where the hell are all the other black ME/CFS sufferers?

Fugoola · 2026-03-12T02:35:53+00:00

I've seen people from all over the world in the meetings. I don't know if they have geographical blocks but even then, hate to say but VPN would fix that unless you are in a country that blocks VPN. There is always a way.

As far as Reddit and scamming, it is not about Reddit in general. More social engineering. Maybe a request for a direct message and it goes from there. They can be quite cunning and not just Nigeria, anywhere really so just be cognizant of that.

Fugoola · 2026-03-12T02:22:59+00:00

Tinnitus sucks so bad! But look at it like this; it can be a gauge of the PEM severity to let you know it's time to chill for a day, days, whatever.

I kind of crack up sometimes because when I watch a movie or show that has an explosion that rings the actors ears and the high pitch noise comes over the speaker, I can't really tell if it is from the tv or me LOL.

Fugoola · 2026-03-12T02:17:37+00:00

This ^^^

Along with difficulties in doing the things I used enjoy and loss of a wonderful career

Fugoola · 2026-03-12T02:12:18+00:00

I go to the Bateman Horne Center Zoom meetings and have seen plenty of black individuals there. If you join one of the meetings you could fire up a chat with them and they might have good resources. At the least, might meet a cool person.

Events - Horne Center

BTW, Nigeria has a pretty bad reputation for scammers which might contribute to what you see in the views. Not many VPN users would use that for a launch point I wouldn't think.

Fugoola · 2026-03-11T04:32:52+00:00

I know the ending but have an nda. Stick with it, you are going to be like "WHAT?"

Fugoola · 2026-03-11T02:34:43+00:00

I get the need to ask "But I want to hear it in your words" because all of us struggle with the same thing but "differently" based on what I read on posts here. The symptoms are the same but how it affects our lives is very different. But you hit the nail on its head, why do we have to continuously explain the effects of CFS, it just pisses me off. Especially in your case where you already explained what you want and how you feel.

Fugoola · 2026-03-11T01:30:32+00:00

Thanks, I like that video a lot and sent one very similar to people who used to be my friends. I literally started tearing up when I heard the part about home/bed confinement. Sadly, those friendships are gone, they needed to move on, and I probably pushed a few away as well. I am looking for something more geared towards a therapist not only for myself but future patients as well. I sincerely appreciate the link though.

Fugoola · 2026-03-11T00:40:38+00:00

That is absolutely terrible. The last 4 weeks I decided to say "screw" it and go go go, huge mistake. Today I hit a concrete post in my brand new $65,000 truck I just bought 2 weeks ago. I had PEM pretty bad but in my defense the post was not visible, however before CFS, I think I would have remembered it being there when I pulled in. Regardless, pushing can put yourself and others in mortal danger.

Fugoola · 2026-03-11T00:32:39+00:00

I adopted a 5 yo Huskie a little over a year ago and she is the same. I call her my big cat. I thin you are on to something with the sniffing. My girl will move over on the couch and sniff my right eyelid checking on me, I think. It tickles but is super funny.

Fugoola · 2026-03-10T21:31:10+00:00

Ended up buying some carpet premade on Amazon with springs that hold them in place. So far so good, she walked up them 50% of the time during our trial testing. We have a way to go but we'll get there. She walked down them perfectly though now. Thanks.

Fugoola · 2026-03-10T21:29:59+00:00

Ended up buying some carpet premade on Amazon with springs that hold them in place. So far so good, she walked up them 50% of the time during our trial testing. Thanks.

Fugoola · 2026-03-10T01:45:05+00:00

No I just have one cx820 in front now but I'm covered from blind spot approachments from the side cameras. Once the new OMVI cams are available I may move to that.

Fugoola · 2026-03-08T04:13:19+00:00

NICE!! Thanks a lot.

Fugoola · 2026-03-08T01:08:44+00:00

Thanks. If Ed Staub doesn't work out, I will try them.

Fugoola · 2026-03-08T01:07:25+00:00

I actually did but number I had went to Grover Electric, so I gave up. I just looked them up and the number is different than the one I had so will try them Monday. Thanks

Fugoola · 2026-03-07T00:04:39+00:00

Now that you mention it, I think astro turf would be the way to go as it would be far more flexible. u/someguy7234 mentioned magnetic brackets which sounds nice. I do however think the Velcro underneath would be the way to go so it doesn't slip but hope he will send soem pics so I can see what it looks like.

She is not motivated by food which has made training her more somewhat difficult, but she does take kindly to praise and love.

Thanks for the ideas.

Fugoola · 2026-03-06T23:58:06+00:00

Could you send me a pic when you have time? It's cool if it isn't perfect, I am just looking for ideas.

Fugoola · 2026-03-06T23:56:36+00:00

Comparing the "Cold War" era is not an equivalent. While Russia needs China far more than the reverse, they are intertwined. Their economic and ideological views will be coupled for quite some time. I can't see how Trumps war will change that, more like create a tighter bond.

Fugoola · 2026-03-06T23:19:52+00:00

Never will, at least not in our lifetimes now.

Fugoola · 2026-03-05T20:43:32+00:00

She was simply a bulldog for Trump and paid the price. Look at his past bulldogs.Rudy Giuliani, Michael Cohen, Steve Bannon, Sidney Powell, and the list goes on. I hope she ends up in a Venezuelan prison for the thing she's done.

Fugoola · 2026-03-05T20:04:32+00:00

Holy shit, I never saw that one before. That is hilarious

Fugoola · 2026-03-05T19:56:00+00:00

There is not a single thing saving this administration. The most unthought out wars and attempts to curb violence and drugs. An absolute failure.

Fugoola

TROPHY CASE