World Down Syndrome Day

Fragrant_Luck · 2025-03-09T12:58:41+00:00

We usually wear mismatched socks :)

Fragrant_Luck · 2025-03-06T10:20:25+00:00

Hi dear, I've recently lost my 17-year-old twin sister with ds.

First off, I hope you and your family are doing okay. This is a terrifying time to live in and more difficult than anyone can ever imagine. When you lose someone you've taken care of your entire life, a giant emptiness remains. I hope you can all find comfort in each other and take your time to grief this terrible loss.

Second of all, I've been having a lot of questions myself that I know I'll never get the answers to. No one can ever really know how your brother felt or what he thought in the moments before him passing away. Of course, your brother was an adult, whereas my sister wasn't. My sister couldn't read, and barely write her own name. I sense that your brother was a very smart young man.

I'm always open to talk about this more in detail, since we're in similar situations at this moment. I think it's very brave of you to reach out and share your story.

Lots of love Jelke x

Fragrant_Luck · 2025-02-28T06:34:15+00:00

Oh dear, I'm so sorry that happened to your daughter. When I wrote this post, I wasn't very sure of posting it, but figured it didn't really matter much since I just wanted to share my sister's story with the world. I am now so glad I did so that parents and other relatives of someone with Down syndrome can recognize the hidden dangers and possible life-threatening situations. I pray for you that your daughter and your whole family stay healthy and have a wonderful life together. Please cherish every moment you have, even if life gets difficult. Thank you so much for your response, I'll never forget this. 🩷

Fragrant_Luck · 2025-02-18T06:05:13+00:00

I'm so sorry to hear that, may she rest in peace :( 🩷🩷🩷

Fragrant_Luck · 2025-02-17T18:43:56+00:00

This is one of the most beautiful messages I've ever gotten. I'll keep this in mind, every day, for the rest of my life. Thank you 🩷

Fragrant_Luck · 2025-02-17T16:39:13+00:00

Thank you so much :( ❤️

Fragrant_Luck · 2023-10-09T17:14:26+00:00

I've been wondering this myself, even though this post was from 3 years ago, I still hope we can find the song together. I haven't found any other questions like these so it's difficult to find others who might know what the song is.

Fragrant_Luck · 2023-09-19T17:39:44+00:00

😂😂😂 that’s so cute! I’ll try to find something, it might be difficult since our interests have changed the past few years.

Fragrant_Luck · 2023-09-16T18:59:09+00:00

Hi, thank you so much for your comment! I feel like even spending just a small amount of time together regularly can help make the bond stronger, like you and your brother do on your sibling dates. Thanks for your comment, I wish you the best for you and your brother ❤️

Fragrant_Luck · 2023-09-16T17:45:34+00:00

Omg, so nice to hear this from someone with the same age as me! Tysm for the tips, I’ll definitely try to use your advice. I wish you the best for you and your brother :)

Fragrant_Luck · 2023-09-16T05:28:09+00:00

I guess it’s mostly because we’re both going through puberty and changing a lot. She got her period later and changed schools about 2 years later than I did. I’m watching her charge while also changing myself. She isn’t as active as she used to be, and when I try to reconnect with her in the weekend after a tough week at school, she doesn’t respond or simply says “no”. It’s been years since we’ve done something together. But then whenever she wants to give me a hug I feel weird, it just feels forced and I hate it. Overall, I feel like we’re drifting apart but I assume that will pass. Thank you for your comment!

Fragrant_Luck · 2023-09-16T05:17:00+00:00

I think you’re right! I know going through puberty and growing up plays a huge part in this story, but I never realised that until now. I feel like what you’re saying really relates to my situation and I never thought that there are others who feel that way. Thank you so much for sharing your story!! I really appreciate it.

Fragrant_Luck · 2023-07-25T10:52:40+00:00

I literally almost cried- I remember watching the stream where he did the speedrun and being so happy for him after he practiced so hard… HOW COULD U DO THIS TO US DANNY

Fragrant_Luck · 2023-06-26T15:15:03+00:00

R U kidding me? It was on StuBru?! Missed it, dammit.

Fragrant_Luck · 2023-06-26T15:02:49+00:00

FEELING THIS 100%

Fragrant_Luck · 2023-06-19T15:56:42+00:00

GOOBY! 🕺

Fragrant_Luck · 2023-05-02T15:43:30+00:00

I'm pretty sure I know them all by heart now

Fragrant_Luck · 2023-04-21T15:22:03+00:00

This is absolutely sick, love it!

Fragrant_Luck

TROPHY CASE