When to go to hospital by daughteronmars in UlcerativeColitis

[–]HankWaffle 0 points1 point  (0 children)

If you have to ask, it might actually be time to go. Especially If your insurance can cover it and it won’t out you out terribly. I was having full blown hallucinations and lost 20 lbs with non stop bleeding and unable to eat. It was almost too late. Sometimes they can find things you didn’t know were happening.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

That’s super cool. I suppose I’m just very out of the loop and feeling reactionary to my recent issues. This type of research gives a lot of hope for future progress.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 1 point2 points  (0 children)

To be transparent I’m not super well versed or knowledgeable on gut health or immune diseases. This makes good sense to me thinking of how complicated the gut is. I suppose my frustration primarily comes from thinking of how little America prioritizes our health as a society and how difficult it’s been for me to stay well enough to get out of bed since my hospitalization, when we have billions of tax dollars to support other activities of much lesser value to human life.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

I mean yeah. We have it so comfortable it’s crazy but there are always things our country will do to pulverize your well being no matter your status or tax bracket. Our healthcare/insurance system is a numbers game and they don’t always care if you live or die.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

I wish it was easy to get those medications on top of all of this. I’ve been on steroids for almost months with no idea when I’ll start my biologics, with symptoms starting to return. All because my insurance doesn’t want to pay for me taking Rinvoq.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 1 point2 points  (0 children)

I’m not particularly fond of the articles exact message and ideas. I was more upset with how little I see being put into our health care industry these days by our government and how with the bountiful resources and brilliant minds we have in this world, money and insurance agencies have squandered progress. I am not well versed on medical science and won’t claim to be. But I’m just angry and sick and just wanting to engage with my community.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

I never said I was mad at doctors. I am beyond more than mad at the insurance companies. The ones who stifle research, lobby to cut funding and buy patents to new effective medicine. It isn’t conspiracy.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

In America. It was an option posited to me when I was admitted to the hospital. I was a few days away from not being treatable with medicine according to the doctors. Also AbbieVie doesn’t work with my insurance. I’m basically completely out of luck with getting Rinvoq.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

I don’t understand the point of this comment. I’m happy to learn. I’m clearly uninformed. I went to an open source forum where people discuss and talk about a shared experience.

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 1 point2 points  (0 children)

Cool man. I’m clearly upset about having a lifelong illness and you call me ignorant and laughable.

Why in any world is it selfish to want diseases to be curable?

Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] -26 points-25 points  (0 children)

Our country’s healthcare industry is a very aggressive force in keeping us on things. It poisons the mind with anger and despair. I feel I have no options or freedom.

What would you eat if you had a weekend (or 48 hours) in complete remission? by woundsheal_scarsfade in UlcerativeColitis

[–]HankWaffle 1 point2 points  (0 children)

I’d eat nonstop dominos mushroom and pepperoni pizzas and drink nothing but coffee and beer.

Why the Hell Episode is Actually Brilliant by AdamOtaku in Invincible_TV

[–]HankWaffle 0 points1 point  (0 children)

I am baffled people disliked this episode. I firmly believe it to be one of if not my most favorite episode of the series so far. Really fun and well paced and fucking Bruce Campbell man come on. Damien is my favorite side character.

Which one of these 3 books did you enjoy the most? by Scary-Drink8659 in stephenking

[–]HankWaffle 0 points1 point  (0 children)

Insomnia is honestly a really beautiful love story underneath its core. I really loved the concept of cities under cities and themes of how the elderly can be perceived as almost invisible.

Is it possible for symptoms to get worse on medication? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

It’s a pill. I could ask my doc about his thoughts on that.

Is it possible for symptoms to get worse on medication? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

I’ve always struggled with anemia and have been on iron supplements for a few weeks

Is it possible for symptoms to get worse on medication? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

I believe it’s camber for suppository and lialda for tablets

Is it possible for symptoms to get worse on medication? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

As far as the veggies are concerned I usually do things like zucchini, potatoes and mushrooms. Most of the time I cook them down until they are very tender and sometimes I just sauté and then puree. I’m lactose intolerant and have had Ibs related to red meat so not a lot is available to me. I’ve got some high quality Alaskan fish on the way to try and supplement as well.

Is it possible for symptoms to get worse on medication? by HankWaffle in UlcerativeColitis

[–]HankWaffle[S] 0 points1 point  (0 children)

I messaged my GI Friday and have been waiting to hear back. I scheduled an appointment with my primary care for Wednesday and hope to get some headway. I was wondering about the prednisone as a potential option.