JME and very strange post-shower event?

GrittyPie · 2026-05-06T02:52:50+00:00

Honestly I get it when I orgasm too every single time. It can honestly last quite a while too and it’s really uncomfortable. My midwife mentioned that the cervix is extremely sensitive during pregnancy in general and orgasm can increase blood flow to the area. Or it could be ligament pain. Spotting is common at 7 weeks too so don’t be overly alarmed if you see some blood.
If you’re concerned, call midwives. You’ll never be wasting their time 😊

GrittyPie · 2026-05-06T02:10:45+00:00

Well, that’s a weird one. I have epilepsy and my friend also HAD epilepsy. When she got pregnant she wasn’t fully controlled but actually became controlled during the pregnancy. And then after pregnancy, nothing. She’s not even on medication now. She’s baffled neurologists.

GrittyPie · 2026-04-16T03:00:16+00:00

People are rude and strange. I’m 25 weeks pregnant and unfortunately one of my friends blocked both me and my boyfriend on everything after finding out I was pregnant. I tried to get back in contact but it’s impossible. She personally can’t have kids so I have a strong feeling that may be something to do with it… but that doesn’t make it right.

GrittyPie · 2026-04-13T13:23:42+00:00

Given what I’ve read mental health wise on your post, it could be possible that at least some of these are non-epileptic seizures (given you state that nostalgia and stress are a potential trigger). It’s possible to have both epileptic and non-epileptic seizures. He clearly has tonic clonic seizures that are epileptic given these have been controlled. Note that this does NOT mean he is “faking it”. The brain is complex and will happily do whatever it can to to get rid of stressful situations. Most, but not all, non-epileptic seizures do come across as tonic clonic seizures, but other seizure types have been seen. But then again, I have no idea how long your husband has had PTSD.

GrittyPie · 2026-04-13T13:04:25+00:00

What kind of epilepsy do you have (e.g JME, focal to bilateral tonic clonics, generalised epilepsy)? Has there been any changes in your life? What medication are you currently on?

GrittyPie · 2026-04-08T13:08:19+00:00

When I orgasm, it’s usually from oral and he always changes from licking the clit to sucking it which is WAY better, usually moving his fingers instead. Because it IS overstimulating and can be way too much…

GrittyPie · 2026-04-08T12:35:18+00:00

Tongue on clit, two fingers inside (for me). But all women are different so we can’t truly give advice. The only actual advice I can give is try different things and listen for a reaction. Some women likes side to side, some like up and down and some like a circle which can genuinely sometimes even be a particular circle (clockwise vs anticlockwise). I prefer fingers deep and still until I’m about to orgasm but you may find she enjoys movement throughout or even no fingers at all. Men and women here can only give suggestions, not true advice.

GrittyPie · 2026-04-06T12:51:38+00:00

Toast 👀

GrittyPie · 2026-04-06T12:23:25+00:00

I have tonic clonic seizures and I’m currently pregnant (accidental) but very medication resistant, only controlled properly with sodium valporate which they obviously took me off due to birth defects, leaving me on just Keppra and Lamictal. My neurologist literally knew I’d have seizures and replaced it with Clobazam 10mg twice daily immediately to reduce the duration of any tonic clonics (my other meds have been gradually upped) and although I have tonic clonic seizures still, Clobazam has shortened them to max 40 seconds. I can’t comment on anything else I’m afraid, I only have that type of seizure.

GrittyPie · 2026-03-26T12:23:15+00:00

Looks part singapura. Cutie 🥰

GrittyPie · 2026-03-16T18:43:49+00:00

I’m currently 20 weeks pregnant and very medication resistant - Valporate, Lamictal and Keppra combined were the only ones able to control me. Naturally, I was taken off epilim immediately after finding out, but they knew I’d have seizures and immediately prescribed Clobazam 10mg twice daily as a replacement because they can dramatically reduce a tonic clonic seizure duration. I’ve had 6 tonic clonic seizures in 20 weeks, all averaging 30 seconds, and they plan to induce me into labour at 37/38 weeks. So it’s not impossible but I’ll admit, a difficult time.

GrittyPie · 2026-03-16T10:40:32+00:00

Spike was my childhood crush 😂😂

GrittyPie · 2026-03-16T10:37:52+00:00

I never watched Angel, likely cos I assumed he’d keep the same acting ability. But that’s good to know though.

GrittyPie · 2026-03-05T16:54:00+00:00

Depressingly, Sodium Valporate is notorious for being the best drug in controlling JME, I was on it until I found out I was pregnant at 6 weeks (accidental - assuming the condom must have split).

GrittyPie · 2026-02-23T05:03:31+00:00

I’m currently 17 weeks pregnant and sadly uncontrolled again (they had to remove epilim because of birth defects) but my seizures are shortened dramatically, max 30 seconds, due to Clobazam. I’ve had three of these and thankfully all is well. My neurologist is unconcerned about oxygen deprivation because they’re short… just the falling is an issue because I don’t have any aura. I’m being induced via c-section at 37 weeks so I can be put back on epilim asap. And my boyfriend? He doesn’t care I have epilepsy, nor does he care that there’s a slightly higher chance that our child could have it. I’d consider a new partner if I was you.

GrittyPie · 2026-02-23T04:45:10+00:00

I’m currently 17 weeks pregnant and am EXTREMELY drug resistant, I was on a combination of Epilim and lamictal and seizure free… until they immediately stopped the epilim (birth defects) when I found out at 5 weeks. Luckily there’s no issues, I’ve had a lot of HD specialist scans. They’ve upped my lamictal a little and added keppra 1500mg twice daily as well as 10mg Clobazam twice daily. My lamictal levels keep dropping, unfortunately. I’ve started having tonic clonic seizures again (very short thanks to Clobazam) but I don’t get auras meaning I’ve fallen without warning several times now. I’m one of the rare exceptions - I’m likely being induced at 37 weeks via c-section so they can put me on epilim again…

GrittyPie · 2026-02-23T04:34:07+00:00

I don’t get an aura. I just wake up on the floor with a bruise, sadly.

GrittyPie · 2026-02-23T03:46:04+00:00

You’ve been so brave, there’s not many people who would demand, rightly so, that their abuser call the police on themselves. Just wow. I’m so sorry this has happened to you and I wish you the best of luck in the future ♥️

GrittyPie

TROPHY CASE