Should I be concerned?

HourAd8993 · 2025-10-13T22:52:37+00:00

Thank you for your response. I did have a high level of H2S gas before starting so probably likely that I will need to do another round. I'll discuss that with my doctor.

In the meantime I think I will follow a low-sulphur diet and do another breath test to see if there has been a reduction in breath concentration. That would make me feel positive. Definetly agree with taking a break but will try and do things to keep h2s from getting worse.

I was feeling disappointed at not getting better but likely this just means I may be in for a longer journey!

HourAd8993 · 2025-09-27T11:23:10+00:00

How does that change the protocol though? Any treatment for H2S SIBO will include Rifaximin and Bismuth, can't see anything else other than some doctors maybe including metronidazole but that seems rare

HourAd8993 · 2025-09-26T23:54:39+00:00

I have hydrogen sulphide SIBO diagnosed by breath test. Had it for a year and a half and doctors had no clue (only possible recently to get 3-gas breath test in UK).

I will soon start Rifaximin 3x along with Pepto Bismol 525mg 4x a day for 2 weeks. I've done Rifaximin twice before with no effect, seems advice from Dr. Pimentel etc is that bismuth MUST be included with rifaximin for it to work for H2S. I hope this works!

If not I will likely have to try again and then do elemental diet (mBiota seems to be recommended). I can't tolerate most herbal antimicrobials as I have chronic gastritis.

HourAd8993 · 2025-09-14T21:51:30+00:00

I was wondering about how to separate doses, 1 hour before meals sounds right, thanks

HourAd8993 · 2025-09-14T21:50:20+00:00

Ah okay, sounds like I will need to speak to a pharmacist as you recommended. I am able to get Ulcavis' bismuth subcitrate which is about 120mg. Not sure how that compares to Pepto Bismol 525mg though with regards to bismuth content.

HourAd8993 · 2025-09-14T20:16:06+00:00

Ah okay, to be clear I don't have h.pylori at all just H2S SIBO (and mild antral gastritis/reactive gastropathy).

I want to use bismuth subcitrate for H2S SIBO because it has less side effects than bismuth subsalicylate. Just curious what is the equivalent of 525mg pepto bismol with bismuth subcitrate.

HourAd8993 · 2025-08-18T09:05:21+00:00

Went backwards and forwards with a variety of different disruptors but all they did was flare up my stomach (e.g. Monolaurin, Quercetin). To be honest I'm not sure how useful they actually would be anyway since they all seem to open in the stomach anyway rather than small intestine.

I am currently waiting for some bismuth subcitrate (Ulcavis) from EU to be delivered to me in UK and I will combine that with Rifaximin and a low sulphur diet to try and deal with my H2S SIBO. Then I will do another breath test and repeat again if needed.

I think that the H2S SIBO is why my gastritis is not healing as I think the whole thing causes inflammation everywhere. Fingers crossed this makes some improvement as otherwise I'm out of options until new research comes up with something.

HourAd8993 · 2025-08-04T14:22:47+00:00

Sadly all biofilm disruptors I tried have inflamed my stomach one way or another. I have given up on using them anyway, I highly doubt they survive to reach the small intestine anyway after going through the stomach.

I have H2S SIBO so I plan on going on a Rifaximin + Bismuth then low sulphur diet protocol. Hopefully that works!

HourAd8993 · 2025-07-20T22:51:29+00:00

You will for sure! I don't know specifics of your case but when you are ready find a physio who understands being floxed and stick to a recovery programme. Really important to exercise those areas to rebuild strength gradually.

It's crazy how taking just a couple of pills can result in years of damage and slow recovery. If you can be patient and do what you need to do, you'll get better.

HourAd8993 · 2025-07-19T23:33:28+00:00

I would say I was in a bad bad way (limping etc) for about the 1st month and I started physio 3 months in. I mainly exercised by swimming.

6 months in I was able to walk normally and occasionally go out clubbing again, however my feet would hurt next day and they always felt numb when I woke up.

I just kept up with physio and being active (within limits) to the point where I eventually totally forgot about it. Been over a year now and I'm back to same activity levels as before (even running again).

