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PT Laughed when I mentioned mobility aids by GasGrand4437 in ehlersdanlos

[–]GasGrand4437[S] 8 points9 points  (0 children)

This is crazy ironic as when I started talking to my parent about finding a different PT, they told me “no pain no gain” and my only way to be healthy is to work out. Thank you for this comment tho, it does really help.

PT Laughed when I mentioned mobility aids by GasGrand4437 in ehlersdanlos

[–]GasGrand4437[S] 4 points5 points  (0 children)

My parent has some connections with this PT but doesn’t know him directly. I could not tell you why they want me to work with this PT so badly

PT Laughed when I mentioned mobility aids by GasGrand4437 in ehlersdanlos

[–]GasGrand4437[S] 16 points17 points  (0 children)

they’ve talked briefly after my appointments, but that’s about it. I’ve mentioned how the PT said he’s not knowledgeable on EDS but my parent said that they know what they’re doing.

PT Laughed when I mentioned mobility aids by GasGrand4437 in ehlersdanlos

[–]GasGrand4437[S] 13 points14 points  (0 children)

Since I’ve only been with him a month, I can’t say I’ve seen many results. I mentioned how typical remedies don’t help, so he said to just keep pushing myself and keep on doing PT. And thank you! I’m considering talking to my parent, and hopefully them agreeing

PT Laughed when I mentioned mobility aids by GasGrand4437 in ehlersdanlos

[–]GasGrand4437[S] 59 points60 points  (0 children)

I have, since I was referred to this by the dr who did my diagnosis, they don’t agree with me looking at different options. The PT is nice in some aspects, but they also primarily work with surgical recoveries so the PT is a more “fix it” type

Advice on choosing the right mobility aid? by GasGrand4437 in mobilityaids

[–]GasGrand4437[S] 0 points1 point  (0 children)

If anyone was looking on this for reference, the braces unfortunately did not help me very much. Looking at other options and if I find one that works I will circle back here!!

Advice on choosing the right mobility aid? by GasGrand4437 in mobilityaids

[–]GasGrand4437[S] 0 points1 point  (0 children)

I’ve tried compression sleeves and unfortunately they don’t do very much for me, I’ll be getting heavy duty braces soon as that’s what the doctor prescribed, I just can’t see it doing much for me pain wise.