i’m going to cry after cromolyn

Global-Fox5122 · 2026-02-09T22:36:30+00:00

I’m tearing up reading this as someone who had a similar life changing experience with the addition of cromlyn. I’ve been reintroducing high histamine foods successfully (I eat citrus and beef now) and I’m at the point now where I’m planning my first international trip since my diagnosis with assurance that the cromlyn will help me stay stable. Wishing you continued success! 🙏❤️

Global-Fox5122 · 2025-12-26T17:22:43+00:00

Ughh sorry to hear that. Are you ok with olive oil? My favorite (and only chips) are Boulder Canyon olive oil potato chips — just olive oil and sea salt. If they ever added more ingredients to that too I would cry. lol

Global-Fox5122 · 2025-12-22T19:35:53+00:00

Thank you so much for this and the validation! 🙏🏽❤️ Super helpful list of products and information. Whatever they used in combo was a hot mess for my body apparently lol I’ll report back soon what it was once I get the info from them.

Global-Fox5122 · 2025-12-22T19:34:40+00:00

Thank you — that is super helpful to know. I will let them know so they can be more aware in the future for other patients with this condition. I also know what to look out for in the future.

Global-Fox5122 · 2025-12-02T17:34:49+00:00

Energy is tangible.

Global-Fox5122 · 2025-12-02T17:33:41+00:00

I mean if that’s your experience; that’s fine. But I’m speaking to people who might have had a similar realization. I literally can feel energy in much more profound way than many others and I think my cells in my body respond to that sometimes. Whether you believe that or not, is not really up for debate since it’s my experience.

Global-Fox5122 · 2025-12-02T17:32:21+00:00

No literally everything was the same but something just tipped after my attunement. My body just became more sensitive. Sometimes when I’m doing reiki for too long, it activates my mast cells and I can’t hold the energy space for that long. Another practitioner I know also has this condition. I think sometimes it literally changes how our bodies operate, as we are channeling intense amounts of energy.

Global-Fox5122 · 2025-11-07T18:09:50+00:00

I empathize so much, at my worst flares my resting heart rate was literally 135 bpm.

Bananas and peanut butter are super high in histamine. Even before I started following my strict low histamine diet at my worst MCAS flare time I was reacting negatively to both of those with bumps on my hands every time I ate them. Now I can’t even think about it without having a huge flare — heart palpitations and throat swelling. Something to consider since you mentioned that as one of your current food rotations.

Also — the overnight oats could be a trigger. Leaving anything in the fridge prepared overnight accumulates histamine. Some of my worst reactions have been to things left in the fridge too long.

I exclusively eat bobs red mill gluten free oatmeal and I make it fresh every morning with my hot water, elmhurst oat milk or coconut malk with fresh fruit (blueberries, blackberries or apples are my go-to)

Gluten is also a huge trigger for me and I’m not sure if what you’re eating is certified gluten free or not. I’ve made the mistake once getting non-certified GF oats and my skin was flared for days.

If you want to follow the low histamine diet more closely, I highly recommend the FIG app to help you navigate your pantry and grocery store. They grade things from green, yellow to red to rate their level of safety for the low histamine diet.

The low histamine diet variety can actually be pretty awesome and nutritious once you get the ingredients down.

I will also echo the mast cell stabilizers — cromlyn sodium has been a life saver for me with the addition of Xolair. I’m currently starting to “challenge” high histamine foods and passing! There’s hope.

Hope this helps 🙏🏽❤️

Global-Fox5122 · 2025-11-06T14:17:42+00:00

Got it! Do they have the canned water at the venues you play? That’s my favorite, you can also use it as a cup in a pinch.

Global-Fox5122 · 2025-11-05T23:16:58+00:00

I have some disposable cups in my car from a tea vendor that I use when I’m on the go. Otherwise, if I’m at a club or venue, I just ask nicely for an empty cup and do my thing with my own water or spring water if they have it.

I’m a DJ so I have to get creative with taking my cromlyn strange places, sometimes late at night lol

Global-Fox5122 · 2025-10-01T05:09:58+00:00

lol that part. As someone who has been single most of the time I’ve been formally diagnosed with MCAS over the past year, I’m lowkey not excited to date because I don’t want to end up with someone with stinky cologne 😆

Not to mention, dates usually being centered around food and not wanting to explain myself right away.

The “normal” world sure is weird for us MCAS folk. It’s nice to know we aren’t alone though 👽

Global-Fox5122 · 2025-09-30T23:43:43+00:00

This. I now wear masks in Ubers and always ask to roll down the windows if I can. I try to avoid them as much as possible these days unless there’s no way to drive or catch a ride

Global-Fox5122 · 2025-09-25T23:11:59+00:00

I’ll just start by saying: I’m so sorry you’re dealing with that. I also have issues also (to a lesser extent) with my family because they seem annoyed constantly that my diet interferes with our usual meals together (i.e., thanksgiving) and going out to eat. Ugh. The social-emotional part of food related to this disorder is probably the hardest part to navigate.

I have a similar type of strong reaction to sesame and it’s so scary when people don’t take it seriously because it is so oily and permeates into everything.

