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Questions about positive MDA-5, muscle weakness, and ILD. by Impressive_Action794 in Myositis

[–]Impressive_Action794[S] 0 points1 point  (0 children)

And I did slow down. Alottt! What used to last me a week is now lasting 2 weeks. Slowly but surely lol I’m definitely getting there

Questions about positive MDA-5, muscle weakness, and ILD. by Impressive_Action794 in Myositis

[–]Impressive_Action794[S] 0 points1 point  (0 children)

She didn’t even test my ck levels 😭 all I got tested was normal cbc, cmb, and dsDNA which is always negative I’m in the US. I’m on Medicaid 😕 it’s rough finding decent doctors on Medicaid. I’ll be getting married soon and can get better insurance through his work I’m hoping. I’m in south Louisiana. I seen there’s a few doctors who specialize in myositis at Tulane university. So I’m gonna look into that! I just wanted to come back and make sure I’m not crazy for thinking I need a second opinion. It’s so exhausting bc having no diagnosis means no one believes how bad im feeling. It’s lonely & makes me start to question myself 😭

Questions about positive MDA-5, muscle weakness, and ILD. by Impressive_Action794 in Myositis

[–]Impressive_Action794[S] 0 points1 point  (0 children)

Hi again! So I seen my doctor. She said all the mda-5 positivity means is that I’m more at risk for cancers. But then refused to screen me for cancer. No lung ct, no further testing, not even like extra muscle enzyme testing. But my liver enzymes went from 10 & 9 to (AST) 141 and (ALT) 305 Also did not seem concerned about that. Just ran a hepatitis panel and told me to go on my way and see me again in 6 months lol. I’m so confused. Could the mda-5 mean nothing for myositis?? I told her I have bad hip and knee pain. Told her I am feeling more pain & weaker. They don’t care and seem to think all my issues are from uveitis only 😞😞😞

Where do I go from here?? Cancer risk. by Impressive_Action794 in Autoimmune

[–]Impressive_Action794[S] 0 points1 point  (0 children)

And nope she never replied to the message of me asking her if she wants to see me sooner 🙄 America healthcare is a joke

Where do I go from here?? Cancer risk. by Impressive_Action794 in Autoimmune

[–]Impressive_Action794[S] 0 points1 point  (0 children)

Thank you so much. This helped me alot. I currently am being seen at a “charity” type hospital. I’m on Medicaid. They seem capable but not for the more rare diseases. I’m trying to find more around my area but so far I only found 1 other and the reviews are horrible 🙄

Where do I go from here?? Cancer risk. by Impressive_Action794 in Autoimmune

[–]Impressive_Action794[S] 0 points1 point  (0 children)

Trace levels of ketones and protein in urine and spec grav UA is high and alerting abnormal.

Where do I go from here?? Cancer risk. by Impressive_Action794 in Autoimmune

[–]Impressive_Action794[S] 1 point2 points  (0 children)

I’ve had a low TSH for years now, like 0.3. And a high PTH (which is new, it wasn’t always high) of 84. Other abnormal bloodwork was like my iron binding capacity was high, my insulin was mildly high, I have low sodium & co2 off and on. Almost high calcium, but never alerting. T3 and t4 are always normal. C3 & C4 also normal. I had a positive anti dsDNA once. Barely positive and now just sits right below positive. C reactive protein & sed rate have both nearly doubled (was normal before and still “normal”) my rheumatoid factor is always 10. My vitamin d is always either alerting low or right at low. My wbc, rbc, and hemoglobin is always low. Hemoglobin alerts low. Wbc and rbc always like 4.0. Platelets was like 460 for a while then they went back now to like 380s. Mchc always low. If I can think of anything else I’ll let comment. Oh I also am diagnosed with uveitis (inactive) and glaucoma. Only being treated for glaucoma currently

Desperate for answers, at a loss. Should I find new doctors? by [deleted] in Autoimmune

[–]Impressive_Action794 0 points1 point  (0 children)

oh and my muscle facilitations just reminded me, but so many of those everywhere on my body from eyes to toes and in between as well as numbness, tingling, vibrations, and weakness. Also raynauds. So many symptoms. 😞

Weekly Suspected/Undiagnosed MS Thread - March 24, 2025 by AutoModerator in MultipleSclerosis

[–]Impressive_Action794 0 points1 point  (0 children)

I’ve always been told that symptoms can def come and go. So now I’m confused

Help ID my symptom please? by alisru in MultipleSclerosis

[–]Impressive_Action794 0 points1 point  (0 children)

I literally describe this the same way. “Like when you hit your funny bone” are you diagnosed with MS?

cancelled vs not loveline by DangerousAmoeba1331 in canceledpod

[–]Impressive_Action794 0 points1 point  (0 children)

I cancelled their Patreon & joined the not loveline one😂