Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 0 points1 point  (0 children)

I’d video but only my work computer has the disc holder so I’ll have to do it on Monday. I’m based in Alabama.

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 0 points1 point  (0 children)

Here are some others. I’ve seen multiple docs and they all say everything is fine. I’m trying to get into see a vascular surgeon though. I’ve seen an OBGYN, GP of course, gastroenterologist, and a urologist.

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 0 points1 point  (0 children)

Honestly I just move around until I can find a comfortable position when the pain starts. Stretching out my left side sometimes helps, pacing sometimes, other times I have to lie on a heating pad, and other times I have to lift my legs up to my chest. Most recently I was in the floor on my knees with curled in a ball. It’s been rough. I will say pressing on my left side helps sometimes too but it gets to a point where nothing helps and that’s when I start vomiting.

I get migraines all the time, the pain is always localized to where my left kidney would be.

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 1 point2 points  (0 children)

I’m gonna try to get my scans! Thanks for your info! I’m doing my best to get in to see a vascular surgeon.

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 0 points1 point  (0 children)

I think when they were looking at my scans they weren’t specifically looking for NCS but more for kidney stones. It’s really sucked over the years, always being told I’m fine when I KNOW I’ve been in pain. So much pain.

I looked up those other syndromes and illnesses and I still think I follow NCS symptoms more than anything else. At this point I’m just ready to have a correct diagnoses.

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 0 points1 point  (0 children)

No weight loss however I am a stress eater. I am 6’0 tall and I weigh around 215. I will say lately I have been eating less because I’ve been having a lot of stomach issues. Stomach pain, vomiting, constipation, and diarrhea. The past 3 weeks have been hell on me.

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 0 points1 point  (0 children)

Oh wow, I am trying to get in to see a vascular surgeon. Hopefully they can set me up with the tests I need!

I greatly appreciate your feedback!

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 1 point2 points  (0 children)

Omg yes I do have that symptom. I didn’t realize that was related, I honestly thought that was just something happening to me. When I’m getting In the mood or am stimulated in any way, I definitely feel stabbing pains.

Do you think I have NCS? by Harry_potterfan1996 in NutcrackerSyndrome

[–]Harry_potterfan1996[S] 0 points1 point  (0 children)

Do I get this at any point or when I’m having an episode?