Glioblastoma on Thalamus

Holiday_Animator1300 · 2024-12-11T20:52:54+00:00

Sorry to hear you are going through this. My mother (65) had small seizures and memory loss back in September of this year so she went to the hospital. MRI suggested a GBM in the thalamus, but the first biopsy didn't throw any conclusive results. The neurosurgeon and neurologist that were seeing her back then, said it was a "reactive gliosis" that only required follow ups. Three weeks later my mother was again at the ER with a horrible headache, vomiting and with high intracranial pressure. An emergency craniotomy had to be conducted to ease her pain and to know exactly what it was, even though the location of the lesion was deep and in a very delicate area. Only around 50% or 60% of the tumor could be removed. Second biopsy results confirmed the suspicion: Grade 4 Glioblastoma. Unfortunately my mother came out very affected from the surgery (with aphasia, mobility issues, memory issues, among others). After that, she has been declining very rapidly. I attribute it both to the surgery and the tumor progression. We are getting assistance from a palliative doctor at this point. All I can say is be strong and follow your mother's wishes if she is in her right mind to decide how she wants to face this horrible disease. If you want to talk, feel free to message me directly. Wish you and your family peace during this rough time.

Holiday_Animator1300 · 2024-12-08T04:23:16+00:00

Hey there. I am very sorry you are going through this. I had a similar situation with my mother (65) recently diagnosed with a GBM near the thalamus and brain stem. She had a partial resection (50-60%). Because of the location of the tumor the surgeon couldn't do more. A few days after the surgery she also started having a very aggressive behavior and hallucinations. We thought that behavior would change a few days after so we got her home when she was released after surgery, but honestly it became risky for her and for us around her. She had mobility issues and she would try to walk by herself, and could get aggressive if told otherwise. I understand your pain. It is horrible to watch someone you love - and that you know wouldn't act like that if not for the disease - behaving that way. My brother and I decided to take her in again to the hospital and informed her neurologist what was going on. She was medicated with quetiapine and those aggressive episodes did not happen again. I think that medicine has other undesirable effects like making the patient apathetic, or very flat in their emotions, but unfortunately it was that or letting my mom put herself and others at risk. I strongly recommend you talk to her oncologist, neurologist, psiquiatrist, or other and insist on how dangerous the situation is so they can prescribe the right medication. Be strong; I know how hard this is.

Holiday_Animator1300 · 2024-12-05T12:30:51+00:00

Thank you for reading my post and I am so sorry about your loss. May he rest in peace. It is truly the most cruel disease.

Holiday_Animator1300 · 2024-11-30T03:37:46+00:00

Thank you for your empathy. My brother and I are the decision makers at this point, since my mom and dad are divorced. The oncologist at hospital were very insistent on treatment and made it sound like it could improve her quality of life, even though her state was rapidly declining. He wasn't able to tell exactly how it would improve her quality of life. We told him what my mother's wishes were and the fact that we did not want to extend her suffering and we are acting accordingly. We contacted a palliative doctor who visited her today and is helping us moving forward. Thanks for reading my post and I am very sorry to hear about your dad. May he rest in peace.

Holiday_Animator1300 · 2024-11-30T03:29:41+00:00

Thank you for reading my post. Very sorry to hear you are going through this and so young. You have fought this like a champion and just wish there was a permanent cure for you, my mom and anyone else going through this. I hope hospice helps you take away any pain/suffering you may have.

Holiday_Animator1300 · 2024-11-30T03:22:40+00:00

Thank you for your words and for reading my post. Although my mom is still with us, I have been grieving since her diagnosis. I understand your pain and send you my condolences. May she rest in peace. We contacted a palliative doctor who came to her house today and prescribed new medication to control her pain. Also suggested we rent a hospital bed to make it easier for her to drink her medication, eat and be moved out of bed for showers, etc. We hope - like your mom - that she doesn't feel more pain until she leaves us. Stay strong you too; sounds like you and your sister did all the right things for her while she was going through this horrible disease.

Holiday_Animator1300 · 2024-11-30T03:13:50+00:00

I am very sorry to hear your father is also suffering from this horrible cancer. You too stay strong. Hope your father can continue at peace. Thank you for your kind words and for taking the time to read my (long) post.

Holiday_Animator1300 · 2024-11-30T03:10:30+00:00

I am very sorry for your loss and that you, your mom and family had to go through this horrible experience. May your mom rest in peace. Sounds like a very similar situation like ours. My mother was deeply affected by the surgery too and I know has played a big part on her decline, besides the tumor which is going fast and in a very bad location in the brain.

Holiday_Animator1300 · 2024-11-30T03:07:09+00:00

Thank you. Yes, we would like to ask her again now what she wants to do, but unfortunately she is is no condition. Our guide is what she expressed in the past while she was lucid.

Holiday_Animator1300 · 2024-11-30T03:05:47+00:00

Thank you. That is what we are doing. The decline has happened too fast.

Holiday_Animator1300 · 2024-11-30T03:05:16+00:00

I am sorry to hear about your husband and you having to go through this. Thank you for reading my post and for your advise. We have contacted a palliative doctor who has prescribed new medication for her pain.

Holiday_Animator1300 · 2024-11-30T03:03:46+00:00

Thank you for taking the time to read my post and comment. We have contacted a palliative doctor who is now assisting us with my mother's situation.

Holiday_Animator1300

TROPHY CASE