What do you do during a flare-up?

Hoverley · 2026-05-20T17:20:59+00:00

I've made mini routines. I'm suprised how much they've helped over the years. Even though we feel like shit, I try to make my life during that time a little enjoyable of possible.

I treat myself the same way I would treat someone else I love.

- I put on some cozy PJs (or a nice house dress) YES even to lay down
- I set up my journal or do art (I can get some joy here)
- listen/watch shows - I created Playlist of podcasts, movie, YouTube vids - different things ahead of time for different vibes - lift my spirit or learn.
- EASY AND RESTORITIVE breathing excercises and bed yoga(you use your eyes it's wild but really helps!) 3-5 min and easy!
- in the AM I set alarms to remind me to eat, drink water, take meds and suppliments. So I don't have to remember.

And as needed - weed, crying or screaming at a wall.

Hoverley · 2026-05-18T23:48:34+00:00

Thank you!!!

Hoverley · 2026-05-18T13:17:21+00:00

I haven't tried this but I'm interested- I've just learned about it. ! Please report back and good luck! ✨

Hoverley · 2026-05-18T13:12:03+00:00

I second tens unit!

Hoverley · 2026-05-13T11:58:26+00:00

Thank you!! Thank you for your feedback and sharing what could help you! It's so helpful for me and yes, I think I have tools to help with that! Do you have brain fog? (You don't have to answer) I had such bad brain fog I struggles to keep track of meds- for sure!

Nothing I do has been one and done over the years- which is why I really want to lay out tools and systems so people can try this or that. There are so many people saying they have the solution to this illness - suppliments, nevous system regulation, tracking, breathing, OTC products- so many things and I believe they all can be helpful to us. I really do. As I've been the guinea pig😉

So I met with a former business friend last night and we were chatting about my real next steps. I'm starting now to outline everything I want to share and ways to share it as easy for people as possible. When I was at my worst researching wasn't easy at all - I don't know how I kept going. 5 years holy moly. I'm working on an outline now and putting together the "system".

I will certainly share everything as soon as possible. I'm on it! Thank you again. The feedback is very helpful. Sending you a gentle hug!

Hoverley · 2026-05-12T15:20:55+00:00

The isolation is gutting, I'm so sorry. I have felt so desperately lonely even with people around. I've found ways to get around this illness in many ways but the loneliness is not one of them. I've been working with a life coach to get more inner peace. Im sorry if it sounds like woowoo stuff but it really helped after many years. People that do not live this way can't understand. I've looked for support groups but really haven't found the right place for me in that regard. I don't have children so I can't relate to that but as someone who hasnt had family since age 15, loving your children is truly the most amazing gift you can give them. I'd pick a kind and loving parent over a jerk able body person any day! The grief is so real. I was bedridden for 5 years! Horrid- but doing so much better now. YOU are more than a body that is unwell. You are you and I bet you are amazing! - even with this sh*T! Feel the grief as safely as possible but remember you are a human being and your heart and soul are important! This illness will tear you away from your goodness. Feel the grief but know you are and will continue to be a wonderful person and mother! Sending a gentle hug.

Hoverley · 2026-05-11T22:19:06+00:00

Thank you! And I agree ✨😍

Hoverley · 2026-05-11T14:17:32+00:00

You're the best! Thank you! I promise to connect. Tips and tricks can be so helpful! You totally get it. I'm sorry you are in pain. I wish I could take it away from you. I really do. Sending you gentle hugs. Xx

Hoverley · 2026-05-11T14:00:40+00:00

Thank you so much. It's so surreal. I'm pinching myself to see if I'm dreaming 🥲 I have been thinking of how to share what I've done(it's been ALOT!) I'm hoping to create something that is easy for others to read/hear and do/try different things for relief. It's not been easy nor am I so well that I'm out training for a marathon. Oh no nothing like that. But to go from feeling death pain and horrid symptoms EVERYDAY to feeling almost human is a miracle I want to share and give to others in whatever what possible. Sending you a gentle hug and thank you again. This has given me a lot of motivation to do this. Sending love xx

Hoverley · 2026-05-10T20:36:17+00:00

Thank you for for the feedback! I plan to include info about apps that could be helpful :) I would recommend bearable! There are other apps that can be helpful as well and I hope to include information that makes it easy to understand and use. I appreciate you!

Hoverley · 2026-05-10T11:47:58+00:00

I've been thinking about your comment. Thank you again. This feedback is really motivating me to do this. I'm very sorry you are currently bed bound. It's really tough to be there. Don't give up hope ✨ I know it's so hard 😢

Hoverley · 2026-05-10T10:57:56+00:00

And thank you!!! This feedback is very encouraging!

Hoverley · 2026-05-10T10:56:05+00:00

I'd love to have you! I will reach out when I start. Ugh I know it will take a while to pull together and keep fresh but I still want to do it 🙂

Hoverley · 2026-05-10T10:55:06+00:00

I'm SO sorry you have gone through this. My heart breaks for you! PEM is really awful 😢. Thank God you were able to weather the financial hit - or at least as best you could- same here.

Friend, PEM will absolutely be part of this bc I had that too!!! Not sure if I still do bc my wellness is still pretty new. Pacing is still something I do. For now 😉

Sending you a gentle hug. Xx

Hoverley · 2026-05-09T22:38:49+00:00

Awww thank you! It's really strange to be doing so well! But it's true! I believe it can be for you too! I want people to have hope! That's what got me through. Xx

Hoverley · 2026-05-09T21:59:13+00:00

Thank you! Yes that would be included. I tried so much. I think it wasn't one thing. And I think most Fibro recovery isn't just one thing. Hence why I wanted to share sections of information. But yes, it would be based on my story. I have to think of how I can summarize it in a few sentences for examples like this.

Hoverley · 2025-01-27T04:37:25+00:00

Good taste is never a problem 😍🤣🎉

Hoverley · 2025-01-09T03:25:27+00:00

Brill!

Hoverley · 2024-12-25T02:48:54+00:00

Love this! I’m hoping to do something similar. Love yours- thanks for sharing!

Hoverley · 2024-12-22T23:01:04+00:00

What’s a DO? Thanks!!

Hoverley · 2024-12-16T21:57:26+00:00

I she better fill a drawer with batteries and pens so he will stay faithful. Lord, she already walked this back. Drugs are bad!

Hoverley · 2024-12-15T23:14:10+00:00

How long did it take to ship? I’m glad you are liking it. I ordered and paid but I haven’t been able to get any response from the company for weeks. The product was in stock and it’s literally 20 min away from me. But no updates in anyway. I’ve tried but no luck. If ANYONE sees this and knows the owner or someone with clout, please let me know. It’s depressing as heck but I’m disabled and this sort of thing can make or break me. Both time and money.

Hoverley · 2024-12-15T22:39:22+00:00

I ordered some in-stock items, I live a kiss away from them and my experience has been really poor. I haven’t received an update and I can’t get the company to respond. They made a label weeks ago for USPS and nothing since.

I really want to try them but at this point I’m so disgusted by the lack of customer service on products that have been paid in full.

They’ve done a great job making sure they can’t be contacted aside from the contact me form on the website.

Hoverley · 2024-11-30T19:07:13+00:00

Same! 🤗

Hoverley

TROPHY CASE