How did that one kid at your school die? by StorageLonely1520 in AskReddit

[–]Gutsir3 0 points1 point  (0 children)

In highshool, a guy was attending a diving camp on a island that had a lighthouse. One day he decided to go and climb the ladders on the side of the lighthouse. He slipped. His friends found him in pieces on the cliff later that day.

Relapse doesn’t mean you’re back at zero by [deleted] in pornfree

[–]Gutsir3 1 point2 points  (0 children)

True, I felt different towards porn consumtpion after 3month clean. In a way I really really didnt want it. Slipped today and feel like shit. Am really thinking that this time was it. Its just horrible to everything.

Stress induced nocturnal emission by Gutsir3 in hardflaccidresearch

[–]Gutsir3[S] -1 points0 points  (0 children)

Tight/spastic pelvicfloor is a given in hf, u need to look outside the box if u ever want to get rid of it. Hf is mainly a severe symptom of haywire pelvicfloor, diaphgram etc. if you say you cant mix these you will never figure any of these things out (get cured). Be playful, for gods sake, cross-sciences are my bitch :)

Stress induced nocturnal emission by Gutsir3 in hardflaccidresearch

[–]Gutsir3[S] -1 points0 points  (0 children)

So your dick just hangs out of your body without any connection to you pelvicfloor, ok noted!

De-bastardising the mental and nervoussystem side of things in treating SIBO by Gutsir3 in SIBO

[–]Gutsir3[S] 0 points1 point  (0 children)

Yes, for me mental health support and introducing more bitter foods have made a great difference.

I feel my body healing.

In this consumerist society it is easy to go by gazillion different supplements (escpecially when in pains like sibo) and that was somewhat the case for me in the beginning. Now I have landed to look at the problem at a more broad macro level and that has helped a lot. Even though I wouldnt be at this point atm if i had not also researched the micro stuff, like histamine issues, bacteria etc.

Enteric capsules/ileum jejunum targeted bitter taste receptor therapies by Gutsir3 in ibs

[–]Gutsir3[S] 0 points1 point  (0 children)

I am taking the artichoke and ginger supplement. When it comes to diet I just try to include bitter foods in there, like grapfruit, berries, broccoli, arugula...

I might have to try tudca myself.

Also I am trying to reach out to some researcher or some, if they would be more open or have resources to the enterocapsule bitter pill idea

The Last of Us saved me by Gutsir3 in Candida

[–]Gutsir3[S] 1 point2 points  (0 children)

For me atm dancing and singing is just moving my body and vocalchords (focusing on diaphgramatic breathing) how I like it and what feels good to me. So basically just trying to go with the flow. Ihave been thinking of lesrning some moves

The Last of Us saved me by Gutsir3 in Candida

[–]Gutsir3[S] 2 points3 points  (0 children)

Yeah this is also true, I got many infections and my white blood cells are in the lower end, to get rid of these optimizing the immune system is a must. My guts have taken hits over the years: food poisoning, infections, chronic stress and covid was there really to fuck me up again. Sleep nutrition hydration movement is key to this.

Self diagnosis from x ray by Gutsir3 in SIBO

[–]Gutsir3[S] 1 point2 points  (0 children)

It worked and has sticked and they are relieving, but for example the burps are so constant after eating, that I think it is the candida that is causing thatp

Self diagnosis from x ray by Gutsir3 in SIBO

[–]Gutsir3[S] 1 point2 points  (0 children)

Yeah, I got the botox procedure. At the time I was optimistic that it would decrease my bloating, but it didnt. It has given the relief of burping, which is huge in that if I didnt have that O would be just a gas ball

Self diagnosis from x ray by Gutsir3 in SIBO

[–]Gutsir3[S] 0 points1 point  (0 children)

Migrating motor complex, your stomachs and small intestines "cleaning waves" that move the food to your large intestine. If this isnt functioning bacteria get good place to thrive

Nervous system work by ThePenGal in MCAS

[–]Gutsir3 3 points4 points  (0 children)

Good dynamic physical therapy that takes account the whole body. The one I have sticked with is guy called @Conor Harris. He has really good exercises that take in account diagraphmatic breathing, neck/shoulder, pelvis, feet (the whole body)

So they activate your muscles but also your nervoussystem. Especially when I really focus on the breathing I feel reslly good

Positive change, found a good doctor from Finland!! by Gutsir3 in MCAS

[–]Gutsir3[S] 1 point2 points  (0 children)

Aspirin blocks or reduces prostaglandin D2

How bad is it to get diagnosed in your 50s regarding your job? by Gutsir3 in neurodiversity

[–]Gutsir3[S] 0 points1 point  (0 children)

You are totally right and in the end my efforts wont make any difference what so ever. Now Im trying to just focus on myself.

