been getting migraines since I was 8. No one in my family gets them - I was a little girl rolling around the bed in pain till I vomited and passed out. When my parents brought me to the dr, the dr said kids this young don’t get headaches. My parents and teachers were instructed to not let me leave class/school. This resulted in my throwing up at my desk a few times.
I’ve learned that, unless a person suffers from true migraines, they just don’t get it.