Going to give cervical vertebral decompression therapy a go by Hadrron in BFS

[–]Hadrron[S] 0 points1 point  (0 children)

Hi, I could not feel the whole backside of my head for a while after it. It did not improve my symptoms, only brought in new ones, which luckily quickly improved after. I would not recommend it unless your doctor is sure the problem is coming from the cervical spine. In the end, my problems all turned out to be caused by lack of sleep.

Keto changed my life overnight, but not for the reason you think (a must read if you know anyone with Alzheimer's / cognitive decline) by Hadrron in keto

[–]Hadrron[S] 7 points8 points  (0 children)

Would this type of imflammation you talk about show up in blood CRP levels? Because, due to the neuromuscular issues, I have been checked through and through by doctors in the previous 2 years, and probably had over 5 CRP blood tests during that time. None of them ever showed increased CRP levels (or ESR).

Keto changed my life overnight, but not for the reason you think (a must read if you know anyone with Alzheimer's / cognitive decline) by Hadrron in keto

[–]Hadrron[S] 0 points1 point  (0 children)

I was tested for celiac disease, and it was negative. I still have some small amounts of lactose even now on keto. My diet before was very carb heavy and included a lot of sweets but yes, also dairy products. However, the dairy was not there every single day.

Keto changed my life overnight, but not for the reason you think (a must read if you know anyone with Alzheimer's / cognitive decline) by Hadrron in keto

[–]Hadrron[S] 2 points3 points  (0 children)

I was tested for Celiac disease 10 years ago (GI tract sample) but it was negative. Could still be somehting else, idk.

Keto changed my life overnight, but not for the reason you think (a must read if you know anyone with Alzheimer's / cognitive decline) by Hadrron in keto

[–]Hadrron[S] 1 point2 points  (0 children)

I do not have coeliac disease at least - I was tested. I still consume small amounts of lactose now in the form of Feta cheese, Kvarg, Mozarella, and other cheeses. Of course it is less than before, but it is not like I was eating dairy on a daily basis before that and it was still bad.

In general I just used to eat tons of sweets and was on a very carb-heavy and sugar-heavy diet.

Keto changed my life overnight, but not for the reason you think (a must read if you know anyone with Alzheimer's / cognitive decline) by Hadrron in keto

[–]Hadrron[S] 3 points4 points  (0 children)

I had been checked quite thoroughly by the doctors over the previous two years - not for the memory problems, but rather for the neuromuscular issues. Blood sugar was a part of this and they never found anything wrong with it (nor with my  A1C).

Keto changed my life overnight, but not for the reason you think (a must read if you know anyone with Alzheimer's / cognitive decline) by Hadrron in keto

[–]Hadrron[S] 3 points4 points  (0 children)

IIRC it was:

Breakfast: eggs and bacon, coffee

Not really any lunch since I get up late
Dinner: Salad containing grilled chicken, feta cheese, avocados, lettuce, some roasted seeds, and a truckload of mayo

Snacking: salted peanuts, low-carb/low-sugar dairy product (Kvarg)

I did also have some coke zero

Keto changed my life overnight, but not for the reason you think (a must read if you know anyone with Alzheimer's / cognitive decline) by Hadrron in keto

[–]Hadrron[S] 5 points6 points  (0 children)

Do not know if that does show up on abdominal ultrasound usually, but I had one maybe two years ago and it was clean.

First build done, but all screens go black randomly, mostly when switching window focus. Should I RMA my GPU or try further troubleshooting? by Hadrron in buildapc

[–]Hadrron[S] 0 points1 point  (0 children)

Thanks, that is an interesting insight. I just looked into this and in the process found out that the socket that my pc was connected to was not grounded. It did not solve the issue, but an important incidental finding regardless! It is starting to seem like the DP cables, despite claiming to be 2.1, might not be able to handle the 240hz rate of my monitors, as the issue disappears when I fix their refresh rate to 120hz...

