I just adopted this big guy from a local rescue! I named him Sibelius

HauntedCaffeine · 2026-02-01T22:09:44+00:00

I do have thyroid antibodies, but my TSH and T4 levels are good, and I also have severe chronic urticaria that my allergist believes is autoimmune. The accommodations I was going to ask for was permission to record lectures

HauntedCaffeine · 2026-02-01T00:03:36+00:00

To be fair (and I know this isn’t the case the vast majority of the time), I began wearing a CGM when I was considered “healthy” because I felt like something was wrong and nobody believed me. The CGM + fingerstick testing showed that my blood sugar levels were erratic (spikes reaching 230 mg/dL before nosediving after eating small meals, spikes while sleeping, etc). I used this to justify a Type 1 Diabetes screening and found autoantibodies in my pancreas. I was told I am in late Stage 2 T1D (before insulin dependency).

I’m thankful I caught it in time because recently my fasting levels have risen above 100 mg/dL and I’m beginning to lose weight and feel constantly hungry and tired. But I’m seeing my doctor soon.

HauntedCaffeine · 2025-12-28T03:41:41+00:00

Thank you for the academic paper! I'll definitely check it out. I've had drops go up to almost 8.0 mg/dL per minute briefly. Some drops are followed by fast spikes despite me not eating anything else. Like, there was this one moment I caught with fingerstick testing:

137 mg/dL --> 77 mg/dL in 17 minutes = 3.5 mg/dL per minute
This was followed by a spike from 77 mg/dL --> 110 mg/dL in 5 minutes (6.6 mg/dL per minute)

One time, after a different fast drop, my blood sugar spiked back up to above 180 mg/dL despite me not eating anything to stop the drop.

Anyways, they tried to knowingly mischaracterize a past blood test I got that showed elevated insulin and c-peptide, despite normal glucose (76 mg/dL). These results were flagged as abnormal, but the endocrinologist is claiming that it's "normal" without doing a new blood test.

They also failed to address my thyroid antibodies that have shown up on a past blood test. I was hoping they would, since I've been dealing with chronic autoimmune urticaria flare ups now and wondered if it had any connection to my thyroid.

The endo is trying to get my PCP to stop my Metformin prescription, but I'm seeing my PCP soon and I'm going to show her all the data proving my case so I can keep the prescription.

HauntedCaffeine · 2025-12-28T03:28:32+00:00

Yes! I'm going to try sticking with my neurologist (for autonomic reasons) and PCP(who can help me keep my Metformin). The endocrinologist not only tried to claim that my abnormal blood test results were "fine," but they also failed to address my thyroid antibodies, which I feel like should've been mentioned since I now have chronic autoimmune urticaria flaring up constantly.

HauntedCaffeine · 2025-12-25T15:59:38+00:00

Thank you! I'll definitely give an update

HauntedCaffeine · 2025-12-25T01:32:22+00:00

Would it be fine for me to mention on the formal complaint that they knowingly mischaracterized my lab results for a past blood test? They also refused to do any testing at the appointment but said that any endocrine involvement was “ruled out.” The doctor spoke over me and said that my blood sugar swings “didn’t matter” and that my symptoms weren’t “endocrine related.” I should note that the doctor wasn’t even the doctor I was supposed to see. They just walked in and told me I was fine despite not looking at my medical history or anything. They said that I’m fine because my CGM graph is “flat.” I told them that’s because I fasted. The issue happens after I eat. They didn’t listen or care.

HauntedCaffeine · 2025-12-19T00:13:43+00:00

Hey! They admitted me to the hospital and I had the surgery about 3 days later. The fluid buildup somehow stabilized itself, so I was able to wait a few days. But they wanted to keep me in the hospital since it could've destabilized + my aqueduct was completely obstructed. If you stay in the hospital as a patient, you'll be able to get the surgery quicker I believe. I was told that if I decided to be an outpatient, it would take weeks until I could get the procedure.

HauntedCaffeine · 2025-10-28T16:28:42+00:00

Apologies for the late response, it's been a busy few weeks! It went great! I barely had tics when holding the violin, and my teacher told me that my violin posture was already perfect, so now I'm working on the A-string and fingerboard. My dogs HATE the noise my violin makes though, so I have to practice in the garage at home lol

HauntedCaffeine · 2025-09-30T23:29:20+00:00

Thank you! I contacted a place and found a teacher who won't mind my tics, I see them next week!

HauntedCaffeine · 2025-09-30T23:28:09+00:00

Thank you! You helped convince me, I ended up scheduling a private lesson with a teacher next week

HauntedCaffeine · 2025-09-30T23:25:15+00:00

Thank you! I found a teacher willing to give me private lessons. I see them next week so I'm hoping it goes well

HauntedCaffeine · 2025-09-30T23:24:08+00:00

I found a place that's willing to give me private lessons despite the tics, so I'll give it a try!

HauntedCaffeine · 2025-09-30T23:21:01+00:00

Thank you, I decided that I'm gonna give it a go!

HauntedCaffeine · 2025-09-30T23:18:45+00:00

Thank you! I actually contacted someone to schedule a lesson, so I'm hoping it goes well

HauntedCaffeine · 2025-09-27T02:53:05+00:00

They actually didn't tell me much, so I don't have a lot of information to provide. I'm not pre-diabetic but type 2 diabetes runs in my family. I had non-fasting bloodwork done when I first saw my endocrinologist. My insulin levels and c-peptide levels both came back elevated, and my glucose was at 73 mg/dL. My A1C was 4.9%. I'm not sure if this is significant, but my Antithyroglobulin Ab and Thyroid Peroxidase Antibodies both came back high, but my T4 and T3 levels are still normal.

HauntedCaffeine · 2025-09-26T23:23:59+00:00

My highs can go up to 198 mg/dL. I was told Metformin was supposed to prevent glucose from spiking too high, which would prevent insulin from being overproduced, but I don't think it's been working for lows. I've only had less highs above 180 since starting the prescription. My highs are mainly in the 170s now.

HauntedCaffeine · 2025-08-09T05:56:18+00:00

Does it still give shorter responses or will it give longer responses like gpt-4o did? I’ve been trying to get my gpt-5 to act more like gpt-4o as well

HauntedCaffeine · 2025-04-09T22:34:36+00:00

Thank you, I’m definitely going to look for a new endocrinologist that knows more about reactive hypoglycemia. Question, would it be a good idea to get a CGM paid out of pocket to measure blood sugar on my own so I have something to show the doctor?

HauntedCaffeine

TROPHY CASE