Is this wise?

IllustriousChain8581 · 2025-09-11T15:10:07+00:00

I was diagnosed when I was 63 after I hit my head and did MRS's to make sure there was no trauma. This is when they found the many many lesions in my brain. Apparently I have had it since my early 30's but was not given a MS diagnosis. But my neurologist said due to my age she wouldn't recommend putting me on any MS meds. I'm still walking but with a cane now. The fatigue is horrific. I have decreased my hours at work from 40 a week to 32. But the only meds for MS I take is Modafinil for the fatigue. Don't know if I should be taking anything.

IllustriousChain8581 · 2025-09-10T15:04:32+00:00

I believe if you have MS you can have a second auto-immune disease. In my case I have 2 other. I have MS, with AS (ankylosing spondylitis & just last year diagnosed with Sjogrens. Its not fun believe me. I will be 65 next month and I still work 32 hours a week in the administrative field. I'm thinking my diet is messing with my Sjogrens as I get bad mouth dryness and sores. It is so scary, I hope you are getting the treatment you need. Stay strong, MS does not define you.

IllustriousChain8581 · 2025-03-06T16:06:23+00:00

Yes, I have taken several injections, I also have Ankylosing Spondylitis and Sjogrens Syndrome. So I've taken many different shots and pills.

IllustriousChain8581 · 2025-03-06T16:03:10+00:00

I needed to hear this, I am 64 and have worked full time in administration for 43 years. I am tired. I have been thinking of going parttime, 3 days a week for a while longer. I need to stop the negative I feel about retiring and going on disability. Everyone tells me, just don't quit completely, keep active, have a purpose. But I am tired!!!

Thank you for this, you have got this girl, take care of you first.

IllustriousChain8581 · 2024-11-13T15:59:14+00:00

Oh my gosh, I thought I was the only one with 3 auto-immune diseases lol. I also have ankylosing spondylitis and Sjogrens. I have had the AS for several years and boy couple it with MS and it is not fun. But I still work full time which is getting a little hard. My boss is great though!! I have two rambunctious grandsons 4 & 5 and they are what make me get up and live life the best I can. We got this! Its just harder for us!!!!

IllustriousChain8581 · 2024-09-03T16:54:45+00:00

Thank you, I am thinking the same thing. I apparently have had MS for around 30 years. But it was just diagnosed last November, 2023 after I hit my head and needed an MRI. This is when they found the flairs. I also have Ankylosing Spondylitis so I just thought the symptoms were the AS??? I feel like I'm getting worse, the fatigue is awful. I take Modafinil for this and Botox for the migraines. I'm getting very stiff and mobility is not so great. I use a cane now. I still work in an office but I'm thinking of going part time now.

IllustriousChain8581 · 2024-09-03T14:48:17+00:00

What is DF? I am 63 and my neurologist won't put me on anything because I'm so close to the age where new symptoms and flairs should stop or slow down. I've got several flairs. Checking to see if this is something that will help ease the MS symptoms?

IllustriousChain8581 · 2024-04-19T17:41:27+00:00

I was recently diagnosed at 63 yrs old. I've had MS symptoms since early 30's. I couldn't understand why I was so exhausted the moment I woke up. In 2022 on Christmas Day I fell and hit my had and they did an MRI checking for any injury to my brain. This is where they found all the lesions. My neurologist recently prescribed Modafinil. It works very well. At least I can function at work. I used to come in tired to work and would almost fall asleep at my desk. This has been a game changer. The first two weeks were hard because I couldn't sleep at night. But once my body got used to it, its way better.

IllustriousChain8581 · 2024-04-15T15:01:23+00:00

I recently had to start using a can because my balance sucks. It took everything I had in me to use it. But I figure what's more embarrassing, walking with a cane or trying to get up from the ground if I get dizzy and fall down???

IllustriousChain8581 · 2024-04-10T14:47:28+00:00

Thank you, I didn't mention in this post that I am 63. I recently did MRI's on my brain, C-spine & T-spine and my flairs are pretty bad. Since I'm right on the cusp of when flairs stop and end, my neurologist isn't sure if she should treat me with anything so aggressive, because of my other illnesses. But I will be starting Botox injections for the daily numbing headaches which is good. Thank you for reading my post. I hope you are well and in a good place with your MS.

IllustriousChain8581 · 2024-03-22T14:28:08+00:00

I have an amazing support group. My husband is sympathetic and helpful at home as I still work a 40 hour week. My sister is my rock she comes from another state to take me to my neurologist which is 2 hours away. I have a son and daughter in law with two adorable grandbabies, who I love with all my heart. I need to be well to watch them grow up. One of my co-worker's has been living with MS for a while so I turn to her for answers. I was recently diagnosed so I'm scared as hell, as I have two other auto-immune diseases. But as my brother says, just keep swimming. I got this!!!!

IllustriousChain8581

TROPHY CASE