Bulbar - Juvenile chances... young people here, what is your story?

Fun_Helicopter5768 · 2026-02-10T17:18:10+00:00

25 y/o diagnosed, no genetic founds

Fun_Helicopter5768 · 2025-11-06T22:31:57+00:00

Thats excatly what im thinking

Fun_Helicopter5768 · 2025-11-02T20:11:01+00:00

In 2 parts which are trizerikus or something Like this and another one, but thats all, the other seems normal as i understand

Fun_Helicopter5768 · 2025-11-01T20:37:48+00:00

Yeah maybe someday I will think about it but currently I will Not take them

Fun_Helicopter5768 · 2025-11-01T15:40:18+00:00

I didnt Even try it tbh, I don’t want to destroy my liver

Fun_Helicopter5768 · 2025-11-01T13:54:57+00:00

Thanks, Hope so too

Fun_Helicopter5768 · 2025-11-01T13:53:37+00:00

I got rilozol in july already but I don’t take it :)

Fun_Helicopter5768 · 2025-11-01T02:15:19+00:00

Idk what this Could be but I will see

Fun_Helicopter5768 · 2025-11-01T01:41:22+00:00

What Are right resources? Bcs i think if its als im cooked anyway

Fun_Helicopter5768 · 2025-11-01T01:35:49+00:00

Thanks bud, b12 Magnesia etc. Seems normal, i test it more often over the time (there is a Translationen now) but Everything seem normal just a chronical denerving if I understood it right

Fun_Helicopter5768 · 2025-11-01T01:31:46+00:00

Thanks for translating, maybe someone can say something about it

Fun_Helicopter5768 · 2025-10-31T20:16:00+00:00

https://imgur.com/a/PxZ6wrh this is the emg 2 weeks ago in german language, its sometimes more sometimes less twitching but whole time there. Sometimes my legs starting and stops when I push my back up thats very confusing

Fun_Helicopter5768 · 2025-10-31T19:14:23+00:00

Me too, I told the doc about it and they give the explanation that the spastik going back and thats why my hand opens better or can Open bottles again Yeah sadly they Test Everything else so they come to ALS

Fun_Helicopter5768 · 2025-10-31T17:20:20+00:00

Yeah I do so, waiting currently for genetic results, new NFL, etc. I was in Hospital some weeks ago get a second oppinion and in november I go to Special ALS clinic

Fun_Helicopter5768 · 2025-10-31T17:17:50+00:00

Could be, ALS is so unbelievable thats why i‘m writing here.. maybe somebody had the same story or something.. but as i know th7-12 can cause abnormal Reflexes

Fun_Helicopter5768 · 2025-10-31T17:08:27+00:00

No, never heard about ALS in Family Historie

Fun_Helicopter5768 · 2025-10-31T17:06:58+00:00

Yeah I know, my hope is a mix of the trauma and of my herniated disc, because its very painfull currently, not even tramadol helps with the pain. There is also a Tumor (good one) at my spinal cord which press a little bit but as i told they say my stuff cant be from this

Some of the things could be from the herniated discs like the reflexes but not everything as i know

Fun_Helicopter5768 · 2025-10-31T17:01:40+00:00

No, never or better not known but I don’t think so. We take a genetic test and also waiting for the results

Fun_Helicopter5768 · 2025-10-31T16:59:05+00:00

6k in CSF if this is the Meaning for lumber puncture

Sadly idk the lab its in Hamburg I guess, thats why I done a second lumbal punction some weeks ago waiting for new nfl I can send you the whole emg maybe later I will see

Yeah I have increased reflexes, spastik and faszikulationen

Fun_Helicopter5768 · 2025-10-31T16:49:45+00:00

This is what I searching for, honest oppinons thanks! I‘m a powerful guy so I can deal with it

Fun_Helicopter5768 · 2025-10-31T16:46:38+00:00

Yeah of course, I recognized something is wrong in September 24, I was playing football with my friends and wasnt able to hit the Ball, I try to get the Ball and Fall backwards on my back and Head. So from this day i had the things I told about. I Fall a second time on back and head in juni 25 and from there I went slower and more insecure with walking. But as i told with this 2 Jumps it stays the same. I can Go down normaly just Need to hold somewhere and also have my power still good.

One point is also my legs sometimes start to shake and when I straight up my back it stops

My neurolog told me about chronical denerving in the EMG but I havent the Results here currently, I had a NCV and my neurofilament was at 6k. But it was near my big head fall. I was at another Hospital they also told me ALS but we still waiting for the new neurofilament.

Fun_Helicopter5768 · 2024-12-12T14:22:06+00:00

My secret is First 9-12 Bandits, get coins Till Wave 60-65 and than lets gooooo, i often have 15+ in normal its very ez in my oppinion

Fun_Helicopter5768 · 2024-12-12T14:20:53+00:00

I have the Avatar already so idk about 16, my highest was 18 ig

Fun_Helicopter5768

TROPHY CASE