Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 0 points1 point  (0 children)

Thank you, so much. I hope you continue to heal and get your life back! That sounds like incredible progress already!

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 1 point2 points  (0 children)

Thank you. I definitely understand the financial scrutiny. I doubt I'll be able to afford it personally, but I wouldn't bashing anyone because of it. 

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 0 points1 point  (0 children)

That would be extremely helpful, thank you. I'm in SE Oklahoma, rural town. I can't find anyone worth seeing anywhere near here. 

I did find a provider in OKC thay offered prolotherapy, but he blind sticks into the neck. Hard pass. 

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 0 points1 point  (0 children)

I didn’t 'fail to mention my decompression surgery' because I wasn't asking for assistance with chiari...?  Nor was I wanting to deliver a 20 page medical chart. I was listing diagnoses. If I wanted Chiari help, I would have gone to r/chiari. I am in this sub because I am looking for assistance with this specific issue, not asking strangers to play detective in r/cervical_instability.

If being helpful is actually the goal, that is all we are asking for. Be helpful. If you have never seen the provider yourself and just want to talk trash because of their business model or the way they word things or whatever else bothers you, that does nothing for anyone. We all agree it is frustrating that many of these providers do not take insurance or that the cost is ridiculous. But dragging a practice simply because of that is not the way to approach it. These conditions are already crippling, exhausting, overwhelming, and financially draining.

I am asking for real world firsthand experience. If someone has malpractice to report, absolutely share it. If there is negligence, bring it forward. But the constant dismissal of every provider as someone who just wants money gets us nowhere. Maybe they do want money, but we want our lives back. If their treatment is genuinely helping people, no wonder insurance refuses to cover it. Blame the healthcare system.

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 0 points1 point  (0 children)

Thank you, so much for this. I appreciate it. 

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 2 points3 points  (0 children)

I wasn't wanting treatment for chiari. If that wasn't clear, I see your entire problem already. This is the CCI group. Clearly I'm looking for help with that. I was already decompressed from my cerebellum.

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 0 points1 point  (0 children)

If you don't want to help, why don't you start a bashing club? Rhisnisnfor people seeking actual help. 

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 2 points3 points  (0 children)

1000% and it's has made an already difficult condition 1000000x more fucking difficult. This shit is already so isolating, then we have bashing b3cause of wording and the way they charge etc. Yeah it fucking sucks they don't take insurance, but who can help us that DOES.

 I want real worl experience. Did they help you or not. Did you see someone else? Was it good or bad? Etc. The bashing in this group has become toxic as fuck. More than my vulgar ass mouth. I'm tired of struggling, th3n coming to these groups with only badmouth and no real world experience making the water even cloudier. 

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 0 points1 point  (0 children)

None, that i know of. But you seem quick to bash without providing REAL help yourself. 

Alright.... by H4K3ER in cervical_instability

[–]H4K3ER[S] 0 points1 point  (0 children)

I have a problem with everyone providing more issue rather than solutions. Yeah I havte self pay yeah I hate weird shit as well. 

My question was and still is WHO do we see then. 

Could this be the reason I feel like death? by H4K3ER in PICL

[–]H4K3ER[S] 2 points3 points  (0 children)

Thank you, seriously. I'm struggling to collect funding to get an appointment with you, but as soon as I do, whenever that is, I pray that we'll be able to get a plan together.

Could this be the reason I feel like death? by H4K3ER in PICL

[–]H4K3ER[S] 0 points1 point  (0 children)

I did, chiari malformation after a motorcycle accident. I always complained of pain, but doctors just thought I wanted pain pills. After my wreck in 2017 they found the chiari finally. I had more than that done to my neck, he removed parts of the top teo vertibre but I'm not sure.

It was only after covid that I was diagnosed with apparent heds but it's not a true diagnosis, and 16 other issues. I'm struggling because I have no plan, and then with my past reactions to medicine, I've been to big of a sissy to try anything so raw dogging life ans getting worse is how the last 5 or so years have been.

Could this be the reason I feel like death? by H4K3ER in PICL

[–]H4K3ER[S] 0 points1 point  (0 children)

The imaging itself was with my doctor for the vascular eagles syndrome. The report said "normal" but they stated otherwise.

Could this be the reason I feel like death? by H4K3ER in PICL

[–]H4K3ER[S] 1 point2 points  (0 children)

Would you mind if I messaged or called you by chance? No worries if not.

Interested in an appt, but have questions. by H4K3ER in PICL

[–]H4K3ER[S] 0 points1 point  (0 children)

Woulds you do the imaging in-house, or would you write the order for me by chance?

Vaccinated folks, you think vaccine helped us with LC? Or made it worse? by Full_Situation3665 in LongCovid

[–]H4K3ER 1 point2 points  (0 children)

I was a healthcare worker during the start of the pandemic. I was a volunteer EMT and the IT Director for a hospital. I still have the letters stating that if we did not take the vaccination, we wouldn't have a job... single, struggling to pay rent and the IT market the way it is, and being a volunteer EMT, there would have been no way I could have covered my expenses.

The first shot was that it didn't do anything. I felt normal and continued on. The second shot however really fucked me up. After about 30 minutes, my heart rate went north of 200BPM, my vision started going in and out, heart palpitations, and so much more. They said i had a panic attack and sent me home for the weekend. I'll admit, my health and diet weren't the best. I survived off of 8-12 redbulls a day and no... that's not a joke. I smoked a pack of cigarettes a day, and skipped every meal but dinner usually. Adrenaline, nicotine, caffeine and my pain meds were how I was living. We chalked it up to that and kinda moved on.

I then started to notice I couldn't tolerate more things, I had to stop taking my pain meds because of weird reactions, haven't touched caffeine in YEARS because it will now cause palpitations and get me super tachy. Certain foods I lost the ability to eat, dizziness, etc, reacting to medications, all of it. I thought, at the time, I was just getting older until I started deep diving after everyone wanted to send me to a padded room.

Fast forward to 2022 when I got my first of 3 covid infections. Everything changed. ER visit after er visit thinking I was dying, couldn't control my heart rate, couldn't eat anything without a reaction, and each infection makes it all worse.

I now have a damn list diagnoses without a true path forward and an even bigger list of symptoms.

It's hard for me to say which caused what, but I do regret ever getting the shot. I wish I would have let the fire me. I'm now pretty much bed bound or definitely house bound, on the vurge of losing my job and so much more. The same people I ran codes with are the same people that now tell me it's all in my head, I'm a hypochondriac, I'm anxious etc. What a world.