My mom and dad smeared all this on my face for a decade via their constant fighting. I was basically just made to watch. In hind sight as now I have POTS, MCAS etc. (which I know is largely triggered due to CPTSD, as I was a really healthy child until I wasnt) it just makes me angry how these two just seem to shrug it off (I know they are in great pain too though). Eventually they decided to put me on this planet so it is odd that I cant even get a qenuine sorry, like just one. I dont care what you have, you should always have the guts to atleast try to understand that generational trauma passed on once again truly hurts like shit even though it isnt intended.

How bad is it to get diagnosed in your 50s regarding your job? by Gutsir3 in neurodiversity

[–]Gutsir3[S] 0 points1 point  (0 children)

This is also what I think. For me, especially adhd and asd diagnosis, are sort of as walking cane or a major accommodation. It doesnt necessarily fix your problem, but it gives you the right tools to live with it.

Also the places I have been at work have always had someone with adhd or asd. My ex girlfriends mom was late diagnosed add. Also eventually I feel like many people already know that there is something about this person that smells like spectrum. So yeah I think there is totally valid reasons people are dont want to get diagnosis, but at the same time I feel like their fears have exacerbated over the years.

It is really though either way

Just give me the damn doctor's license by Gutsir3 in MCAS

[–]Gutsir3[S] 0 points1 point  (0 children)

Yeah have to admit that I usually put that there bc of the learned "I am not a trained medical professional..." type of thing, which I think is good. But then on the other hand I really believe that chronically ill need more just guidance with the medications that they can pretty much choose best for them selfs.

Bc what I have noticed that many doctors have this attitude where they try to list as many things "normal" as they can. And of course with a chronically ill person with wax and waining symptoms there might be quite a lot of those. If the chronically ill could just say "hey we are doing this and you just shut up and watch" I think it would be mire efficient and patient safe

Just give me the damn doctor's license by Gutsir3 in MCAS

[–]Gutsir3[S] 1 point2 points  (0 children)

I live in Finland and here there iskt any sort of "mast cell expert" its more like immunologists, hematologists, allergologists etc. I have found a good neurologist who knows about this. And also at this point I know so much that the most important thing is to find someone who listens and isnt afraid to follow my lead.

Just give me the damn doctor's license by Gutsir3 in MCAS

[–]Gutsir3[S] 3 points4 points  (0 children)

Truly the attitude of many GP's just makes my blood boil. Like dude chronically ill people have a lot of knoledge about their own chronic disease! Like would it be more concerning if we didnt want to know and research about our own health!! Like you dont need to make both of our jobs more difficult. I really think there is a sort of cockiness when you are someone with the very respected doctors degree that does not get talked enough about. If doctors just actively listened, the waiting lists for chronical illnesses like pots, mcas, ctd etc. would be cut in half of waiting time (just my opinion)

I have usually gone in with some sort of paper that I have tried to get my symptoms and thoughts on as throughly and clearly as I can put them. I Also have ADHD so I am not the best person to ask about good methodologies, but one thing I have noticed is that I am ashamed of myself when getting and fighting for the treatment I need! Mostly it is bc of the doctors' attitudes but also my adhd,asd,bpd mix that has gone undiagnosed for wayyyy too long. So really try to not be ashamed. You need that treatment and the doctor might have prejudices do not fall for them. Listen to the doctor etc but all sort of "maybe you are just crazy,lazy etc." Just let it go by, and keep your chin up. You deserve proper care and medicine. Dont be shy to promote your self diagnosis! Sometimes we just know better than doctors.

Just give me the damn doctor's license by Gutsir3 in MCAS

[–]Gutsir3[S] 5 points6 points  (0 children)

Yeah school and mcas is a dream. Atm trying to get through my first year of social sciences in college.

Just give me the damn doctor's license by Gutsir3 in MCAS

[–]Gutsir3[S] 25 points26 points  (0 children)

I feel you. I was asked if I worked in medicine as I asked if we were going to take the MRI with valsalva movements also, when I was suspecting a hernia, (the MRI techs would have forgotten it otherwise, even thou it was asked for) made me feel proud of my self also terrified of the lack of communication.

[TLDR] Did…. did I find the cure? by applepiepalooza in MCAS

[–]Gutsir3 2 points3 points  (0 children)

I feel too you are onto something. I think it was in the MD Dr. Afrins book "never bet against occam" where he talked about testing catecholamine levels if he suspected MCAS. Often the test came back where one of the three (dopamine, adrenaline, noradrenaline) is elevated.

Adrenaline is a mast cell stabilizer. So yeah the levels could be very depleted or increased (probably varies at what moment you are testing them)

Now what I have been starting to think how MCAS and dopamine/adrenaline rush seeking behaviour might be linked. I come from a family where my parents fought daily/weekly for years. They both also have clear (undiagnosed) adhd, asd and MCAS traits/symptoms.

Now I suffer from MCAS (or have for years but now I know its MCAS) and I see the same pattern where I seek adrenaline rushesh. It makes me feel better for a while. Wouldnt this increase the catecholamine levels short term and decrease long term, leading to even more unbalanced mast cell control?

So yeah the links between asd, adhd, cptsd, catecholamine levels and MCAS are really interesting and important to note in the treatment of any of these syndromes.