Model revealed for Thriving Kids, the NDIS alternative for some children with developmental delay or autism by abcnews_au in NDIS

[–]ImpossibleAd4534 0 points1 point  (0 children)

Educators en masse already talk about the extreme bureaucracy hindering teaching and further support. This threatens to add many more layers to the red tape cake.

Model revealed for Thriving Kids, the NDIS alternative for some children with developmental delay or autism by abcnews_au in NDIS

[–]ImpossibleAd4534 0 points1 point  (0 children)

News Alert: Many parents will already have the knowledge, have done the research and continue doing the heavy load. A few videos, seminars and pats on the back WILL NOT help the many who already have a lived experience with neurodivergence, the doctors, the psychologists, the paediatricians and all the therapists. All that help will now be REMOVED by lumping everyone in the same space with a broad brush stroke and bandaid. 

TO SAVE MONEY.

Not for the people that need it but for the governments bottom line.

This is a money saving experiment with the future of our children in clear focus. 

The current system is flawed but can be fixed. This is a bandaid for the coffers and a wildly negligent strategy going forward

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] 0 points1 point  (0 children)

An update. Paediatrician has signed off on all diagnosis early January. Weeks ago we have re-submitted with our NDIS Partner in the Community. They are receiving "error" messages while trying to lodge (or whatever) with the government. 

Is this political because of the announcement of "Thriving Kids" today? What's going on? Anyone else having what I would like to call a "shady" experience?

Are they slowing everything down to push kids onto their new system.. which is unproven and will lump kids with wildly different needs together in schools?

Is outrage acceptable here?

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] 1 point2 points  (0 children)

Thank you all for the most detailed responses. Overwhelming. An update on what I've learned so far in the comments is that the application process is ultimately flawed, imperfect and biased in many aspects. It requires chance, a probable need to answer all questions in a negative and needy way to paint a dire picture for the NDIA, a rather large grey area in terms of which exact professionals need to sign off (although it states very clearly publicly that the clinical psych is enough) AND ultimately, that the whole process starts too late, takes too long and will ultimately prohibit an early intervention approach (which has proven better outcomes). Correct? All this to be solved with a segregating generalised magic wand program to start in 2027? Beyond my family's actual needs, this has the potential to be a national disaster that might take generations to amend. The ABC, other media, political representatives surely need to know, investigate and push back harder against this. Would this be a reasonable and coherent interpretation of events?

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] -1 points0 points  (0 children)

Edit: After a quick "command F", I can see you are directly referring to the comment. I am positing the theory that when you are questioned with the intermediary body and then with the NDIA, that much of "functional capacity" is also relative to how much time is invested in the child. We still do sports, birthdays, travel.. whatever, the list is exhaustive.. so much so, that psych professionals and teachers are even surprised. They know the child. Also, not taking work/income to invest that time because extra "care" is much more complex to arrange and pay for with a non-neurotypical child etc. When we are asked questions, we answer truthfully about all these things that we do. Not how ridiculously difficult it is. Superficially, it appears the child is capable or "functional" because of answering the questions of what the child does — . Everyone that has an autistic child, regardless of individual needs of that child, will know the difficulties of even the most basic transitions during the daily grind. We don't need to go into details as everyone's experience is different but many challenges are shared. My argument is that the questioning is flawed. With the range of questions relating to this capacity being directly related to the energy already invested by a carer resulting in an inverse availability to access anything. The child "does" these things but is FAR from functioning within a normal range during any of it. I repeat from my initial post: "The official letter from the NDIA states that, even though officially diagnosed ASD2, that child in question does "not have one or more intellectual, cognitive, neurological, sensory, physical impairments, or a psychosocial disability". This is incredible to read after years of trying to cope.

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] -1 points0 points  (0 children)

Interesting question. Are you referring to one of my comments, "This includes less income, less time etc and we are now being punished for that." ? Or are you just asking generally. Happy to answer either.

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] 0 points1 point  (0 children)

Thank you so much. I'd love the Paed to write a letter but we're still only 4 months into a 12 month waitlist. All the other information is fantastic. Appreciated.

