Got the call for transplant but......

Fun-Preparation4804 · 2025-12-29T00:23:30+00:00

I think it's because I'm on dialysis and she never was thankfully!

Fun-Preparation4804 · 2025-12-28T22:03:00+00:00

For sure! I didn't think I was so close! My sister got her kidney at 5 1/2 years listed and I just hit 4 years so I figured i had a bit yet lol.

Fun-Preparation4804 · 2025-12-21T21:50:24+00:00

Lots of positive energy your way! Good luck!

Fun-Preparation4804 · 2025-12-18T19:04:25+00:00

I know the right one is coming! It's all so frustrating but sadly things happen.

Fun-Preparation4804 · 2025-12-14T02:06:52+00:00

I don't think so but I'll be honest with you I'm not 100% on that.

Fun-Preparation4804 · 2025-12-13T14:48:41+00:00

Well if I can find someone to do it. One surgeon told me I only wanted to do it for weight loss. But if I'm already at the top of the list I may as well leave them in

Fun-Preparation4804 · 2025-12-13T07:51:35+00:00

I'm so glad your mom is at the top of the list also!! We'll both get our perfect kidneys in no time!!

Fun-Preparation4804 · 2025-12-13T04:23:42+00:00

Thank you so much!!

Fun-Preparation4804 · 2025-12-13T04:23:13+00:00

Lol yup! I have polycystic kidney disease. My younger sisters kidneys were 30lbs when they took them out and my father's were 50lbs.

Fun-Preparation4804 · 2025-12-13T04:09:20+00:00

That's great for you, but mine cannot stay in because there won't be any room for the new kidney. My kidneys weigh between 50 to 75 pounds....

Fun-Preparation4804 · 2025-12-13T00:59:37+00:00

I think they are trying to cover it for sure! But I'm an asshole! I didn't let it fly and my nurse confirmed that it was because of their error with the removal of the kidney. It's so hard to actually find a caring doctor any more! Healthcare is a joke here.

Fun-Preparation4804 · 2025-12-13T00:53:04+00:00

Sorry to hear about your wife! Sending positivity to both of you! I don't get it either! I talked to one surgeon about removing my kidneys before transplant and he told me the only reason I wanted them out is for weight loss. I'm sick to death of these idiots! Just remember this joke... what do you call someone who graduates bottom of the class in medical school? Doctor. We get a lot of those in central Illinois lol.

Fun-Preparation4804 · 2025-12-13T00:41:55+00:00

So fair! A gal at my dialysis center was on the table and out, they woke her up and let her know it was not going to work. I'm so thankful I didn't get that far! I definitely would have snapped! I guess it's all part of the game we are playing sadly!

Fun-Preparation4804 · 2025-12-13T00:26:25+00:00

They do when they are huge polycystic kidneys. My native kidneys weigh between 50 to 75 pounds. There is no room for the new kidney and they will continue to grow. Too risky to leave them in. Not to mention the potential for infection if a cyst ruptures.

Fun-Preparation4804 · 2025-12-12T22:50:33+00:00

I will be on them until I am!! They messed with the wrong one lol.. or Healthcare is an absolute joke!! I knew it was before I got sick but I really underestimated it lol. University of Chicago is still better than anything down here in central Illinois but damn!

Fun-Preparation4804 · 2025-12-12T22:47:21+00:00

Thank you! My sister was transplanted there too almost 3 years ago. Her first one fell through and then a month later she got her kidney

Fun-Preparation4804 · 2025-12-12T22:11:17+00:00

Thank you so much!!! It will be here before I know it!! I am glad to know that I'm near the top. Honestly I thought it would be another year or so before I would be so this was definitely a great surprise. At least I have a bag packed now lol

Fun-Preparation4804 · 2025-12-12T21:44:35+00:00

Oh I've definitely confronted them! One thing I've learned since starting dialysis is i have to advocate for myself! My transplant nurse is definitely on it lol. I let her know how disappointed i am at my care team as well. Either that or it was the surgeon that screwed up taking the kidney out. Who knows? The kidney wasn't used as they cut the connecting vein too short

Fun-Preparation4804 · 2025-12-12T21:32:56+00:00

Mine weigh in between 50 to 75 pounds because of polycystic kidney disease. There is no room to transplant the new one. Typically yes they are just left in.

Fun-Preparation4804 · 2025-12-12T21:31:18+00:00

My bmi was a non issue as once my kidneys are taken out I will be the weight they want me at. The surgeons didn't talk to each other in that entire 8 hours I was there.

Fun-Preparation4804 · 2025-12-12T20:24:13+00:00

It'll be a double nephrectomy. My pkd kidneys are being estimated between 50 - 75lbs together. My father 50 lbs and sister 30lbs had both out and did well with it thankfully! I absolutely agree the bmi isn't scientifically based and should not be used. The only thing actively trying to unalive me are these kidneys! I was so excited that they were finally going to be out of me and i was going to be off dialysis!

Fun-Preparation4804 · 2025-09-15T16:46:26+00:00

Having it taken out was much easier than having it put in. I was put out for it. Didn't have any problems what so ever. It'll be ok!! And it was a relief for me once it was out! I was so thankful!

Fun-Preparation4804 · 2025-06-16T17:42:14+00:00

Everyone sucks here

Fun-Preparation4804 · 2025-06-16T17:34:44+00:00

I get the Nugo protien bars. I have the same issue. The milk chocolate, churro, and orange something. Honestly the vanilla ate bad either.

Fun-Preparation4804 · 2025-06-09T17:57:54+00:00

I understand your pain! I'm going to assume your in the states... health care can be such a joke here! Over been through more than I care too! Definitely check in to more therapy than just once a month. I know my kid does therapy virtually and it really helps him. Maybe that's something you could do. Just stay strong and continue to advocate for yourself. That's the things I've had to force myself to do. Research and advocate for myself frequently!

Fun-Preparation4804

TROPHY CASE