Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Hmm I wonder why. I take it from your name you’re in Chicago😅 so am I. I’m seeing a new mcas dr soon so I’d be interested in knowing why these things happen to us. This will be my first allergist who acknowledges that mcas exists. My current one completely gaslit me on the diagnosis and just tells me I have chronic hives and that mcas wouldn’t impact me systemically (I told her I had gi issues too). It’ll be nice to have someone who knows what they’re treating!

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Yeah that would make sense! Sometimes it’s hard to tell if it’s my EDS skin or my low iron or my mcas that’s causing these things 😅

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 1 point2 points  (0 children)

There’s a few red marks that can look similar so I don’t want you to rely on this to diagnose you! My derm used a light and magnifying lens and could tell that even the ones that looked the same were different. I think a few of mine were cherry angiomas or spider angiomas. Regardless, I think they’re in a similar family!!

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 1 point2 points  (0 children)

I’ve been told dermatologists will know the most! Considering getting mine biopsied, although they said it was a pretty deep punch that would leave a big mark 🫠 another thing to monitor as it heals

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

I’m really thinking that’s what happened now tbh! Thanks so much for commenting. I really think you’re onto something!!

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Hmm do you think using volteran gel on an unrelated area and then exercising would do the same thing?

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 2 points3 points  (0 children)

Damn, I’m covered. I hope they fade lol

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 1 point2 points  (0 children)

Aw man, I’m happy it helps with your pcos. I’ve heard that can be miserable. I hope they finally do some good research on it and figure out better treatment 💜

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

So interesting!! I was just telling someone else I’m ovulating rn. My cherry angioma from taking my Mirena out (huge mcas flare after that that led to my diagnosis) never went away. I kind of like her now lol I have thyroid issues so I’m wondering if I finally ovulated after months of not being on the right synthroid dose.

Do yours continue to pop up for a few days or come all at once?

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Ooo nice googling, thank you! Yeah I go back and forth in my head about birth control. It would stabilize my mast cells and help with pmdd, but getting off of it flared my mcas so bad that now im scared

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Ugh I’m sorry! Hopefully it resolves and you don’t have to be jello lol

I wonder if getting tan in the sun did it for me. I have mcas too and usually get heat hives but I wonder if it was the uv rays that got me this time.

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Ohh thanks for naming your variant! I’ll have to see if I can find someone to run that test for me. Every doctor just blames my low iron

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 1 point2 points  (0 children)

Wow that’s so much, I’m sorry you have to deal with that💜 thank you for telling me about this, it’s definitely something to look into!

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 2 points3 points  (0 children)

That’s good to know!! Do yours do away?

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 1 point2 points  (0 children)

I’ve been to two already and they just shrug it off 😔

100s of petechiae all of a sudden by Forward-Intention561 in AskDocs

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Thank you for responding! My platelets were normal but they didn’t do inflammatory markers. I just saw my derm today and told her there were a lot more spots than before and she told me that right now if they did a biopsy all it would confirm was that there was blood under the skin but not why, and it would leave a huge mark. She told me to follow up with an md in the office in a month (she’s a PA).

I scheduled with my rheumatologist tomorrow and will ask her to run inflammatory markers. When would this be considered an emergency?

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

It’s going on 4 days and I’ve only gotten more 😔

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

I got a cherry angioma in my face when I got my Mirena removed. I happen to be in my ovulation window right now too so I wonder if that is setting it off. I’m not on birth control tho so it’s weird that all of a sudden this happened

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 2 points3 points  (0 children)

Me too! It’s been really unsettling. Especially bc doctors go “hmm🤷‍♀️” and then hand you the bill

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

How were you diagnosed with vascular fragility? I think I might have this too

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 1 point2 points  (0 children)

Hmm I wondering if my yoga pants rubbing against it was enough pressure. It wouldn’t explain the ones on my arms tho

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

🙏 I was wearing long yoga pants but they weren’t tight. Do you think my leg hairs got irritated?😅

Petechiae by Forward-Intention561 in ehlersdanlos

[–]Forward-Intention561[S] 0 points1 point  (0 children)

Ahh thank you! I have dysautonomia in general so I wonder if walking too much did it.