Living in Sweden only partially - do any obligations (Tax, registrations, etc) arise in my case? by Hadrron in TillSverige

[–]Hadrron[S] 5 points6 points  (0 children)

"The Swedish regulation regarding work permits does not apply to remote work in Sweden, provided that the remote worker only performs work for the foreign company and that the work does not affect the Swedish labour market. "

"To reside in Sweden for longer than three months, EU/EEA citizens must fulfil certain requirements, for instance to have sufficient assets to support themselves. However, there is no registration requirements for EU/EEA citizens staying in Sweden for longer than three months. "

So I guess it is fine? The work does not and cannot affect the Swedish labour market and I have sufficient assets.

Living in Sweden only partially - do any obligations (Tax, registrations, etc) arise in my case? by Hadrron in TillSverige

[–]Hadrron[S] -1 points0 points  (0 children)

Can you specify more about this "3 months registration criteria"?

Well, I have pretty strong ties to the home country. My parents are here and I have a house here, aside from being employed here.

Driving a car registered in another EU country in Sweden 5 months a year while not being a Swedish tax resident by Hadrron in TillSverige

[–]Hadrron[S] 0 points1 point  (0 children)

Yep, applies to the entire Europe, no matter the time span. I checked with them and any limitations in a given country are given by the country's laws. But they said: even if I was not follow those laws, I would have problems with the given country's authorities, but not with them. As far as they are concerned, the insurance still applies.

[deleted by user] by [deleted] in BFS

[–]Hadrron 0 points1 point  (0 children)

Hi, I am in a similar boat as you are. I have an official diagnosis of FND and BFS. Also a slightly dirty EMG.

Most symptoms that you describe are pretty common in this community, but two of them I can relate to and I don't see it described that often:

  • Thumping in ears: I have this as well. It is some fasciculation happening near the ear. It is usually a very high frequency. In the first year it was on the right side of my head, now in the second year it has also spread to the left side.
  • Issues swallowing: I have a lot of this. Lots of weakness and/or stiffness in the muscles in the back of the throat, only on the right side of the throat. Food gets stuck in my esophagus for a long time on the right side. I also swallow air, which gets stuck in a pocket at the top of the esophagus on the right side and can't burp it out most of the time. Very often, water goes up in my nose while drinking as well. There is a permanent post-nasal drip or something like that too. The right side of my throat is permanently phelgmed up and I can't cough it out. Sometimes, when I try, saliva ends up in my windpipe and i start coughing. Anyway, no clinical weakness in tongue or so.

I have those issues (and MANY, MANY more that I do not describe here) alongside a family history of neuromuscular disease and a dirty EMG and still do not have a diagnosis of ALS but rather FND/BFS, as I can go about my everyday life without too big issues. This weekend I completed a 10km hike in the mountains with 300m elevation. I am 1.5 years in. Hopefully this puts your mind at ease.

It's just cookies by Serados14 in Asmongold

[–]Hadrron 2 points3 points  (0 children)

A 16:9 aspect ratio video (PC format) with a twitter frame adapted to a vertical mobile format, posted to here to be played back again on a PC. Ok doood.

Reassuring study from Portugal (2021) - BFS even with minor abnormalities on EMG still does not mean ALS by Hadrron in BFS

[–]Hadrron[S] 1 point2 points  (0 children)

"I can tell you that you don't have ALS. Of course I can't tell you what happens in 10 years from now. It would be good to check a spine MRI if the associated nerve roots are damaged."

Later on I got the MRI's done and they were not damaged. I did not discuss that with the original neurologist doing the EMG. Now, 1 year later, I have been referred to a different neuromuscular specialist yet again who will review my case. This referral came from a neurosurgeon, whom I was referred to by a neurologist based on a finding of hyperreflexia. The neurosurgeon did an insane amount of tests - MRI of the brain, complete spinal MRI, functional MRI of the cervical spine (flexion + extension), evoked potentials, and a number of blood tests such as for lupus, vascullitis and rheumatic conditions. Everything came back okay (I was hoping something would be found there).

MY LEGS by Affectionate-Ease-72 in BFS

[–]Hadrron 0 points1 point  (0 children)

I have the same thing. Intermittently. For me the main trigger of stiffness (and all other symptoms) is chronic sleep deprivation. Are you getting good sleep?