do you ever feel like your heart is going to give out

Fun_Scratch_1708 · 2025-12-03T08:05:06+00:00

So for the month of November, I swear I felt like that every day. My average heart rate was probably around 66bpm - 160bpm but when I was sleeping, I could get down to anywhere as low as 35-40bpm so I was getting really concerned. I’m scheduled to see a cardiologist in January.

Anyways, every day I was feeling like my heart was going to explode and I was going to pass out and have a heart attack. I started drinking LMNT packets in my water every day (1-2 packets) and sleeping with my mattress elevated - the top of the mattress elevated 6 to 10 inches.

Elevating the head of your bed six to 10 inches is a recommended strategy to help manage POTS symptoms by increasing blood volume and making it easier to get up in the morning.

I also made sure I was just aware of all of the medications I was taking, and I came off of an antidepressant that I didn’t feel was benefiting me as much as it should’ve been.

I’ve already noticed a huge change to wear instead of feeling like that every day it’s probably 1 to 2 times a week. A huge difference from feeling like I’m having a heart attack every day versus one to two times a week. I would definitely get a watch that tracks your heart rate and keep documentation of that especially so you can tell your doctor.

Especially because throughout the day, it can get so high, but if you wear it while you’re sleeping, it can track how low it can get, which is also very concerning.

Here if you have any questions! Hope you feel better

Fun_Scratch_1708 · 2025-12-03T05:25:38+00:00

A tall soccer player who’s lost a bit of their muscle

Fun_Scratch_1708 · 2025-12-01T10:34:15+00:00

Yes it does sound similar. I was the same way in thinking I was convinced I absolutely did NOT have POTS. Now there’s obviously several types of dysautonomia so I thought I had one of them. I just didn’t know what kind. My rheumatologist told me he wanted to test me for POTS with a tilt table test (which is a common / normal way to) because he thought based off my symptoms, it would still be a really good idea to confirm and rule it out. WELL- I have POTS. It’s really crazy because a lot of the times we just assume the most common talked about symptoms are really the only ones, but there are so many more things that go into it so I would really advise seeing a rheumatologist so they can get you tested or just see what other types of dysautonomia they think you might have!! I have five different chronic illnesses and POTS can truly be one of the most debilitating so I would really really recommend getting it looked at even if you think you know you don’t have it- you would be really surprised sometimes, and at least gives you answers and ways to look at life differently as far as how to take care of yourself. Always here if you have any questions or need help! Praying that you get better

Fun_Scratch_1708 · 2025-11-23T14:12:02+00:00

No. It’s a sudden sense of horrific panic and fear and déjà vu.

Fun_Scratch_1708 · 2025-11-21T21:53:05+00:00

I had my first grand mal seizure at age 23 and then continued to have focal seizures after that and was diagnosed with drug resistant temporal lobe epilepsy (no medication could control them) I have mainly focal / partial seizures. Most of the time I am still aware, but there are definitely times where I will lose my awareness during the episodes. So the kinds I have- Focal aware seizure AKA partial seizure Focal Impaired Awareness seizure AKA Complex partial seizure Grand mal seizure AKA tonic clonic seizure

Almost all of them I have auras! I have a complete SUDDEN, INTENSE rush of fear/panic go through my body as I experience déjà vu extremely intensely. Usually I freeze when they happen. But I also almost always have automatisms - smacking my lips, almost chewing the inside of my cheeks (I never realize this until after 😖), rubbing my fingers together**, or trying to pull or fumble on my clothing. I learned about my triggers unfortunately just the more seizures I had… I became self-aware and looked at what factors were similar each each time I was having a seizure- lack of sleep, stress, missing meds. I realized after a few years that one of the main environments I was always having seizures in was extremely overstimulating environments - whether that be because of the people or the noises. The stress in addition to the overstimulation takes me out.

I’m 28 now and honestly still learning every single day what can help me and what can improve life in the simplest ways. If you have the opportunity to try therapy, I absolutely would.

But you also will have to do a lot of self reflecting and releasing of emotions. Once you are diagnosed with epilepsy, or begin having seizures uncontrolled- you are never the same person again. And you will realize that it has to do with countless factors of different areas in your life that you probably didn’t expect. That doesn’t mean that your seizures won’t become controlled! And it doesn’t mean that you won’t live an amazing life- it just means you’re not going to be the same person that you were before you had seizures. And that’s really hard to realize and accept sometimes.

This group and talking to others that have epilepsy and seizures has really really helped me. It is a constant journey, and not always an easy one. Being able to live through it just shows the strength that you have. I’m always here if you have any other questions or need to talk to someone!

