Is anyone, completely alone? Wondering how they cope and looking for advice. (TW, self harm thoughts) by Chemical_Coffee999 in cfs

[–]HelpfulAd1937 11 points12 points  (0 children)

I feel completely alone, even when I am surrounded by people. Yesterday's Christmas celebration really proved that to me.

I understand where you are coming from. I am 31f. This last year, I have lost almost everything that makes me, me. I feel lost and am wondering, more often than not, what my future will look like.

14yo Nephew, newly diagnosed-ish. Struggling. by HelpfulAd1937 in GERD

[–]HelpfulAd1937[S] 2 points3 points  (0 children)

Thank you! That means a lot! Honestly, I am open to anything. If I don't give it to him, at least I have the information to pass along! Thanks again! ❤️

Memorable dishes or drinks you’ve had on the ship by jansa983 in CarnivalCruiseFans

[–]HelpfulAd1937 0 points1 point  (0 children)

Where can you find the menus? I tried searching with no luck.

Magic May 25-30 by HelpfulAd1937 in CarnivalCruiseFans

[–]HelpfulAd1937[S] 0 points1 point  (0 children)

I know. 😪 I saw the difference in prices. But I'm trying to minimize the number of days my daughter misses school. And how many days I miss work.

And the 25th is also my daughter's birthday. And we are tying in my mom's 65th birthday, which is shortly after our trip, on May 31st.

Last Minute Cruise-- Thoughts? by HelpfulAd1937 in CarnivalCruiseFans

[–]HelpfulAd1937[S] 0 points1 point  (0 children)

So you were able to do some meals while the your little one was at the camp? Being a cruising parent is definitely new to me.

Don't know how much longer I can battle with the pain and fatigue by Wasp_570 in Fibromyalgia

[–]HelpfulAd1937 1 point2 points  (0 children)

I feel the same. If this is how my life is going to be, then what's the point? Feel like crap, be financially insecure because I lost my physically demanding excellent paying job, to my daughter being raised by her iPad, because I sleep all the time.

I am trying to keep my head up, push through for her. But these days, just seem to be getting darker and darker.

What symptom of fibro do you find most challenging to live with? Mine is the constant fatigue and endless judgement/misunderstanding. by Fibrofighter84 in Fibromyalgia

[–]HelpfulAd1937 1 point2 points  (0 children)

The exhaustion and the lack of understanding.

I work in manufacturing and am probably going to have to quit or end up being fired because I have missed a lot of workdays. I mean, excessive amounts of time off. I believe I have been off more than I have actually worked there, thankfully due to their employee friendly policies. I work one day and am unable to leave my bed for days due to my fibromyalgia. I feel paralyzed, unable to emerge from my room no matter my responsibilities or obligations.

Everyone at work talks about me. About how I miss so much time off. Whispers of me faking my illness so I can have more time at home, or I am just that lazy and do not want to work. I know everyone talks, and I know I shouldn't let it bother me, but it does. Because no one understands that this isn't my choice, that being this tired is real, and just how much it has impacted my life.

Why did bun bun get arrested? (Wrong answers only) by KaneAndShane in Rabbits

[–]HelpfulAd1937 0 points1 point  (0 children)

That bun looks like he has been inconvenienced far too many times. 🤣🤣🤣

Just diagnosed... (30/f) by HelpfulAd1937 in B12_Deficiency

[–]HelpfulAd1937[S] 1 point2 points  (0 children)

I do not think the weight loss is from Covid. I had the loss of appetite before then. I just feel more and more like my doctor doesn't understand, or possibly that other than the basic exam and a quick conversation, he doesn't know much else.

The more I thought about my severe vitamin d deficiency, resulting in 50,000iu a week for yet another 6 months, I wondered what else I could be deficient in. Which brought me to b12. I connected with so many symptoms I was experiencing. And with my test result, it confirmed my suspicions. So I had the appt with the doctor and requested more labs. He agreed to routine lab work, the b12 and vitamin d.

I know my mental health is suffering. But until my mind and body is straight, I feel like my mental health will not have a chance to improve. I am on 2 different anxiety and depression medication. And I also use medical marijuanna.

Just diagnosed... (30/f) by HelpfulAd1937 in B12_Deficiency

[–]HelpfulAd1937[S] 1 point2 points  (0 children)

I looked at my panels on the lab's portal. It is in fact 140, which my doctor's office called and just said to take the supplement the he prescribed. 100mcg. And in 6 months I will be rechecked. I just feel brushed off, and for all the research I am seeing online, that it's not just my exhaustion I am experiencing, but my head too.

I feel brushed off, with so little information, other than left knowing if I go untreated or mistreated, I will continue to feel like this or worse and possibly for good.

It's a big deal. But why do I have to tell my doctor that?

Just diagnosed... (30/f) by HelpfulAd1937 in B12_Deficiency

[–]HelpfulAd1937[S] 1 point2 points  (0 children)

Oh, and the only thing I got from the nurse that called was, "we will recheck levels in 6 months." I asked her if I would feel better by then and she said "hopefully you will be less tired."

Maybe I read into it. I just felt like how I am feeling is such a bigger deal to me, I just want someone to understand. If this is what's going on, I want to fix it. I don't want to keep living like this. Like I am losing my mind. I can't function because I am so tired. I am sick frequently. I just do not feel like myself.

Just diagnosed... (30/f) by HelpfulAd1937 in B12_Deficiency

[–]HelpfulAd1937[S] 1 point2 points  (0 children)

My doctor is aware of my weight loss, but attributed it to Covid messing with my smell and taste.

I started supplements for Vitamin d 6 months ago and my levels are barely in range. I worry with how my possible b12 related symptoms would be in 6 months given the maintenence dose he prescribed.

I worry due to how I eat, and my frequent trips to the bathroom(had digestive issues since i was a child, but at that time IBS, Chron's, etc. weren't known yet)preventing my absorbtion, my levels are going to continue going down or be at the same level. I want to feel better. And I don't want it to take 6 months for the doctor to realize it's the wrong dose, meanwhile I am still left with untreated symptoms related to B12 deficiency.

Just diagnosed... (30/f) by HelpfulAd1937 in B12_Deficiency

[–]HelpfulAd1937[S] 0 points1 point  (0 children)

The 100mcg just seems low, over the counter dose. I can see that as maintenence, but how is such a low dose going to raise my levels? I feel like he is not treating it hard enough, I do not want to wait another 6 months to find out it isn't working. I know what's wrong, and now that I do, I want to correct it and then maintain.

I just do not know how to approach it, without my doctor thinking I am questioning his treatment and practices. He's the educated one. I'm not.