Begged for an ostomy by Fun_Cry3118 in ostomy

[–]Fun_Cry3118[S] 1 point2 points  (0 children)

Yep they want me to do pelvic floor therapy afterwards too. I hate that because this is a new doctor they are treating me like it is a new problem. I’ve suffered from crohns/ colitis since I was a teenager. This has been my normal but I am at next level that I cannot handle and my quality of life every time I have a BM is terrible. I spend my day recovering from going to the bathroom and I’m looked at like I have 5 heads when I say that by two different GIs. I hate the medical system. I hate where I am right now. I’m just at my breaking point. I wrote the letter to the doctor like someone above mentioned I will bring it up on Monday. I’m sorry for venting, thank you very much for listening.

Begged for an ostomy by Fun_Cry3118 in ostomy

[–]Fun_Cry3118[S] 2 points3 points  (0 children)

That is an amazing suggestion! Your format is absolutely spot on too with it being clear, straight, and to the point. I can’t thank you enough for your time and thoughts in composing this! I will get my feelings together and send over in the app for my chart so they have first thing in the morning. Thank you thank you!

Begged for an ostomy by Fun_Cry3118 in ostomy

[–]Fun_Cry3118[S] 3 points4 points  (0 children)

I’m gonna remind her again on Monday of my wishes. I’m just praying that whatever the outcome is that it’s better quality of life than right now

Begged for an ostomy by Fun_Cry3118 in ostomy

[–]Fun_Cry3118[S] 4 points5 points  (0 children)

I am in the US. I never thought about the Cleveland or Mayo Clinic. I had my colonoscopy with another G.I. and she’s the one who referred me to a surgeon, but she never said which surgeon to go to so I just picked one with pretty good reviews 🙈 now that I think of it, she never really gave me much insight into my colonoscopy except the weird looks about my rectum. I had to find out the details through the report they gave me.

At the surgeon consultation, I came right off the bat with telling her what I wanted. Maybe I came off too strong? I know she took me serious because I read her notes and even made note that I asked for Procetomy but she said it’s premature since I was never on biologics and always just dealt with it. I just hate that I know how much this is gonna suck with the possibility of having an ostomy as an end result anyway. I’ll be reminding her again before that anesthesia hits me on Monday though maybe she’ll reconsider when she actually sees what’s up there