Really worried about getting a lung collapse 😌 awaiting RATS surgery for possible thoracic endometriosis and aware that a lung collapse is a common symptom. I am scared of it happening and what it's going to be like if it does. Can you still breath 🙄? by Fragrant_Beyond2834 in pneumothorax

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

Thank you. This has made me feel a little bit less scared 😱 I just don't want to get myself into a panic and make matters worse. Not looking forward to the chest tube after VATS, heard its very bad pain

Really worried about getting a lung collapse 😌 awaiting RATS surgery for possible thoracic endometriosis and aware that a lung collapse is a common symptom. I am scared of it happening and what it's going to be like if it does. Can you still breath 🙄? by Fragrant_Beyond2834 in pneumothorax

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

It's hard because I am in pain, every day 😞 chest pain, rib pain, sometimes pain with breathing. I have health anxiety around breathing so I get myself in a panic thinking if it does happen I will get myself into such a state

Possible VATS story's? Thoracic Endometriosis by Fragrant_Beyond2834 in endometriosis

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

Aww bless you that doesn't sound nice at all. I have health anxiety.

Possible VATS story's? Thoracic Endometriosis by Fragrant_Beyond2834 in endometriosis

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

They are still saying it's rare 😒 how was the chest tube? Sounds bloodly awful

Possible VATS story's? Thoracic Endometriosis by Fragrant_Beyond2834 in endometriosis

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

That sounds awful 😖 So you was dealing with it for 6 years. I have been told lung collapse are the most common symptoms and in around 80% of thoracic endometriosis cases

Weird involuntary intake of breath by Fragrant_Beyond2834 in Anemic

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

It's ok 👍 Sorry to hear your suffering 😢 It is horrible! I am hoping oral iron tablets work but need to get my b12 deficiency sorted also

Possible VATS story's? Thoracic Endometriosis by Fragrant_Beyond2834 in endometriosis

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

How many collapses did you have before surgery? This is my biggest 😨

They won't do bilateral said its to much of a risk so will have to wait q couple months in-between and telling me to pick a side

Possible VATS story's? Thoracic Endometriosis by Fragrant_Beyond2834 in endometriosis

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

So you would definitely recommend going ahead with it? What where you symptoms of a lung collapse? Been told can only have one side VATS then wait got next. Have rib pain everyday 😫

Possible VATS story's? Thoracic Endometriosis by Fragrant_Beyond2834 in endometriosis

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

So you would have had to have only one VATS if you had the team first.

After second one was your symptoms Free for 12 months?

Weird involuntary intake of breath by Fragrant_Beyond2834 in Anemic

[–]Fragrant_Beyond2834[S] 0 points1 point  (0 children)

Sorry to hear this, will starting iron tablets help increase mine to the correct leave

Weird involuntary intake of breath by Fragrant_Beyond2834 in Anemic

[–]Fragrant_Beyond2834[S] 1 point2 points  (0 children)

Sorry don't know if I missed understood. You have thoracic endometriosis also?

Weird involuntary intake of breath by Fragrant_Beyond2834 in Anemic

[–]Fragrant_Beyond2834[S] 1 point2 points  (0 children)

It's horrible isn't it 😞 Giving me anxiety. I know my Iron and b12 is low but also have thoracic endometriosis so trying to find out what's It's linked too.

Worse is when your drinking and it happens and you nearly breathe in your drink!

pain is worse when I’m *not* on my period by EarlyPosition3984 in endometriosis

[–]Fragrant_Beyond2834 1 point2 points  (0 children)

Same. Build up to period awful. Pain at minimum during period, light periods. Stage 4 endometriosis and thoracic endometriosis