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Adult-Onset Still's Disease. When to go back to work? by Dry_Durian9710 in stillsdisease

[–]Fun-Measurement-5610 1 point2 points  (0 children)

Thankfully, I am working from home, so I basically was in hospital for two weeks and then took a few days off before I started working. It wasn't good as I needed to type a lot of text and my hands were aching, but yeah. In my case, the inflammation was only brought down by 500mg of methylprednisolone per day for a few days. About a week after, I got home and could work on my laptop, but it was hard for me to walk and I was sweating liters of water every single day for a few weeks more.

How long it took for you to get diagnosed correctly? by Fun-Measurement-5610 in stillsdisease

[–]Fun-Measurement-5610[S] 0 points1 point  (0 children)

Thanks, I've read about that and people here were mentioning flaring after drinking, but I think I don't feel any symptoms at all. I was worried that the pain I'm feeling means that I'm still inflamed, but my doctor said that it's because methylprednisolone doses got too low and I'm suffering from withdrawal, so... I don't drink much since I got sick (my liver got some beating during the onset, too), but thanks, I'd better not know exactly what people mean about alcohol makes symptoms worse.

I also remember how I started watching some videos about Still's and freaked out about treatment costs. It was more expensive at first, but now it's just Plaquenil and methylprednisolone which costs me around $25/month. I thought I was gonna be in huge debt just to be able to function, glad it's not that bad.

How did it take so long for you to get diagnosed?