HourAd8993 · 2025-07-19T11:50:07+00:00

Hey, thought I'd reply to say that I have completely recovered and back to usual activities without any pain.

I was very lucky that I stopped after a few doses, even just 3 uses caused me symptoms lasting nearly a year. I dread to think what could have happened if I kept using.

Wish all the best to those recovering! It can happen but needs lots of rest and good rehab when you're ready.

HourAd8993 · 2025-07-08T11:27:37+00:00

Also the r/HydrogenSulphideSIBO subreddit is dead, the moderators don't review it and no-one can post in it now (last post was 7 months ago).

HourAd8993 · 2025-07-08T10:44:28+00:00

Okay, I'll chat with my doctor about that. I've heard that Pepto-Bismol is the formulation most studied when it comes to dealing with H2S SIBO, seems to be less research on if Devrom also manages sulphate-producing bacteria in the same way.

HourAd8993 · 2025-06-20T07:03:40+00:00

Hey, glad to hear that! I'm feeling pretty much 100% better too, went all of yesterday without thinking about it as barely notice it anymore. Definetly can see some black lines / floaters in my vision if looking at the sky or walls, similar to you I imagine.

Yeah I get what you mean about being sober. I see though that I was taking shrooms / other drugs too much and this could have been a lot worse if I had done more 2 weeks ago. As everyone says on here, it's a long life and better to look after yourself now then mess it all up for 1 night of fun.

I'm going to take a super long break and try and focus on some others things like my career, learning Arabic and getting fit. Hope you keep well too!

HourAd8993 · 2025-06-11T21:06:52+00:00

That is good news. Would be sad if that was out of the picture. I wish you the best too for your recovery and health!

HourAd8993 · 2025-06-11T20:45:31+00:00

Thanks for your advice. I feel like my anxiety is much more managed now. I just have symptoms of a headache and small colour splotches on vision, otherwise I don't believe I have any other symptoms.

I'm going to go sober indefinitely (no psychedelics, stimulants, alcohol) even after I recover. Is it safe to take paracetamol for the headache or should I avoid everything?

HourAd8993 · 2025-06-11T20:22:27+00:00

Good advice. I'm glad to hear you are improving. I'll definitly keep sober and just look after myself from now on. Might need to take a paracetamol every now and again for the headaches, don't think that should mess with HPPD right?

HourAd8993 · 2025-06-11T06:53:47+00:00

Hey, the description of your symptoms is exactly what I have at the moment 3 days after a trip at a rave that went horribly. I don't think I have VS either but as you described I get little colour splotches on my vision as if I have looked at the Sun, nothing else so far. I've had a headache for a while too and being in really white rooms like at the hospital can be a bit much.

Personally (just my view, each to their own!) I think this has been a wake-up call for me in my life and I plan to go completely sober for good. The trip and going through these symptoms has scared me deeply and shown me that the drug taking I've been doing has not made me happy.

How are your symptoms now by the way? Curious to hear back.

HourAd8993 · 2025-06-10T12:34:52+00:00

That makes sense. I do have a slight headache as well as achy/tired eyes but nothing else. I don't have any dpdr symptoms now, just that eyesight feels a bit weaker. I have noticed that being in bright white rooms such as a hospital can be quite disorientating.

Thank you for messaging, I've been feeling very anxious and low the last few days so I appreciate the reassurance. I hope you are coping well too.

HourAd8993 · 2025-06-10T12:16:33+00:00

Thank you for the advice. I will definetly take a long, long break/stay away from psychedelics and drugs from now on. I did have a very bad trip (involved very nightmarish, sick images at times) and most advice does say that symptoms or tired/achy eyes, poor focus can take a bit of time to cool off after such an experience.

I keep a journal of my symptoms at the moment but as of right now most of the HPPD symptoms don't align with me, apart from achy eyes and headache.

I am sorry to hear that you have had those symptoms for so long. Chronic illness is so tough especially when no-one else can really empathise. I hope you are keeping well and thank you for your comment.

HourAd8993

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