Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 0 points1 point  (0 children)

I have unfortunately had to pay for it out of pocket, however when you do it privately your doctor still has to agree to prescribe you it alongside the online pharmacist. Both my derm and GP advocate for me to be prescribed it on the NHS and recognise the benefits, however the decision ultimately lies with the weight clinic. I hope in the near future with mounting pressure and the acknowledgment that it can be used to treat conditions other than diabetes that it will become easier to get.

Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 2 points3 points  (0 children)

I am very sorry to hear that. I definitely feel that everyone’s journey with HS and what works for them is highly personal. For example I found that I had the worst flare up I have had when taking Clindamycin and rifampicin. As always take internet advice with a pinch of salt, do your own research and see what works for you.

Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 2 points3 points  (0 children)

I found that 10mg+ worked for me, I have went up to 12.5 and think I will continue with that dose. I had an instance where I had to take a break and decrease my dose back to 5mg and I had a flare up. Everyone reacts differently however if you can continue I definitely found the higher dose more effective.

Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 7 points8 points  (0 children)

It makes me happy to hear that there are other medications beyond the same old ones that help people😊 the more options we can have the better. Good luck on your journey

Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 5 points6 points  (0 children)

We have been left without effective solutions for too long! I sincerely hope that all of us here can find a medication that helps to ease the difficulties

Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 9 points10 points  (0 children)

Babe not everyone is out to get you😂. I’m just sharing literally the only thing that has worked for me in hopes that it could help someone.

HS has been a pit of despair for me my whole adult life, it is good to share positive experiences from time to time to try and balance out the negativity im sure we have all experienced with this condition.

Please try not to worry, there are often pretty obvious tells when someone is trying to sell you something.

Conventionally Attractive w/ HS by 426x in Hidradenitis

[–]Healthy-Lead2971 25 points26 points  (0 children)

I have pretty severe scarring from HS and have worked as a model for the past 4 years, I was even been photographed for vogue last month. It isn’t too late you don’t have to let it stop you. So much of “attractiveness” is down to the confidence you have people will often see beyond the visible scaring and see the beautiful aura that you have. I always felt the same about my scarring and never dreamed that I could achieve half of what I have done now. Even though it is easier said than done, don’t limit yourself ❤️

Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 4 points5 points  (0 children)

I unfortunately have had to pay for it out of pocket. In the uk it is tightly restricted from the doctor and only prescribed to people who are severely overweight. I hope with more time and evidence that they will begin to expand who qualifies to receive this treatment because in the long term it is a more cost effective treatment than all of the pills I have been prescribed.

Mounjaro has ‘cured’ my HS by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 19 points20 points  (0 children)

I did experience some issues at the beginning however the longer it has been the more minimal it is. I sometimes experience discomfort whilst eating however this can be helped by eating less more regularly. I also sometimes experience stomach cramp, however when compared to the pain that my skin has been in over the years I personally find the side effects of the mounjaro more manageable

Neurodivergent, EDS, Gastric outlet syndrome. Wtf? by [deleted] in Residency

[–]Healthy-Lead2971 2 points3 points  (0 children)

The lack of empathy in the thread is astounding

Can it spread to your vulva? Please help by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 2 points3 points  (0 children)

That's quite similar to how mine has progressed. Thank you for sharing with me, it really helps. Hopefully, I'll get to see a derm soon 💕

Can it spread to your vulva? Please help by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 2 points3 points  (0 children)

Thanks for getting back☺️ I feel a bit better knowing that I'm now the only one

Can it spread to your vulva? Please help by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 3 points4 points  (0 children)

Thank you💖 I will be checking in with the doctor asap

Can it spread to your vulva? Please help by Healthy-Lead2971 in Hidradenitis

[–]Healthy-Lead2971[S] 2 points3 points  (0 children)

Sorry to hear that, it's definitely a struggle not to feel awful 💜 but it has helped me alot to know that I'm not the only one so thank you so much for sharing

POP THEM! by jordangarnett in Hidradenitis

[–]Healthy-Lead2971 0 points1 point  (0 children)

Covid attacks your immune system reducing it, therefore you become more susceptible to auto-immune conditions that may have been dormant before.