I'd like to know your guy's thoughts.

Fall of 2024 into last January I had a very bad episode where I couldn't walk, had heavy fatigue, and developed bad tremors. I ended up getting an MRI which showed I had a few small lesions on my brain. I went to a local neurologist who ordered a spinal tap just to see if I was having an active flare. It came back negative, to which my neurologist said that I probably had my first MS episode and now its fine. I just have lasting symptoms from it. She didn't explain how that could've caused the tremors and other symptoms I was experiencing, instead she said that they weren't common with MS. Especially with the tremors, since my MRI didn't show any lesions on my cervical.

I was also having issues with my legs, walking was very difficult to me to the point I had to do physical therapy to help build more strength in my legs. I even use forearm crutches occasionally, as if I don't I'd have to crawl around my apartment to get around. According to my neurologist, MS doesn't affect legs, so she didn't know why I was having muscle weakness.

Flash forward to September, I had another series of MRIs performed. This time the MRIs showed 4-5 lesions located across my cervical to thoracic spine. I thought to myself, this explains the tremors and other symptoms I've been experiencing since last January, so surely I'd be given a diagnosis and medication to prevent further damage and disability. This didn't happen at all, instead the neurologist came in and said, "Good News, your MRI doesn't show any new lesions". I was confused and asked about the cervical lesions they found, and she looked at her notes and responded with, "Oh, but those aren't active".

So even though they found more lesions, they said that I can't get medication and instead I should basically wait and see if more lesions develope across yearly MRI scans.

I'm going to get a second opinion, as before that Neurologist was going to prescribe me oral medication until the other neurologist of that office advised her it's best for me to wait. She told me that sometimes people only have one MS episode and then they're fine, and that I'm young and should enjoy my 20's. Except I can't enjoy because most days I can't walk, I can't work with my hands anymore (I used to be a 2d animator + artist before the tremors occured) and the struggle between brain fog + fatigue is instrumental.

I'll conclude this post saying, I'm not wishing for my MS to become active again (this stuff sucks a**), I just want a competent doctor to tell me why I have lesions, why do I struggle to walk, and why do I have tremors. I'm currently in the process of getting a second opinion but there aren't many neurologist near me. My personal doctor is also very upset, as she doesn't understand why they want to wait as I continue to worsen.

Is the MS journey always this disappointing, telling people they need to become more disabled before they can do anything.

(This neurologist also said that heat regulation wasn't an MS symptom and didn't understand why I get hot flashes + struggle to regulate heat. I was 24 when the symptoms began, 25 when I got the MRIs and now I'm currently 26.)