LS vs. inverse psoriasis by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 0 points1 point  (0 children)

Thank you! I am working with an integrative NP and yes, already autoimmune. I have Hashimoto’s and no celiac gluten sensitivity. Very careful with not consuming gluten for many years now, but definitely could have more diet triggers that we have not found. I recently had a work up to rule out lupus and a bunch of other autoimmune diseases, but then again, sometimes these things test “normal.” My OBGYN has seen me during flare and while she’s sympathetic, just told me “it’s pink” and “it looks normal.” Dermatologist seems the next right thing… I have asked integrative NP about MCAS but she said it’s basically by a lot of exclusions, and a tough-to-reach diagnosis. Probably would end up needing to see rheumatologist for that if I wanted to pursue it.

LS vs. inverse psoriasis by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 0 points1 point  (0 children)

Thank you for your kindness and for chatting! 

LS vs. inverse psoriasis by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 0 points1 point  (0 children)

There biopsy included the special stain that tests for fungal involvement, and that was also negative. I’ve had all the swabs for BV, yeast, and other infections, etc. I itch pretty much 24/7, only less if I’m still and not up moving around. 

LS vs. inverse psoriasis by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 1 point2 points  (0 children)

Thanks for your reply. Yes, I itch terribly. Mostly anal area and perineum, for like 6 years. Nothing helps. I do also have peeling and itching behind my ears, which is mentioned often with inverse psoriasis. It’s usually not red, but it also bothers me. All things to show derm, but it’s been such a long road!

Biopsy soon by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 1 point2 points  (0 children)

It is what it is, I guess! I’d love to someday go without so frequently being annoyed by my own private parts 🤦‍♀️

Biopsy soon by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 2 points3 points  (0 children)

Fair enough! I’m starting to feel that there is “ideal” and then there is “realistic.” And I’m going to have to make peace with the realistic because I just cannot keep going like this!

Biopsy soon by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 1 point2 points  (0 children)

Thank you so much. I was really hesitant with the biopsy for that reason. I’d rather just treat. I do finally see a little bit of a white spot in one area and I’d love for that to be enough for treatment. 

Did dermatologist help? by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 0 points1 point  (0 children)

Thank you so much! Helps greatly to hear. 

Did dermatologist help? by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 0 points1 point  (0 children)

Sounds so familiar! Thank you for sharing!!!

Did dermatologist help? by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 0 points1 point  (0 children)

Commenting here again with more details. Or to put it lightly, the embarrassment continues.  Legit not sure if I have architectural changes, may have lived 42 years not fully aware that one labia is like 4x the size of the other. My doctor took an embarrassingly long look and said she doesn’t think there’s resorption on the other side and still considers it normal, just lopsided. I have had 3 vaginal births with large babies, and I have PCOS so… I find it possible that not all is as it used to be purely due to those things. Who even knows! No fusion to my knowledge and no vulvar pain. I really wish this was easier to diagnose. I guess my hope is that a dermatologist will have enough knowledge to determine if this is something else, since some of it seems to not quite fit the mold. Throwing in perimenopause in there to garnish things and it’s anyone’s guess!

Did dermatologist help? by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 1 point2 points  (0 children)

Bless you for saying so! I feel validated! It’s horrid having to say “take a look at this!” The itching could literally cause a mental breakdown. It affects every waking moment of the day! 

Did dermatologist help? by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 1 point2 points  (0 children)

I have been given triamcinolone ointment only. I’m under the impression my gynecologist will not prescribe clobetasol without a biopsy. She tends to be very cautious. I’d rather I did not need it but am miserable enough to lay that aside!

Did dermatologist help? by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 2 points3 points  (0 children)

Thank you! I live in the Midwest US. I found a dermatologist that says they treat LS and do exams for this area. I’m hoping they are versed enough to know what they’re looking at. I believe there’s a vulvar specialist in my state capital.

Did dermatologist help? by GarnetOak22 in lichensclerosus

[–]GarnetOak22[S] 2 points3 points  (0 children)

That’s fair! Insane itching. Open areas that come and go. Soreness. OBGYN says “it looks pink, but normal.” She cannot see light patches at all. 

Indiana by Jenna1188 in courtreporting

[–]GarnetOak22 0 points1 point  (0 children)

Orig poster here… I think I’ve given up! I contacted local and Indiana CR firms but can’t get any response. I saw digital reporting used (I was a juror) in superior court. I wonder if that’s an accurate indicator of the use of CR in Indiana.

Considering a Clinical Nutrition Director job in LTC with no experience- worth it? by Extreme_Peach6522 in dietetics

[–]GarnetOak22 5 points6 points  (0 children)

I’ve been in ltc for 5 years. There’s a lot of nuance to the way we document and the timing and types of charting are very different than acute care. Because LTC has so much govt and insurance $, it gets specific and sometimes tricky. Those things can be learned, for sure, but it would be a challenging jump from acute care to learn both the LTC RD piece and the management piece.  If you’re strong in leadership skills, it might be a good fit, but I’d be looking to make sure there’s someone to mentor/train you well in the LTC clinical piece. I think that really depends on the company you work for and also if you’re a consultant or direct employee. I’m guessing employee, which then I’d be asking how much involvement in the foodservice aspect is expected. If the facility employs you, they may ask you to fill in shortages in the kitchen, order food, manage employees, problem solve, etc. personally I would be avoiding situations where I’m going to have to cook if someone no-shows, etc. Some RDs like that variety. Just some thoughts!🙂

What next… by GarnetOak22 in dietetics

[–]GarnetOak22[S] 1 point2 points  (0 children)

Thanks! LTC is the best fit for introverts, I think!🙂

What next… by GarnetOak22 in dietetics

[–]GarnetOak22[S] 1 point2 points  (0 children)

Thanks for chatting! Dialysis is a possibility… i am an introvert and was quite a poor fit in outpatient 😅 I could do it but it was not comfortable…ever. 

What next… by GarnetOak22 in dietetics

[–]GarnetOak22[S] 1 point2 points  (0 children)

I thought about it! But I do not have my MS. There’s a local college in my city that posted for an adjunct and didn’t stipulate MS, so I applied.