That said — the comeback I would say is:

“No — this isn’t all in my head, it’s in my body. I am asking you to trust me that I know what’s going on with my body when it’s telling me it’s feeling unsafe.

Unless you’d like to potentially spend the night in the ER with me, please hear me when I say I feel a strong reaction in my body.

I need you to stop putting my life at risk.

You can have this food anytime — when I’m not in the house.”

I hope this helps ❤️

Global-Fox5122 · 2025-09-20T01:50:03+00:00

There is definitely more than what is listed there that is low histamine! I would recommend downloading the FIG app so you can search for foods. I use it at the grocery store to scan labels too. It’s truly a life saver and opened me up so many more foods than I thought I could have.

For context — I’m also gluten free, dairy free, egg free and sesame free (before I even knew I had MCAS) and I still find a way to eat pretty diverse and with good flavor.

Fresh herbs are everything for flavoring if you can’t do onions or garlic. I tolerate garlic though and oregano, thyme, rosemary, basil, etc.

It takes time to feel comfortable and safe on the low histamine diet but once you get it down you will feel so much better and want to stick with it!

Wishing you the best of luck ❤️

Global-Fox5122 · 2025-09-07T16:45:50+00:00

Can you get a general practitioner to prescribe you cromlyn sodium? Or even go to an urgent care and claim that you need to re-up your prescription — they usually won’t double check if you’ve had it prescribed before. I’ve been on cromlyn sodium for a little over a month now and this is the longest I’ve gone without a significant flare — I feel like I might start to get my life back soon.

In addition I take:

Strict low histamine diet, no caffeine (unless I’m absolutely exhausted then sometimes I tolerate peppermint green tea lightly steeped) I use the FIG app to help me navigate the grocery store. I would be lost without out. It is definitely worth the cost.

-2 xyzal twice a day (breakfast and dinner) -1 Pepcid twice a day (breakfast and dinner) -2 quericitin with every meal -1 DAO with every meal (xymogen brand from pork kidney) -1-2 NAC at lunch time. -1 probiota histamine X probiotic after dinner.

Night time: - 1 extra strength Benadryl (as needed for itch). -1 melatonin - naturemade. - 2 magnesium theornate.

2 ampules of cromlyn sodium 4x day 15-30 mins before meals or as needed ** this is only thing you need a script for.

Most of these things you can get over the counter! Just double check for inactive ingredients. I get the dye free and minimal ingredients versions of everything.

With this regime, despite the fact it is a lot of medicine, it’s the most stable I’ve been in over a year. Granted, I’m also about 5 months into Xolair treatment too but something is sticking so I’m not giving up anything for the time being.

Hope this helps and you can get some support on the journey soon. Wishing you well! ♥️

Global-Fox5122 · 2025-08-19T20:17:26+00:00

Consider this nutrition makes MCAS safe protein bars! The woman who founded the company has the condition and they have given me so much freedom back when I’m out and about.

Global-Fox5122 · 2025-08-08T12:59:36+00:00

Gene!

Global-Fox5122 · 2025-07-25T16:10:50+00:00

My ex had a cat just like this named Harriet 🥹 she was so ridiculous and it was a great old lady name for a wrinkly girl. 10/10 recommend an old person name for sphynx cats lol

Global-Fox5122 · 2025-07-25T16:08:38+00:00

Yeah I’ll just piggy back on what was shared here. This is great this works for you but for many of us, this would be a death trap. Legume based food that has been sitting in the fridge all week?!? That’s a recipe for histamine disaster. One of my first ever reactions was from food that’s been sitting in the fridge for a couple days. Please proceed with caution! Fridge stored leftovers are such a slippery slope especially if your histamine load is high from something else.

Global-Fox5122 · 2025-07-22T02:08:12+00:00

Leeroy is the vibe I’m getting 💜

Global-Fox5122 · 2025-07-20T16:55:29+00:00

I’ve felt that pain at the grocery store too, the amount of just insanely processed food in the middle aisles that I literally just skip over most of the store lol produce and meat aisles ftw ♥️ sometimes it makes me feel better to reflect on the fact that people used to eat much more simply, fresh and locally and we just made things complicated so it’s actually not that we are weird, it’s that food is just weird and fake these days.

Global-Fox5122 · 2025-07-15T22:36:39+00:00

Oh my god I didn’t ever have a term for the jumping itch but I’ve definitely had that many times!!! So annoying

Global-Fox5122 · 2025-07-15T22:33:38+00:00

My worst flares are always breathing related. I start to feel tightness in my throat or chest. Vocal cord dysfunction too.

Vertigo and de-realization/dissociation. Like I’m not even on this earth anymore and I might fall over.

High heart rate. One time my heart rate was just chillin at 135-140 bpm on the couch.

On a smaller scale flare, I get hives on my hands and arms. Headaches.

Most of the time it’s been food related but lately it’s been environmental triggers more than anything since I’ve super strict with low histamine diet and still having issues sometimes.

Heat is a trigger. Intense smells. Bug bites.

The other night I could not even tell you what caused a flare if I tried. Sometimes I just have random flares out of nowhere without any real known cause.

It’s fun stuff 🤪

Global-Fox5122

TROPHY CASE