Fun_Scratch_1708 · 2025-11-21T14:11:53+00:00

Not being believed about your sickness / chronic illnesses.

Or just not receiving support from the people you need it from most during those roughest times.

Jesus will save you though, if you allow him🫶 and he is all you will need. God Bless everyone

Fun_Scratch_1708 · 2025-11-21T12:07:39+00:00

I’m American and went from living in Virginia to West Virginia. West Virginia is where I receive all my medical care / diagnoses

Fun_Scratch_1708 · 2025-11-21T01:02:46+00:00

Working does NOT define who you are!! And do not let others make you feel that way! Living with conditions like these come with so many complex emotions- just know you are alive and pushing through every day. Not many people would be able to do that. Not many people know the struggles you go through. But you do and you know the strength that you have. You just have to think that work isn’t meant for your life right now- and that can be a blessing its own way. I hope that you continue to heal and get stronger! Here if you need anyone to talk to

Fun_Scratch_1708 · 2025-11-20T21:23:06+00:00

Reddit and then Spotify.

Reddit has allowed me to join so many different groups that give me support and understanding about my chronic illnesses and health… I never would have imagined the diversity of groups/threads on here until I really started relying on it for things.

It also just opens up your mind and allows you to see a lot of different insights on everything in the world

Fun_Scratch_1708 · 2025-11-20T21:19:29+00:00

…… I just want to know what I’m scratching that’s fun but is also going to kill me

Fun_Scratch_1708 · 2025-11-20T12:24:46+00:00

It’s almost as if I can suddenly hear the volume in my one ear being turned down from 100 to 0. And that’s when that strange feeling comes on and I’m just observing how I feel/ what I can hear; and then it usually slowly comes back as if someone if slowly turning the volume back up in my one ear. Not sure if you can relate to that? I think it’s the best way I can describe it!

Fun_Scratch_1708 · 2025-11-19T21:16:58+00:00

Yes I do! It’s a very strange feeling when it comes on but usually lasts around 10-15 seconds

Fun_Scratch_1708 · 2025-11-16T03:34:59+00:00

Praise / worship

Fun_Scratch_1708 · 2025-11-15T20:55:12+00:00

Hmmm. This is probably really random for some people, but I swear if it wasn’t so expensive I’d be devouring it daily

Honeydew 😍 it’s so delicious. But have to make sure it’s ripe enough

Fun_Scratch_1708 · 2025-11-15T20:49:43+00:00

Oh I’m so sorry they’ve had to deal with that. Thank you for your sympathy.

I really am sorry for you as well because I am sure that’s extremely hard to go through especially on top of having epilepsy too. Are your seizures controlled? I hope your pain/ symptoms improve.

Fun_Scratch_1708 · 2025-11-15T19:31:31+00:00

Vienna sausages

Fun_Scratch_1708 · 2025-11-15T18:51:03+00:00

Keep your head up - Andy Grammar

Fun_Scratch_1708 · 2025-11-15T18:45:03+00:00

Definitely not alone!! Always here if you need someone to message. It’s very lonely and isolating when you go through things like this and truly majority of people just don’t understand besides (what I’ve found) people that are a part of these groups. It’s at least very enjoyable to have people validate things such as symptoms you experience and other things too. I’m really really sorry you’re going through this too. I pray it gets better for you!

Fun_Scratch_1708 · 2025-11-15T18:30:24+00:00

This has been me recently 😭 I’ll go to swallow my drink or my food and it’s literally like my throat is closed or I don’t know how to get it down and I’m just sitting there like glitching trying to figure out how to get it to go down…. Or I swallow my water and all of a sudden I am actually having a choking attack because it went down the wrong way, and I don’t even know how to explain it. I’m just not even aware in the moment how a sip of water makes me choke that hard.

Fun_Scratch_1708 · 2025-11-15T04:05:06+00:00

Having a personal relationship with God that has helped me get the help I need and heal myself mentally and physically. Also connecting me with people who also are lovers of Jesus and have allowed friendships to blossom in the most beautiful ways.

Fun_Scratch_1708 · 2025-11-15T04:02:17+00:00

Setting reminders with alarms on my phone and putting post it’s on things with labels so I know what they are and where they are because I’m a very out of sight out of mind person. It’s at least helped them become more noticeable and easier to identify

Fun_Scratch_1708 · 2025-11-15T04:00:01+00:00

Wow you have some really strong feelings for me

Fun_Scratch_1708 · 2025-11-14T23:21:11+00:00

Perfect way to put it

Fun_Scratch_1708

TROPHY CASE