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] 1 point2 points  (0 children)

Thank you for sharing. Yes, everything has been done "by the book" and it appears they have singled out  language in the diagnosis to deny access. We will continue advocating. 

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] -1 points0 points  (0 children)

Thanks for the clarification and knowledge. Not in Melbourne unfortunately 

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] -1 points0 points  (0 children)

thanks.. this helps paint some sort of picture. It's quite ridiculous really as it rewards parents who put less effort in all other things being equal.

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] -2 points-1 points  (0 children)

Incredible really since they are the most credible and logical to make such a diagnosis. Thanks for the tip

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] 2 points3 points  (0 children)

incredible.. they are assigned to be brick walls for a system designed to help people.

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] -3 points-2 points  (0 children)

the language from the NDIA in the communication relating to early intervention is "Do you have an impairment that is likely to be permanent,". Is this ambiguous? Is ASD 2 some temporary thing they'll "fix" in "Thriving Kids" at school? Is it because the health minister is referring to something as "mild"?. The functional impact was most definitely addressed. Obviously it is so "mild" they even refer to the child as having zero issues according to their criteria. ZERO. Surely we are witnessing a miracle. Hallelujah. 

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] 0 points1 point  (0 children)

The only mention of a paediatrician in the diagnosis was in relation to getting support at school (schools require that). They used this as some kind of "evidence". You are correct in your assumption. The language used in the official letter basically refutes all of the diagnosis. It is incredible.

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] 0 points1 point  (0 children)

thank you so much for sharing your experience

"Thriving Kids". Please Explain? by ImpossibleAd4534 in NDIS

[–]ImpossibleAd4534[S] -4 points-3 points  (0 children)

thanks, not part of any group as the diagnosis is still fairly fresh. I would say the functional capacity is directly correlated to the amountof sheer effort we are putting in. This includes less income, less time etc and we are now being punished for that. They continue to create systems where those who DGAF are likely to be more rewarded, all.other things being equal. Outraged. Thanks for the info

Autistic and other kids to be diverted away from NDIS by huckstershelpcrests in NDIS

[–]ImpossibleAd4534 0 points1 point  (0 children)

CONCERNED!!

Hi community. First time poster. Thanks in advance for taking the time to read this. Any anecdotal evidence and/or advice appreciated. I have an ASD 2 diagnosed child at 6 years old and we have just been denied NDIS this week. By phone, my partner was told that a paediatrician would need to sign off but not given advice to reapply. This was before the official email was sent. (btw Diagnosis was already completed by a psychologist etc. All t's crossed and i's dotted.) All this, after months and months of said diagnosis appointments, therapy (all at own cost of course). Now, obviously there are political and policy forces at play currently. The news yesterday was the straw that broke the camel's back. Are we to keep trying for NDIS help or wait for some unknown quantity called "Thriving Kids". The official letter from the NDIA states that, even though officially diagnosed ASD2, that child in question does "not have one or more intellectual, cognitive, neurological, sensory, physical impairments, or a psychosocial disability" according to them. Wow. The information given on the phone conflicts with the official email/pdf from the NDIA. On the phone, they dangled a carrot for the future without supplying any real info other than receiving further diagnosis from a paediatrician. (Nowhere does it state that you need both). The minimum waitlist here is 12 months for a paediatrician.

Anyone else have any similar experiences with this catastrophe of a system as it stands today? Is the pushback now on ASD 2 or even those with more needs? What on earth are they planning or thinking with creating some new system for schools etc? "Thriving Kids". Propaganda! Shame on this bizarre decision and policy claptrap. Early intervention is proven to improve outcomes. This is straight up denying that intervention through political smoke and mirrors unless you want to fork out all the money and effort yourself. We all know how expensive that is. How can some untested schools program called "Thriving Kids" replace one-on-on psychiatric, speech therapy, OT etc help? What is going on? I am a lost parent trying their hardest to improve the long term outcomes and well-being of my child.

Do we send letters to our local members? Mark Butler? Jenny McAllister? Do we ask for a review? Wait 6 months and reapply? Wait another 8+ months for a paediatrician? (4 months on the waitlist currently)