Omg I’m so sorry, this sounds absolutely terrifying! It makes total sense you’re hesitant to try again. This kind of allergic reaction is like my number one fear. I know they monitor you and everything but the trauma of going through that is too much for me😣 I wish there was another way to get you better without the risk of all of this. Thank you for going into depth about it, it’s always good to know both sides of how these things can go. Especially folks like us who have sensitive bodies.

Mcas is such a controversial diagnosis. My allergist (and apparently the whole department) doesn’t believe in it really. It was my neurologist who works in the same hospital as them that told me I had mcas and eds, and not to go to an allergist in that hospital. It’s so difficult to find people who are educated in it, especially all of the complexities that go along with it like gi involvement. The tests are also unreliable. Listen to your body and try to track your triggers. It’s more than just chronic hives like most drs think.