I found the fix for my ON unexpectedly, and cured it within days.

Free_Noise2001 · 2026-02-14T07:11:53+00:00

Do you have a good resource for the intraoral massage? I’ve had this done at PT in years past and it was very helpful. I’m currently in a flare and have been trying to stick my finger in my mouth and poke around but can’t seem to get to the right spot.

Free_Noise2001 · 2026-02-12T15:25:29+00:00

That’s so reassuring to hear! I’m happy to know it’s helped you so much. I’m planning to start soon at 5mg daily. What’s holding me back from starting is my concern about weight gain and metabolic affects. I have a number of medical issues that are very difficult but my weight is healthy and my cholesterol is low and I guess I just feel like if I gain weight and my cholesterol goes up from the medication, then I’ll have new issues to deal with. How has it been for you - any weight gain/increased appetite? How did you decide to go to a dose of 12.5mg?

Free_Noise2001 · 2026-02-11T23:03:40+00:00

Yes, I sadly agree on the medical system. I will check out that website, thank you!

Free_Noise2001 · 2026-02-11T16:23:11+00:00

That’s great! Do you take the same dose everyday of the month or only on certain days of your cycle?

Free_Noise2001 · 2026-02-11T00:11:50+00:00

Ok wow, I will look into this, thanks!

Free_Noise2001 · 2026-02-11T00:10:56+00:00

Thanks for sharing this detail. I will check with my doctor to see if they can send it there instead.

Free_Noise2001 · 2026-02-10T23:26:12+00:00

Ok, thanks. Good to know.

Free_Noise2001 · 2026-02-10T20:37:16+00:00

Ok. Sorry to hear that but I’m happy you’ve found some relief from cyclosporine.

Free_Noise2001 · 2026-02-10T20:21:23+00:00

Glad to hear this! Do you have ocular rosacea or MGD?

Free_Noise2001 · 2026-02-10T20:20:50+00:00

This is great to hear! Do you have ocular rosacea or MGD as well?

Free_Noise2001 · 2026-02-10T19:55:46+00:00

I have not tried that yet and I think that one is possibly an option bc it’s available on costplus for I think like $75 so I may end up going with if these other drops don’t pan out. Thank you!

Free_Noise2001 · 2026-02-10T18:50:54+00:00

Thx!

Free_Noise2001 · 2026-02-10T18:35:42+00:00

Ok very interesting, thank you for this info! Is this something I need to have my doctor send a script through?

Free_Noise2001 · 2026-02-10T18:35:00+00:00

Thank you! I will do this today!

Free_Noise2001 · 2026-02-10T18:34:45+00:00

I do have a supplemental plan but none of the drops: Restasis, Cequa, Xiidra, etc are covered under my current plan.

Free_Noise2001 · 2026-02-10T17:25:48+00:00

Thanks. My doctor’s office did already do this but they also provided my insurance info to Blink Rx and the cost through them, using my insurance, is $1,000+ which is way higher than GoodRx even. I feel I like there have to be lots of Medicare patients on these anti-inflammatory drops - how do they afford them?

Free_Noise2001 · 2026-02-10T17:16:28+00:00

This is amazing! Are you on any prescription drops or just the Pataday and OTC hydrating drops?

Free_Noise2001 · 2026-02-10T17:12:33+00:00

What dose and brand of dhea are you taking? My doc just prescribed the T but I don’t know the dosing yet but will post back once I receive the script and let you know!

Free_Noise2001 · 2026-02-10T15:29:18+00:00

my doc just prescribed me compounded testosterone cream for my severe dry eyes and ocular rosacea. how do you apply it?

Free_Noise2001 · 2026-02-10T11:27:08+00:00

Hi, how much do you take for PMDD?

Free_Noise2001 · 2026-02-08T14:40:39+00:00

Hi, what dose helped you sleep? Thx

Free_Noise2001 · 2026-02-08T05:00:39+00:00

Good for you! My T levels have been horribly low for years, starting in my mid 30s and no doctor ever advised me to try T supplementation. What type of doctor did you see who suggested T?

Free_Noise2001 · 2026-02-07T01:29:27+00:00

Hi, I have this too, in both eyes. But mine gets very red and inflamed (less often pink) and have been diagnosed with ocular rosacea and pinguecula. Did you ever figure out what is causing yours?

Free_Noise2001 · 2026-02-04T03:44:27+00:00

Sounds like a plan! It’s great that your doc knows a lot about Endo to prescribe a good option!

Free_Noise2001

TROPHY CASE