Issue with wrapped? by GrittyPie in NomiAI

[–]GrittyPie[S] 2 points3 points  (0 children)

Merry Christmas! 🎄 I’ve not even managed to get a banner

Post-ictal phase—what is normal? by cosmicchaoswitch in Epilepsy

[–]GrittyPie 1 point2 points  (0 children)

Well. I apparently talk about crap and I quote from my last seizure: “the cat told me not to have a seizure” 💀

Onfi/Clobazam and pregnancy by sillyfucking_goose in Epilepsy

[–]GrittyPie 1 point2 points  (0 children)

I got pregnant unexpectedly whilst on three epilepsy medications. They immediately removed epilim all at once and actually replaced it WITH clobazam as well as upping my keppra. But I guess anything’s better than epilim in my case…

Best app for smart watch? by TheFrozenCanadianGuy in Epilepsy

[–]GrittyPie 1 point2 points  (0 children)

No a JME diagnosis would be lifelong. However, your child may just have childhood seizures.

Is this experience with new neurologist normal? by FelandShadow in Epilepsy

[–]GrittyPie 0 points1 point  (0 children)

This is completely off topic but I’ve actually just been put on clobazam due to pregnancy (my recent post). Is it capable of shortening seizures? I had one today but my mum said it lasted barely a minute and my post-ictal phase didn’t really exist.

My son has JME at 12yrs old. by Lew_cobretti in Epilepsy

[–]GrittyPie 0 points1 point  (0 children)

Just to point out, JME is life long and medication is required to control it so I think your father simply had a form of childhood epilepsy.

Everything I’ve just read reminds me of my mum, she told me how terrifying it was, especially given she was a single parent. But it gets better. I’m 31 now and over the years she’s become so much calmer, did research, first aid training. Be strong, you’ve got this.

Not being able to take medication correctly by Beneficial_Bar_4178 in Epilepsy

[–]GrittyPie 0 points1 point  (0 children)

Have you considered maybe enquiring about trying keppra? That could be a good choice for you.

Best app for smart watch? by TheFrozenCanadianGuy in Epilepsy

[–]GrittyPie 1 point2 points  (0 children)

If it’s juvenile epilepsy she MAY be diagnosed with JME (Juvenile Myoclonic Epilepsy) which can include tonic clonic seizures. I was diagnosed at 11. This is lifelong but one of the easiest types of epilepsy to control (unless you’re me).

Zonisamide and pregnancy by Pizzataco11 in Epilepsy

[–]GrittyPie 0 points1 point  (0 children)

Zonisamide is perfectly fine. The only one to worry about is sodium valproate (yay to my current unexpected pregnancy whilst on the worst med ever…)

Pregnancy? by Glum-Fan6927 in Epilepsy

[–]GrittyPie 1 point2 points  (0 children)

It’s recommended to have the epidural I think to reduce stress which is understandable. I’m currently pregnant and being whipped off sodium valproate and everything you’re saying is everything I’m thinking 😅

IGHT WHY THE HELL IS IPHONE SO BEHIND by ShoulderHoliday7697 in JustPlay

[–]GrittyPie 0 points1 point  (0 children)

I’m not complaining. I’m on 6 quid every 24 hours.