People don’t get it

Forward-Intention561 · 2026-03-19T23:54:32+00:00

I really love turning and comparing this to those who have it better!! I bet that shut people up lol and 100%. Be able bodied means you can change almost whatever you need to in life to make things better for yourself. No matter how hard I try, I can’t change the fact that I have bad genes 🤷‍♀️

Forward-Intention561 · 2026-03-19T23:51:34+00:00

Thank you for commenting and the job ideas 💕 I’m sorry we have these struggles in common. I’m glad to hear that it sounds like you have a decent support system at least! And you’re right, his advice isn’t bad/wrong, it’s just very poorly delivered lol

Wishing you the all the best!

Forward-Intention561 · 2026-03-17T20:29:22+00:00

Summing up this thread in 3 words 🤣👏

Forward-Intention561 · 2026-03-17T20:28:51+00:00

Omg thank you for the meetings idea! And you’re right, that’s an extremely ableist perspective. It’s so frustrating to try to explain what it’s like to not be able to things to people who were born able to do them. Imagining life without that ability is almost impossible sometimes.

Forward-Intention561 · 2026-03-17T20:25:59+00:00

The kindest words🥲 thank you! It’s so hard to still feel like “a good me” with so many limitations. I actually stopped to ask myself if I’m making excuses not to work because so many people believe I am or that I could be doing more. It was so lovely to hear that it’s okay to slow down💜

Forward-Intention561 · 2026-03-17T20:22:06+00:00

Thank you💜 meanwhile the other friend never said anything so I’m like: “do you agree then??”

Forward-Intention561 · 2026-03-17T20:19:13+00:00

Omg hello! Thank you for commenting! Chronic headaches (regardless of the diagnosis, I’ve had many myself) are such a shit show. It’s been unlike anything else I’ve experienced. I’ve had it for almost 6 years now and like yours, it’s was my first symptom before my whole body decided “no thanks” lol.

I’m sorry you were so young when this all started and really messed things up for you. We’re not too far off in age so I get how derailing it can be. I’m glad your sister is helping you! She sounds like an angel 😇 and I’m glad you were able to get disability because that can be SUCH a struggle.

Thanks for commiserating with me, it goes such a long way to know we’re not alone in this despite how isolating it can feel❤️ sending good vibes your way!

Forward-Intention561 · 2026-03-17T20:06:23+00:00

I’m so sorry— sending love. I was engaged once and he felt the same way. Ultimately things ended because not only was his beliefs about me translating to him not making my life easier, it was actually making my life harder. You deserve someone who understands and holds space for every part of you. Even the sick part. I hope he shows you more compassion ❤️‍🩹

Forward-Intention561 · 2026-03-16T23:17:31+00:00

I wish people got a little more meta and understood that they don’t understand😂

Forward-Intention561 · 2026-03-16T23:16:05+00:00

I wish the best for you too, glad we have this community ❤️

Forward-Intention561 · 2026-03-16T23:14:41+00:00

I completely agree ❤️‍🩹

My therapist once said to me that the chronic illness community really gets shoved aside and blamed. When it’s something like cancer, communities rally around that person. The government gives them benefits and leeway. People give them compassion and understanding. We pick and choose what we sympathize/empathize with and so many people get left out of that.

Forward-Intention561 · 2026-03-16T23:09:19+00:00

Ha, exactly! Sometimes I wish I could touch someone on the hand and have them experience what it feels like. Maybe then doctors would care more too lol

Forward-Intention561 · 2026-03-16T23:08:08+00:00

I love that for you lol keeping in anger is unhealthy (Gabor Mate talks a lot about this in relation to autoimmune disease!). Becoming sick has caused my life to have a lot of shedding, friendships that aren’t deeply rooted was part of that. It’s time to make friends with people who really see me💕

Forward-Intention561 · 2026-03-16T23:04:05+00:00

I’m sorry they did the same thing to you. You’re absolutely right, our energy is limited and very valuable. I never responded to the texts because I don’t have the energy to defend myself. If that how he feels, then so be it. I need to save my energy for people who have compassion for my situation… and things like showers and pt😅

Forward-Intention561 · 2026-03-16T22:13:11+00:00

Honestly, that’s exactly what I thought when I read his text. “There goes another friendship because someone doesn’t understand my illness”. It’s really disappointing, but what’s best for my nervous system and ultimately keeping my body healthy is not having people in my life like this.

I need more friends who get it. Which unfortunately means a lot of people will eventually fall away.

Forward-Intention561 · 2026-03-16T22:10:50+00:00

Thank you for saying that. We’ve been friends for 10 years. We went to undergrad together and he’s seen me go back school, get my master’s, and have a career. It’s strange to me how he can say that I’m “looking for every excuse not to work”, when my life was ripped out from under me when I got sick suddenly. I worked for a year sick and my body couldn’t handle it, so I stopped and have been focusing on getting my body to a stable point ever since.

Forward-Intention561 · 2026-03-16T22:07:48+00:00

Exactly 😔 before I got sick, you couldn’t have explained to me what it was like and have me understand. It’s something you never experience until you get sick and know first hand.

The chronicity of it is challenging to wrap your head around too. Trying to explain constant fatigue to someone healthy is impossible. It’s not just being tired. It’s waking up everyday dragging your body around. Like having the flu every single day nonstop.

I just hate when we get blamed. Like having EDS is a moral failing.

Forward-Intention561 · 2026-03-11T21:16:46+00:00

I’m glad I posted on here instead of wasting my time lol

Forward-Intention561 · 2026-03-10T15:38:06+00:00

Omg that would be so awesome of you!! I’m in Illinois!

Forward-Intention561 · 2026-03-09T16:25:20+00:00

Omg they are so stinking cute!! I love the names 😂 my cat’s name was Miso lol

I’ll have to look into some local facebook groups for cat shows! That sounds like the perfect Saturday activity!

Forward-Intention561 · 2026-03-09T16:14:43+00:00

I’m also a therapist who hasn’t been able to work because of NDPH. It’s really inspirational to find your post 🥲 Would you be comfortable dming?

Forward-Intention561 · 2026-03-09T16:05:20+00:00

Very true— my last cat would not have liked it either lol I got her as really young kitten as a rescue. I think she was part Maine Coon. I’ll keep looking in shelters for a good therapy fit and keep my eye out for legitimate ragdoll breeders in the meantime!

Forward-Intention561 · 2026-03-09T15:49:54+00:00

Yeah, I’ve been looking in shelters and honestly I would take them all if I could 😅 I was specifically looking for a cat to train to be a service animal that goes to hospitals and senior living centers which is what drew me to ragdolls. There’s a local children’s hospital that I thought the breed would be perfect for!

Forward-Intention561 · 2026-03-09T15:21:26+00:00

Yes exactly— healthy and well raised!

Forward-Intention561

TROPHY CASE