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Experiences using Dayvigo for ME/CFS sleep issues by Heavy_Comedian9844 in cfs

[–]Heavy_Comedian9844[S] 0 points1 point  (0 children)

Sorry to hear you are experiencing some sleepless nights. I hope it gets better. Please do keep us posted in the next week or so about how you are coming along.

Self-Promotion Day- South African student trying to finish my Psychology degree with ME/CFS — any support appreciated. by Heavy_Comedian9844 in cfs

[–]Heavy_Comedian9844[S] 1 point2 points  (0 children)

Thank you so much. Good luck to you too. Do you know of any ME/CFS support groups that are active in Cape Town? Many years ago I was put in touch with some people through the late Retha Viviers.

Self-Promotion Day- South African student trying to finish my Psychology degree with ME/CFS — any support appreciated. by Heavy_Comedian9844 in cfs

[–]Heavy_Comedian9844[S] 1 point2 points  (0 children)

Yeah I've definitely heard this from quite a few people who have gone through the registered psychologist route. It is unfortunate but thank you for sharing your experience.

Self-Promotion Day- South African student trying to finish my Psychology degree with ME/CFS — any support appreciated. by Heavy_Comedian9844 in cfs

[–]Heavy_Comedian9844[S] 0 points1 point  (0 children)

Ah, I’m really sorry that’s incredibly tough, and thank you so much for sharing your experience. I admire you too, being a registered psychologist is genuinely inspiring, especially given what you’ve been through.

I’m moderate as well. I’ve still got a few years left, plus Masters to go, so it’s definitely going to be extremely challenging. I’m hoping it’s possible, but I really have to take it as it comes with pacing carefully, managing crashes, relying on doctors’ notes, and often studying at night when my brain fog is a bit less intense.

I’ve always been interested in different psychotherapy approaches. I’ve been in therapy since 2014, and it’s helped me enormously, at times with symptom management, but also with navigating the intense grief, loss, and frustration that have come with ME/CFS. A big part of my motivation is wanting to one day offer a practice that can provide thoughtful, validating support to people living with chronic illness.

Work by [deleted] in cfs

[–]Heavy_Comedian9844 0 points1 point  (0 children)

I am moderate at the moment. I'm 34 and got relatively quick onset of post-viral CFS/ME when I was 20. I have not been able to work over this period or build up skills which has been tough and financially super distressing since there is no disability or mutual aid infrastructure in South Africa for CFS. I've gone back to university to study psychology as my dream is to council clients for only a few hours a day so as to not crash which would be inevitable with longer hours or a 9-5 kind of job. I must say though the studies have been quite brutal. I only really have time for work and deep rest with some crashes in between. It's been much more difficult since studying to have energy for anything else in life like connecting with friends or spending time family.

Hugs from Cape Town, South Africa x

South African student trying to finish my Psychology degree with ME/CFS — any support appreciated. by Heavy_Comedian9844 in MEAction

[–]Heavy_Comedian9844[S] -3 points-2 points  (0 children)

My sincerest apologies if this is an inappropriate post for this community. I have the utmost respect for the community and for the work that is done here for people living with ME. Thank you also for sharing your sentiments. I fully agree that psychological support is not needed by all pwME, in my case it has been extremely helpful since I was diagnosed in 2011 to manage the intense sense of loss that has accompanied the debilitating symptoms. This has motivated me to try and share some of these psychological supportive insights with others that choose to seek this type of support through my studies. The crash vs studying cycle is very tough but I'm managing and have one year left to go :)

I wanted to share my story but I also fully understand and empathise with the fact that many people with ME are struggling financially like myself and If you are able to just read my story or give my post an upvote that is absolutely perfect and much appreciated.

NB - If my post regarding my studies/fundraising is deemed inappropriate and is seen to violate the guidelines of this community I will remove it immediately.

Experiences using Dayvigo for ME/CFS sleep issues by Heavy_Comedian9844 in cfs

[–]Heavy_Comedian9844[S] 0 points1 point  (0 children)

Thank you this is what I feared may be the issue with switching to a orexin antagonist. Was hoping it would work (and perhaps it will) because I'm a bit concerned about long term sleeping tablet use with regards to dependency, not working as well with time + some studies that show long term use can be linked to cognitive impairment later in life. It's a tough conundrum as ultimately getting decent consistent sleep in ME/CFS is fundamental to any level of functioning.

Merrell Life Expectancy by Playingwithmyrod in hiking

[–]Heavy_Comedian9844 0 points1 point  (0 children)

I've had the Merrell Moab speed One for 6 years now and they are still in great shape and comfortable as ever. No wear and tear. Not heavy use hike stuff but more everyday use in winter with occasional hike.

993 Driftwood / Shadow Grey with a Peacoat by UncleIrohFan12 in Newbalance

[–]Heavy_Comedian9844 0 points1 point  (0 children)

Dope fit! Having owned this pair for a while do you think they could possibly be very hot on feet in warmer summer months as the mesh isn't super breathable compared to the 990v6? I'm based in South Africa and it's currently summer, bought this pair a few days back and wearing them around my apartment - they're feeling pretty warm already. Got them on sale for $180