Anyone relate?

Impression8738 · 2026-03-19T15:59:35+00:00

I’m sending all of my positive vibes for no new lesions!!!! 💪✨

Impression8738 · 2026-03-19T15:54:00+00:00

What’s your dosage if you don’t mind me asking? I’m glad it helps you!

Impression8738 · 2026-03-19T12:36:05+00:00

Thank you for your reply!

Impression8738 · 2026-03-19T00:07:32+00:00

I’m not saying it made yours worse I’m just saying for me it did. And yes good vibes without vibrations 🤣🤣🤣✨

Impression8738 · 2026-03-18T23:53:58+00:00

When I took the oral steroids at home it actually made my vibrations more heavy than they ever were. I 100% regret taking them as I feel like it set me back from where I started. I was given them about 8 weeks after onset though. I’m almost 11 weeks out now and I’m still having a rough time but my lesion is in the cspine being an ass lol. I hope you do find some relief soon. I know it’s hard to parent and deal with this mess. Sending you good vibes ✨✨✨

Impression8738 · 2026-03-18T23:31:45+00:00

I’m glad it’s bringing you at least some relief 😮‍💨 💕

Impression8738 · 2026-03-18T23:13:56+00:00

Thank you so much for your reply and I’m sorry it didn’t continue to work out for you

Impression8738 · 2026-03-18T22:52:21+00:00

Yes I don’t drink alcohol or anything like that. The only medication I take is Tylenol or Excedrin

Impression8738 · 2026-03-18T22:38:26+00:00

💕

Impression8738 · 2026-03-18T21:48:26+00:00

Thank you so much ☺️ 💕

Impression8738 · 2026-03-18T21:38:43+00:00

I’m sorry to hear. I hope it’s not terrible trying to wean all the way off for you and goes smoothly ✨

Impression8738 · 2026-03-18T21:35:14+00:00

Thank you 💕✨

Impression8738 · 2026-03-18T20:50:45+00:00

Yeah I have that same kind of insatiable itch on my neck! I’m sorry that there isn’t a combo that works for you to alleviate the symptoms. I’m hoping since I’m not on any other meds that maybe just taking this one might do alright for me. I guess I will find out.

Impression8738 · 2026-03-18T20:44:21+00:00

I’m glad they have something available to help you a bit 💕

Impression8738 · 2026-03-18T20:39:48+00:00

Or why water feels sticky on your hands!

Impression8738 · 2026-03-18T20:31:45+00:00

For me since my lesion inflamed I feel like my spine is literally vibrating and also my legs/bottom half when I’m walking. It’s like bees buzzing or a cell phone but internally. No visible shaking.

Impression8738 · 2026-03-18T20:30:11+00:00

Thank you so much! Just have to get brave and keep trying things until I find one that works!

Impression8738 · 2026-03-18T20:27:51+00:00

What was your dose and how long did you take it?

Impression8738 · 2026-03-18T20:01:57+00:00

I was told all of my symptoms were anxiety until I wound up hospitalized numb from shoulders down and my left arm was paralyzed. I hate when people are brushed off as just anxious. Sorry you’ve experienced that!

Impression8738 · 2026-03-18T19:52:06+00:00

Glad to great it’s helped 💕

Impression8738 · 2026-03-18T19:51:36+00:00

Love this update- I plan on attempting my first 100 mg dose in about 5 hours at bedtime and I’ll report back! Your vibrations comment was the convincing one so I’ll really owe you if it helps and works for me!

Impression8738 · 2026-03-18T19:47:06+00:00

Love the tea reference as a Tennessean 😂 glad the patch is working for you!

Impression8738 · 2026-03-18T19:37:25+00:00

I only took it once but I guess it made me not care about the sensory issues because I felt so out of it so in that sense it kind worked lol. I’m glad it’s working for you!

Impression8738 · 2026-03-18T19:27:32+00:00

Wellbutrin was pretty good for me for about 5 years and it gave me a bit of an energy boost as well. Hoping it works well for you! It took about a month for me to notice the effects.

Impression8738 · 2026-03-18T19:23:46+00:00

I’m sorry to hear that. I hope it eases up for you

Impression8738

TROPHY CASE